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Cervical Dysplasia Cervical Dysplasia

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Unread 05-30-2001, 01:57 PM
Cervical Dysplasia

Help!!! I just recently found this site and it has been such a relief! The other sites I have visited have really gotten me stressed! I went in for my annual pap, which came back abnormal. My dr. took cervical biopsy and told me that I have severe cervical dysplasia. I am 35, have two children with no plans for anymore. My doctor wants me to have a hysterectomy on June 22. He said this is a serious condition that does not need to wait. The way my dr explained it is that I have I am wondering if anyone else has this same type of problem and would love any info. that anybody wants to share. I am scared to death that I will become this crazed, horrible person after the surgery. I have read so much that makes me worry about the sudden menopause that I will experience. He said that I could keep my ovaries "IF" they look ok. I suspect that they won't because I have trouble with ovarian cysts as well. I also have a prolapsed bladder which the dr will fix during this surgery. Any advice or words of wisdom would be greatly appreciated. Thanks in advance!
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Unread 05-30-2001, 03:28 PM
Cervical Dysplasia

Hello and welcome G.Sparks. I had tah/bso over a year ago..started estrogen the day after surgery..and my moods are more stable now than they've been in years. Sometimes it takes awhile to find the right HRT..but I haven't had any problems.

There's lots of posts regarding keeping ovaries if they are in good shape.

Read the pull downs at the top...use search engine (it's great) you can search by keyword and/or username and of course ask questions. We're here for you.
Unread 05-30-2001, 06:13 PM
Cervical Dysplasia

Hi G.
I am 36 and also do not want anymore children. I actually had my tubes tied in Feb at time of my last biopsy.

I am having a hyst in Sept due to abnormal paps. I have had numerous biopsies and a cone biopsy all which come back abnormal but not cancer. The scar tissue from the cone biopsy has closed my cervix and my menses can not be expelled so I need to have the hyst. I can't take anything hormonal to stop my period because of a blood clotting disorder.

When all the abnormal paps started and after my cone biopsy, I wanted my doc to do a hyst to be done and over with it. I have a history of cervical cancer in my mother and her mother. I was terrified of cancer. Doc wanted to do one last biopsy which is when I found out cervix is closed.

I too have had a problem with ovarian cysts, but only on the right side. I hope to keep at least one ovary because I cannot take HRT due to the clotting disorder.

I understand how scared you are. If you trust your doctor, go with what he says, if you are unsure, ask for a second opinion. I really didn't want the last biopsy, I wanted to have the hyst. I had a second opinion and she agreed with my doc. THat made me feel so much better that two docs felt the same way. I was worried that my doc would be mad at me for getting a second opinion because I thought he would think I didn't trust his judgement. He was actually glad I had the second opinion because I was much calmer and reassured that this was the way to go.

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Unread 05-30-2001, 07:19 PM
Cervical Dysplasia

hi g. sparks

i also had abnormal pap i had a biopsy also found out i had severe dysplasia also had severe bleeding 45 days at a time then off for a week then started again i was anemic (sp?) when i went to dr. i had a total radical hyst. tah/bso on march 1st i am at 3 months now and i have never felt better in my life i have more energy now then when my kids were little. the dr. wanted to do more test before i had the hyst. i was so tired of all the test and nothing being done to stop the bleeding and the pain that i just told him to do the hyst. he told me i would have to have kemo before the surgery so we did 2 sesions then i told him i could not take it any more to just do it . we did and he said he got all the cancer . i am so thankfull for that . i still get swely belly after work every day but that i can handle now.

the best part is no more pain and no more periods and did i say no more pain.

just keep the comunication open with your dr. and ask all the ?'s you can think of, write them down so you wont forget them when you have your appt. you will feel much better if you know everything about your health .

i can't take hrt becouse of family history of breast cancer so i have been put into sergical menopause the hot flashes are the most bothersome of this to me they just get in the way of everything that i want to do now i have to go stand in the freezer at work at least 5 times a day at work, i am a waitress.

i dont get mood swings that i have notice anyway my family said that they notice that i dont get so stresed out all the time anymore .i guess it was that 6 weeks of being pampered by them . i think they found out it's not so easy taking care of them , they even do alot more around the house now.
sory this is so long
i just wanted you to know that you are not alone in this, the ladies on this site are wonderfull......
you dont have to be afraid or embarased to say or ask any thing here, we all are going through this togather.

take care.
Unread 05-31-2001, 04:20 AM
Cervical Dysplasia

Hello, G. Sparks!

I had problems with abnormal PAPs on and off for years which were treated with a variety of procedures and seemed to keep it under control. Then I had one that came back severe and it was felt that my best option was a hysterectomy. I'm 38. I got to keep my ovaries and other than still being tired at times, I can't tell the difference in myself.

Absolutely get a second opinion if that makes you feel more comfortable. I did not have one, but my doctor set up a meeting with a gyn oncologist and the 2 pathologists that looked at my slides, and he brought me back a written report from their meeting. I was very nervous going into it (with some of your very same concerns), but I'm so glad now that it's over and that it was caught before it was cancerous.

My very best wishes for a successful surgery. You will find many wonderful ladies here to answer any questions you have, so ask away! It will help keep your nerves down, too!
Unread 05-31-2001, 09:24 AM
Cervical Dysplasia

Welcome G. Sparks!
I too have been diagnosed with severe dysplasia in my cervix (2nd time). The first time, my DD did the LEEP procedure, which removed a section of my cervix. Even though the margins were clear, the dysplasia redeveloped within 3-4 months. According to my DD, this is an indication that I have a weakened immune system, which is ideal breeding ground for these pre-cancerous cells. I am also having a bladder sling done at the same time, but it was recommended to me that a urologist do this part of the surgery due to possibility of nicking the bladder or ureter. Although it's a pain in the butt to see two different doctors, I feel it is worth it to have specialists doing both parts of the surgeries. I also wanted to mention that my DD ordered an ultrasound on my pelvic area to assess the condition of my ovaries prior to surgery. This way we can make a joint decision ahead of time on the pros and cons of whether they should stay or go (the decision may be out of my hands). Consider reading some of the postings in the CANCER CONCERNS forum or doing a search on dysplasia. I've become addicted to this website.
Take care and please post again soon.
Unread 05-31-2001, 10:13 AM
Cervical Dysplasia

Hi G.Sparks, Welcome!!! It's a wonderful web site for support and info. I too am diagnosed with cervical dysplasia, (moderate dysplasia with high grade lesions). I also had the LEEP procedure done, showing the precancerous cells invading the cervical canal, and had a biopsy before that. My Dr suggested the cone procedure or hysterectomy, I chose the hysterectomy. My surgery date is June 15, (TVH) 2001. I realized that the hysterectomy was the way to go, as the cone procedure can leave scarring. I'm 46, and have 3 great kids, had tubal ligation in 1987, and I know I don't desire to have any more kids. The waiting, at this time, is the hardest. I wish it was all over already and I was post-op. I also plan on keeping my ovaries if they are ok.
Don't ever be afraid to get a second opinion if you are in doubt about your Dr decision for you to have a hysterectomy. You have to do what is best for you.
Shortsht (Fran)

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