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Unread 02-06-2007, 06:55 AM
Unhappy - disgusted disgusted

Hello: Had hyster 10/06 and in 1/07 I started having problems with burning at opening of vagina and then pressure like I had to urinate all the time. UA and cult were negative. I have no incontinence and no burning upon urination. This has been going on for weeks no and they did a CT scan of pelvis which came back normal. Finally got in with a urolgist and he thought maybe I had interstitual cystitis or overactive bladder. I can feel spasms all the time and then that is when the pressure is worse. The MD said I don't have all the classic symptoms but he started me on Detrol. Sunday I felt wonderful and thought I was over it but then Mon at work the spasms and pressure started again. MD said my bladder was down a bit but not enough to cause any problems. I have been doing Kegel exercises for about 5 weeks now. Has anyone else had these problems?
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Unread 02-06-2007, 07:50 AM

Yes and I still do have.... if you find the cure first, please post it. I am toying with it being because of my vaginal oestrogen cream -or a part of the natural healing after surgery and infection - or because I am thin and dry down there due to low oestrogen. In other words, I don't know.

I tend to follow the IC guidelines about food and drink to avoid, but I don't know it helps really. It is a bumpy road, that's for sure.
Unread 02-06-2007, 08:07 AM

I understand your frustration, my bladder bothered me for 5-6 months after my surgery with burning and the spasms never left (my cystocele repair failed) So I saw a urologist and tried all the medicines and still had frequency, but with mine the feeling would only go away for about 5 minutes, I had to take Klonopin to sleep and then I was waking up every 2-3 hours. Then I saw a uro/gyn and he says that yes my bladder is spasming, but the spasms that I actually feel are pelvic floor spasms? So we tried a pessary to see if by chance putting my bladder back again would help, finally after trying 5 different kinds - I found one that didn't hurt and would stay in place and low and behold 3 days of wearing that and my frequency was gone! I had surgery 11 weeks ago and so far so good, the frequency is gone, but the pelvic floor spasms are still there. I am going to start physical therapy in April to try to get rid of those. If that hadn't worked he wanted to try an interstim implant for the bladder frequency.
I know you are not totally healed right now and I hope that with time your bladder will calm down and the frequency will subside - I know I went through 6 boxes of AZO in that first 5-6 months post-op for burning. If not don't give up, it is debilitating to say the least to feel like you have to go all the time. Have your tried an estrogen creme to maybe help with the burning? I take it every other day even though I still have an ovary.
I can't believe that I lived with the frequency for years before seeking help and then it took 2 years to get relief. Hugs.
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Unread 02-06-2007, 08:14 AM

I cannot take estrogen as I had breast CA in 2004.
It is so weird because I do not get up at night to go, only keep running during the day and now it has been every other day. I usually have a good day and then a bad day. Today is a good day. I have been walking on the treadmill and I also go to Trim N Tone 3 days a week and sometimes that makes me feel better.
It has been improving since it started the 1st of Jan.
BUT I just can't get rid of it.
Unread 02-06-2007, 05:02 PM

I have been through the same thing. I had an Oop. in 10/05 and started having extreme bladder problems several weeks after. Kept thinking it was normal healing problems. Dr sent me to a uro. all tests came back negative. It persisted the spasms and the feeling of my bladder going to fall out at times. Finally I got to see a Uro/gyn he did a Potassium Cloride test and that finally showed that I had Interstitial Cystitis. It can be very hard to dx. They explained that sometimes after surgery it is like waking a sleeping dog. I IC can just come on like crazy. Have you had actual tests for IC, like the Potassium test or a Hydrodestention cystoscope???? Have you seen a Uro/gyn??? Just some thoughts, hope it's helpful. Good luck and keep us posted.
Unread 02-06-2007, 05:21 PM

For the spams there is a great patch that I wore right after my hysterectomy (I came home with a catheter for two weeks)----I didnt have the first spasm with the patch. I believe the name was Oxytrol? I have been taking Detrol LA for a couple of weeks, was doing great on Sunday something changed. I dropped of a urine specimen today and havent heard anything back. I hope its a UTI. If not I guess the medication is no longer working.

Good luck!
Unread 02-06-2007, 07:44 PM

Normally if you've got IC you have nocturia (night time voiding). That's one of the symptoms that nearly everyone with IC has. I'm glad that's not an issue for you. Hope you get some relief soon.


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