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estrogen after hysterectomy with endo estrogen after hysterectomy with endo

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Unread 11-19-2006, 01:29 PM
estrogen after hysterectomy with endo

HI ladies,

Are many of you taking estrogen even though you had a hysterectomy for endo? How long did you wait to start it. My doctor wants me to wait 3-6 months before I resume hormones and I don't know how I'll manage. I'm currently on Vivelle and prometrium because my remaining ovary isn't functioning.

I"ve tried to go off hormones and have been a complete mess- a shell of my former self. I can't imagine how I'll manage for that long. I'll never sleep.

She said that I should go on an antidepressant called effexor, but I don't want to take anything that changes my brain chemistry.

I'm interested to see what others have experienced with endo after hystectomy. Thanks.
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Unread 11-19-2006, 03:10 PM
estrogen after hysterectomy with endo

Hi Jahee

Even tho I had stage IV endo, I did go on HRT right away because I couldn't stop crying. Dr. put me on 2 weeks of Prozac just while waiting for my HRT to kick in. I knew I was running a risk, but I was more than willing to take it because I could not stand how I felt. (I was used to living with pelvic pain - I was *not* used to being sad 24/7 and crying for no reason. I didn't feel like me either.) Much to my relief, I felt better within a few days of the increased hormones.

Unfortunately, I did have more troubles with endo. After they went back in, my GYN showed me pictures of some very obvious big purple-black implants on my appendix and vaginal cuff - that were not there in my hyst photos. So they must have been microscopic areas that plumped up on my HRT.

Good luck with your decisions. I know it's a very tough call. My goes out to you.

Gentle s ~~
Unread 11-19-2006, 03:52 PM
estrogen after hysterectomy with endo

Hi Sistabeth,

Thanks for your reply. Are you still on hormones? How much time passed before the endo had to be removed again?
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Unread 11-19-2006, 04:04 PM
estrogen after hysterectomy with endo

Do you think it makes a difference if I stay off estrogen for 3-6 months? Will it all die off for good? I'm not convinced that it will because I've read that hysterectomy is not a cure for endo. I'll probably just stay on hormones and risk it because I am a former shell of myself without it and I don't believe I can function without estrogen. I've tried and I feel positively awful. Most of my pain is from adeno and fibroids I believe. I feel like if it's going to come back anyway, why suffer for 6 months without estrogen!
Unread 11-19-2006, 05:59 PM
estrogen after hysterectomy with endo

I am stil trying to figure all of this out. I had severe endo, adeno and fibroids. I also have High Blood Pressure (on meds) and have had indiciations on a MRI that I had some vascular "mini" strokes due to untreated High Blood Pressure 5 years ago. My Dr is playing the wait and see game with me right now with no HRT at this time--I was already on low dose 37.5 mg Effexor for another issue. So far the worse sympton is this crazy insomnia (I have taken Lunesta the past 2 nights) and very mild night sweats . I see him on Tuesday and will see what the next steps are--I feel like I will need some sort of HRT but want it to be the best for me with all of these issues. I will keep you posted--I know I don't want the endo to come back and I can tell you I have NO PAIN which makes me know I can handle this hormone thing!
Unread 11-19-2006, 08:18 PM
estrogen after hysterectomy with endo

I also had horrible endo, adhesions and PCOS, and am about 6 weeks post op. My dr had me start Estradiol .1 (Climara) the day after my surgery TAH/BSO.

I am TERRIFIED that the endo will return. My dr doesn't seem to think that it makes a difference if you wait to take HRT or not. I'm so tired of all this conflicting information!!
Unread 11-20-2006, 07:39 AM
estrogen after hysterectomy with endo

Hello again,

Yes, the conflicting views are frustrating. Hopefully they will remove all the visible endo in your pelvis (if possible) because just removing organs isn’t enough. My surgery was 5 hrs because they spent so much time taking down adhesions and removing endo. I do still have endo on the bowel because they felt it wasn't safe to remove it - but the bowel doesn't have the nerves that the rest of the pelvis does, so we are hoping it just behaves. My surgeon was pleased with what they were able to accomplish. He said "most" women do not have problems after their hyst if the endo was all removed, but that there (of course) were no guarantees I wouldn’t have problems again. Even if I did, things could never be as bad as they were. We discussed the risks of HRT and I willingly accepted them to feel like myself again.

Many feel withholding estrogen for a while will starve any remaining endo - causing it to "die off." Then there are those that feel that, while it does starve it... it doesn't starve it "to death"... so the cells can plump back up at any time estrogen is returned to the system. It reminds me of when I was on Lupron - my endo quieted down, but when it wore off I was instantly right back where I had been.

Personally? In my humble, non-expert opinion.... I don't think withholding estrogen causes it to die off to the point that the endo cells are completely gone, never to cause problems again. I do, however, think it is beneficial to withhold estrogen if you can tolerate it tho, because endo is irritating and causes inflammation ~ and our body responds to inflammation by trying to heal it & we end up with adhesions. Since the surgery itself puts us at risk for adhesions, anything we can do to quiet things down – (like withholding estrogen) might help lessen the formation of adhesions.

Are you still on hormones?
How much time passed before the endo had to be removed again?
It was within the year that we decided on a 'second look' surgery, but about a year and a half before it actually happened because I had also developed a 3rd degree rectocele & had to allow significant time in my schedule to heal from the posterior repair.

As far as the anti-depressants…it’s my understanding that many serotonin meds use some of the same receptors as estrogen, so they can help many women who don’t or can’t use HRT.

Deciding when/if to use HRT with endo is a personal decision each women should discuss with her own doctor or endo specialist. Don't go by me. I gambled and obviously lost, but even so I don't regret my decision. My emotional health was my priority.

Hope you guys have had the last of your endo problems and have a healthy and happy road ahead of you.
Best wishes & gentle s,
Unread 11-20-2006, 08:55 AM
estrogen after hysterectomy with endo

my dr also wants to wait 3-6 months before HRT. the insomina was horrible but he gave me ambien i also take a womans one a day vitamin, b12 complex and calicum. i started walking and going to the ymca just doing light weights. i feel great. before the surgery i went to 3 drs over 3 year time and they all said it was stress. finally found a dr that would listen and did a sonagram and found the problems. the pain from the surgery and the night sweats are well worth it now.
Unread 11-20-2006, 09:07 PM
estrogen after hysterectomy with endo

Dear Sisters;
I am a member of the National Endometriosis Society, am trying to become a 24hr. hotline helper. I have had 5 total surgeries for severe endo, ending in the TVH/BSO 1 and 1/2 years ago.

I have had it about 20 years total. I believe whatever vagrant cells exist after a hyst are still active with HRT; I had the same experience with Lupron as our sister above: relief on it, but it came back with a vengeance the first month the shots ended. So it was not "killed" off.
I feel best taking HRT, and especially the bioidentical type, if they give the proper strength. I was told that, say, one milligram of estradiol in pharmaceutical form is more powerful that one milligram of estradiol (or bi-est) in bioidentical form. I honestly feel more twinges and pain on the pharmaceutical types, rather than the natural. No studies have been done yet, but in my humble opinion--the natural may not be as growth-provoking to endo as the pharmaceutical kind.

Ladies, who has heard of/ tried sottpelle therapy? I am extremely interested! I will be trying it in January--off into the final frontier!!

In the meantime, we pray for both a cause and a cure to be found for this devastating disease. God bless you all, dear sisters!

Love, Briar Rose
Unread 11-20-2006, 09:25 PM
estrogen after hysterectomy with endo

My Dr. told me it was ok to be on a low dose of estergin and put me on a low dose of premrin, the day after my hyst, but anything above .6 is enogh to allow the endo to grow back. I don't know what I would do with out the hormones and it is still not enough.

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