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In Recovery Mode still In Recovery Mode still

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Unread 12-13-2006, 12:06 PM
In Recovery Mode still

Hi Ladies,

New here. My name is Aretta and I am 43. On Dec. 4th I had (not quite sure of all the acronyms yet) my uterus and left ovary removed. I had the right ovary removed 8 months ago and had hoped at the time I could avoid another surgery.

I have some questions that are just so perplexing to me and wonder if anyone might have experienced this. 8 months ago I had surgery to remove my right ovary which had a complex cyst. The cyst was causing a lot of pain. Doctor found that the ovary had adhered to my uterus. At the time, he said the uterus and other ovary looked good and he saw no reason to remove them. Within a month of the surgery pain returned and I suffered greatly for 8 months. An ultra sound revealed 3 complex cysts on my left ovary and my uterus enlarged to a 12 week pregancy size with fibroids. How did all this happen in just 8 months! Did the first surgery cause all this to happen? How could everything look good and then just go haywire like that. To top it all off, the doctor informed me he found a ton of endometriosis. There was none of that 8 months prior either. It just doesn't make any sense at all to me and the doctor has not given me any good answers, which makes me wonder if the previous surgery was to blame.

Anyway, at this past surgery, a few hours post=op, one of my incisions broke open and had to be restitched. Then the next day, right after they removed the cathetar I got up, when to the bathroom and the incision he just repaired broke open again and the blood loss was massive. I was rushed to OR where he had to open me up again and found that I had some internal bleeding that was putting pressure on that incision. He really sewed me up that time...took 3 hours.

I am now anemic and angry and in deep mourning and though already on HRT, not sure it's the right amount for me. I've been running a low-grade fever, but recent CBC showed that my red blood cells are slowly moving upward and white bloodcells show no sign of infection.

It's been a week now and it hurts very badly to have a bowel movement and this is with stool softners. I do the smallest thing and have no breath (this is the anemia)

This is so hard and I hate having to pass through this stage of things but I know it's unavoidable. I understand I am a princess now, but haven't quite grasped hold of that. I am finding the emotional healing to be just as hard on me as the physical. I cry so much it hurts my whole face. I do go in tomorrow to see the doctor again, but what do I tell him? Are the emotions very much a part of the recovery? Or am I not quite right. I didn't go through this with the RSO.
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Unread 12-13-2006, 12:17 PM
In Recovery Mode still

Sorry to hear of all the complications you've been having. I had my surgery to remove everything Nov 17, and now I guess I have to thank my lucky stars for my physician! S far as HRT, I started mine the day after surgery and was told it takes anywhere from 2-4 weeks to have it take effect, so some of the emotions could be from that but also some of the frustrations, not to mention pain, are not helping. Not being a doctor, but being very familiar with the fibroid issue, no, I don't think they grew in that fast or were a result of the other surgery. If your first surgery was laprascopic often they cant see everything as clearly as with an abdominal incision...It's quite possible it was there all along but not symptomatic....I am sorry you are going through so much - it will get better soon I hope. If its any consolation, I am now 3wks plus, almost 4 weeks post-op and BMs are still not the easy thing they once were. Hang in there, and mention EVERYTHING no matter how trivial to your doctor...
Unread 12-13-2006, 01:51 PM
In Recovery Mode still

I was anemic.. and yes it makes u really weak..I was so anemic that I had to have a tranfusion. I hope U are taking lots of iron..... good luck I am starting week 4 of recovery.. it does get better
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Unread 12-13-2006, 02:14 PM
In Recovery Mode still

I am so sorry for all of your complications.

I would suggest you make a list of all of your questions and take them with your to your doctor's appointment tomorrow. You might also wish to have someone with you to help insure you ask all of your questions and understand all of the answers. I know for me there were times when there had been so much talking and information, I ended up forgetting some of my questions, and answers to some of the ones I did ask! Plus being drained and anemic didn't help at all. Being anemia drains you so much, so it might take a bit of time you have your strength back.

Did you have the same doctor for both surgeries? Not all doctors know what to look for with regard to endo, so it might have been missed the first time around. Beings you are now diagnosed with endometriosis, you may want to see if you can find an endometriosis specialist. HRT for those of us with endo can be very tricky as the estrogen you take in can feed any endo that was left behind.

You may also want to read some of the Endometriosis Resources so you can learn more about endo so you can know about what might lie ahead.

Emotions are very much part of recovery so you are not alone in this aspect at all. You can talk to your doctor about how you are feeling and see what suggestions s/he might have for you. It can take awhile before you know if your current HRT and the doseage is the right one for you. Some women find seeing an endocrinologist for their hormones needs is best (an endo specialist might be a reproductive endocrinologist).

in there and try to rest. plenty of water, as you can, and ! Many best wishes to you and lots of s!

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