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Gynecologist thinks I'm "MENTAL", problems since TAH/BSO Gynecologist thinks I'm "MENTAL", problems since TAH/BSO

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Unread 12-09-2006, 01:21 PM
Gynecologist thinks I'm "MENTAL", problems since TAH/BSO

Had a TAH/BSO on Nov. 16, 2005, have had numerous problems since surgery: with HRT,migraines,great for 6 weeks - felt suicidal next day,have chronic left sided pelvic pain. Have done great physically, lost 30 pounds, dropped 4 pants sizes but have continuous pelvic pain!!

About 40 phone call to Gynecologist's office since surgery because of my problems. The nurse hinted two days ago "THAT ANYONE WITH THAT MANY PROBLEMS, IT MUST BE IN MY HEAD"!! Told her that 30 years ago my doctor told me my SEVERE menstrual cramps were "all in my head", no one could have cramps that bad. . . , but now I have validation that they were not mental. Surgery and pathology report findings: severe endo everywhere, adenomyosis, ovaries so much scar tissue were stuck to uterosacral ligaments, entensive adhesions, etc, etc!

My doctors nurse asked, if "I had talked to my psychiatrist and seen my general doctor" about my chronic pelvic pain?? I AM SO MAD I COULD SCREAM!!!

Any other sisters out there with similar stories? Oh by the way, I called both my other doctors that same day, and they both agreed with me, that my pelvic pain "IS NOT ALL IN MY HEAD!". . . sorry for screaming Hope to hear from other sisters!
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Unread 12-09-2006, 04:43 PM
Gynecologist thinks I'm "MENTAL", problems since TAH/BSO

Oh, yea, my GYN that did my surgery finally 'dismissed' me after my last call of feeling fatigued a year after surgery, mind you I had been there 5 times for cauterizing the same spot that I had bleeding from since week 8....anyway I got really irritated, begin to see my other docs, i have been on every antidepressant, I kept gaining weight and envy your loss....and you will see in my signature line, finally in November this year, I got right on with a wonderful female GYN, I am 10 days post op and I truly believe the vaginal mass and mass adhesions and prolapsed tube, caused my chronic constipation, urinary problems, fatigue, migraines and of course, I likely was depressed because no one believed me....Keep at it, get another GYN, do what you must, take control of your health care, that is what I say for now. Good luck and you are by far not alone in that fight!
Unread 12-09-2006, 10:14 PM
Gynecologist thinks I'm "MENTAL", problems since TAH/BSO

If I were you, I would do two things. First, go to a second gyn for a consult to determine if there is still any gyn-related cause motivating your pain. If this is ruled out, see a pain-management specialist. I have found that if you persist with the same doctor who cannot find the source of the problem you just end up spinning your wheels and you have to know when to stop this process. Even if this doctor is still a good doctor, you have perhaps exhausted their knowledge of the situation (as I did with mine). When I sought a second opinion, ruled out some stuff and then landed with a pain-management specialist I finally saw some light. It's been a tough road and I'm still on it, however, you're caught in a pot-hole with your current doctor. I can relate to it all! Best of luck to you!
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Unread 12-10-2006, 07:02 PM
Gynecologist thinks I'm "MENTAL", problems since TAH/BSO

Hi Joanne,
I am three plus years out from my TAH/BSO and I have been to at least 14 doctors. First, I want to tell you it is NOT in your head. Second, I want to tell you to STOP going to that doctor. I am going to try and keep this light, as I know we are not allowed to "bash" doctors, you can PM me if you want the details. But, I have found that the doctor who did my surgery has no idea what to do when you dont heal "textbook". Then when I continued to make appointments to discuss this constant left sided pain (which kept growing) he acted like I was insulting his talent as a surgeon. I ended up finally, 2 1/2 years after the TAH/BSO with a fertility specialist who did a lap and found FIVE loops in my intestines, binded them together like tight rubber bands, causing spasms & pain. Anyway, the original left sided pain, that my original GYN convinced me was because of endo and I HAD to get everything out, is still there!!!!! So, I know how hard it is, going from doctor to doctor, being poked & prooded and you just can't tell your story one more time, to one more doctor, and be dismissed again, I have been there. All of this has led me to finally start taking anti-depressents. I hate that I am to this point, but I can't deal anymore with the reality of what this surgery has done to me, and all the tests and doctors I have seen since the surgery (should have seen them FIRST, then maybe I wouldn't be in this boat). So, keep your spirits up, know you are not alone and not crazy. After a TAH/BSO you may as well stay away from plain OB/GYN's, they aren't interested in you. You need a specialist, one that deals with adhesions, that is what it sounds like to me anyway.
Unread 12-10-2006, 10:18 PM
Gynecologist thinks I'm "MENTAL", problems since TAH/BSO

Hi jojopassport69!

Endo can be such a tricky and icky disease. It can be hard to pinpoint where the pain is exactly, what is causing the pain, is the pain secondary to something else, and on and on.

I actually see not only my GYN but also a gastroenterologist and a neurologist, along with my GP. My neuro treats me for other pain issues so he helps me somewhat with my pelvic pain issues. My neuro and my GYN both agree that pelvic pain, especially with endo involved, can be aggrevated by many things including stress. That has been a big trigger for me.

My gastro has helped calm down my whole GI system and that has helped a lot. I have IBS and endo on my bowel walls, so it can get complicated if something goes amiss.

In my situation, there are only so many options available to me. Because of other health concerns, including migraines, I can not use some of the options some can try who have endo.

If you are having a lot of pain that might be endo related, I would suggest trying to find an endometriosis specialist if at all possible. If the issue is endo related, they would be the best doctor to start with.

You also need a doctor who is very knowledgeable regarding HRT and endo as the two can be tricky. Any estrogen you take in can feed any endo that remains, causing it to grow and spread. Depending on its location, this can cause pain issues.

Some women also find successful treatment for pelvic pain by visiting with a pain management specialist.

I wish you the best and hope you can find a medical team who can help you treat your pain. Chronic pain can affect so many areas of your life and is never fun.

in there! s

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