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long time huh guys?? long time huh guys??

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Unread 02-01-2007, 10:55 PM
long time huh guys??

Well hello my sisters!!! Its been a while since I actually posted, I have visited but nothing really, just poking and reading, my recovery hasnt been too much of a blessing and am needing some maybe insight...if anyone can point me in a direction PLEASE....ever hear of getting endometriosis, AFTER hyster? I mean doc says he could have missed some, back in June when he removed endo/ovaries. Hmmm..but somehow it attached itself somewhere and grown into the inscion site..and onto the bladder, I am sooo clueless right now!!! I mean I knew there was something wrong for a while and kept calling doc..Oh this is unsusal pain this long, he would say, well went to PCP (primary) and he got me a refferal to new Gyne...guess what afetr a few test this was my result. Plus..Estrogen deplettion..causing major migrains! Well..... I am a mess at the thought of another surgery after so long and going back to work... and thinking life can once again return. answers anyone??? PLEASE?? THANK YOU!! 's ~~Mileena~~
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Unread 02-02-2007, 04:23 AM
long time huh guys??

Mileena -

Sorry to hear of your diagnosis, but it must be at least good to know you have a diagnosis instead of just 'localized pain of undetermined origin'.

Try to find an Endo Specialist. There's a link on this site for a database of them and I think you will find them also at major University medical Centers.

One thing that puzzles me in your comments is you refer to estrogen depletion and new endo at the same time? Did you lose your ovaries with your surgery? Are you not on HRT? Or is the depletion chemically induced post-endo diagnosis?

Best wishes in your search.

Unread 02-02-2007, 05:40 PM
long time huh guys??

Yes, I have heard of women being diagnosed with endometriosis after their hysterectomy. However, I notice that you have endo and your ovaries removed in June. Once you are diagnosed with endo, you are considered to have endo forever. There is no absoulte cure for endo, not even a hyst and/or BSO. Endo can be very microscopic and take on various appearances. Thus, a doctor who does not specialize in endo can easily miss some of the endo and it can then grow and spread.

It is interesting that you mention problems with estrogen depletion but yet you are having problems with endometriosis. Endo feeds off of estrogen, either from your ovaries, HRT, natural products such as soy or black cohosh, estrogen stored in your body fat, or it has been known to make its own supply of estrogen. One of the ways endo is treated is by trying to cause pseudo menopause by decreasing your estrogen levels.

If you are having problems with endo, it would be a good idea to see if you can visit with an endometriosis specialist. They typically know the best and latest treatment options for those with endo. Since you were treated for endometrial cancer, your situation may be a bit tricker and you will probably need co-ordination between your oncologist and endo specialist. And with your bladder involved, you might need a urologist or GYN/urologist.

We have many Endometriosis Resources you can read through to familarize yourself with endometriosis.

I wish you the best and hope you find a medical team who can offer you treatment for your situation!

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