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MRI and LCD to rule out leiomyosarcoma, has anyone had this? MRI and LCD to rule out leiomyosarcoma, has anyone had this?

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Unread 11-20-2006, 07:47 PM
MRI and LCD to rule out leiomyosarcoma, has anyone had this?

I am 51, still having periods although sporatic, last one about a month ago. Dr. concerned my one large fibroid could be a leiomyosarcoma since it has increased in size by about a third in two and one-half years. She says only way to know it is not a leiomyosarcoma is to do a hysterectomy and check the pathology. I have read that an MRI and LCD blood test can be done to rule out leiomyosarcoma. Does anyone have info. or gone through this?? Thanks Oh, the fibroid issubserosal and about 15x12x13cm.
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Unread 11-21-2006, 05:42 AM
MRI and LCD to rule out leiomyosarcoma, has anyone had this?

Hello Marquise:

I don't have any experience with this, I just want to wish you well. Have you considered going to an oncologist who specializes in leiomyosarcoma for a second opinion (or perhaps you already have?) Regards, Blue.
Unread 11-21-2006, 06:50 AM
MRI and LCD to rule out leiomyosarcoma, has anyone had this?

Marquise -

I thought I might tell you my story since I had a very rapid growth (not present in Oct 05' to 88mm in Aug 06') and my surgery found not the 2 they expected but 15 are present in the photo they took.

I was cautioned that my pathology might show 'malignant'. They said the faster the growth, the greater the possiblity. Its funny, I never even considered it. I 'knew' it wasn't but was just concerned about the rate of growth so I consented to a partial hysterectomy.

It took 2 months to schedule (seemed like forever) but was for me, even at 35, the right decision. I had 'my alien' pressing into my liver, I had a fibroid adhered to my bladder and I had several adhered to my broad ligaments. I look at this now, and I know waiting for me would have made things so much worse.

I didn't get a second opinion. I probably should have but I have great faith in my Dr (In part because when 4 Drs in a row felt at 22 my only option for very mild dyspasia was a complete Hyst, she said 'lets see if this is just going to be 'your normal'). BUT also because I listened to the little voice in my head that kept saying this is what I should do.

She gave me the option early on of just removing the fibroid but I was afraid of the potential for blood loss from its and also concerned a year later I might be right back in the same boat. Post-Op, I think I saved my DH a very hard choice as since she found so much more than she expected, I wonder if she would have wanted to proceed with a partial hyst.

I like the other posters suggestion that you consult a GYN/OC, I don't see how it could hurt.

I wish you the best in whatever you decide to do.

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Unread 11-21-2006, 07:17 AM
MRI and LCD to rule out leiomyosarcoma, has anyone had this?

GO! GO! GO! GO! as fast as you can to have your hyterectomy! You doctor is right, you cannot confirm it without the pathology. The test that you are refering to can help to validate a suspicion of leiomyosarcoma, but it cannot be confirmed. I had a TAH BSO because of my family history of OVCA, a personal history of breast cancer, huge fibroids (that were monitored evry six months via trans vaginal ultarsound)and a probability of a genetic mutation. No one suspected a cancer and the surgery was preventative. Post surgical pathology revealed a 9 cm leiomyosarcoma.

If someone along the way said they though I had this cancer; I would have asked them to wheel me into the operating room right than and there. Becasue this cancer is so rare, treatment options are very limited. It is resistant to chemo-therapy and radiation. The gold standard for treatment is surgical resection.

Please remember to consult with a gyn/onc if you have not already. It is also recommended that you work with a sarcoma specialist.

Best Wishes,
Unread 12-14-2006, 04:21 PM
MRI and LCD to rule out leiomyosarcoma, has anyone had this?

I was also 51 years old when a sudden pelvic mass appeared. It grew from 14 cm to 20 cm in two months. The only way to tell for sure what is is is by surgical pathology. MRI's and CT scans are not totally accurate.My MRI showed it was most probably a fibroid and was shrinking(which I knew it wasn't).Listen to Beachball and good luck.
Unread 12-14-2006, 07:02 PM
MRI and LCD to rule out leiomyosarcoma, has anyone had this?

I don't have any experience with this but I wanted to stop by and wish you luck and give you a hug ! You will be in my prayers!

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