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Want to start a support group and need help Want to start a support group and need help

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  #1  
Unread 03-04-2007, 08:09 PM
Want to start a support group and need help

Hello ladies. I needed some advice and knew that this was exactly where I needed to go. During my second 3 month check up, my gyn/onc and I were discussing (more like complaining about all of the attention breast cancer gets--no offense to anyone please I don't mean this in an ugly way) and how little gyn/onc's get. I told him I would be interested in starting a support group that was more encompassing than we have where I live. Here's the thing, I don't know how to do this and would love any input that you could give me. I haven't posted in a while, but believe me, I am watching out for everyone regularly. It's nice to have a place to call home. By the way, my second 3 month was clean!!! It's just amazing to me. Thanks in advance. Jenn
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  #2  
Unread 03-04-2007, 08:55 PM
Want to start a support group and need help

Jenn,
Congratulations! Doesn't that feel good to get another 3 month parole?! That's how I view the time between appointments.

I am not sure what kind of support group you are contemplating. How would it be more supportive than your current local support groups? What do you envision?

The gyn cancer support groups that I am aware of are run my our local cancer center and a local hospital. In both cases a social worker moderates the group and an oncology nurse also attends. It might be difficult to run a support group without a social worker/counselor to moderate/facilitate. Feelings can get pretty intense as well as the occasional person who needs serious psychological help. Counselors are trained to handle these intense feelings and other issues. Or did you mean another kind of support group?

I learned about the group from the social worker at the hospital when I was getting radiation. Every cancer patient met with the social worker and she gave each of us information about the pelvic cancer support group. You might want to speak a similar person in your local hospital.

Best.
  #3  
Unread 03-04-2007, 10:13 PM
Want to start a support group and need help

Jenn,
From what I know of support groups, the way Janie describes them is what works best. If you are wanting one specifically for gyn cancers, talk with the department that runs the groups at your hospital. Where I go, there is a patient education center for cancer and that is where the support groups are. Let them know of the need for one for gyn cancers.

Jane
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  #4  
Unread 03-05-2007, 06:59 PM
Want to start a support group and need help

Thanks for your response,ladies. I have been hooked up with the social worker at our cancer center. There has not been a pelvic support group for some time now around where I live. I am excited to get this off of the ground. I will be helped and, fortunately, I have psych nursing background as well. Obviously, I need more than just that. I was just curious about any thoughts or goals of the group that we could work toward. You're right about the intensity and I am not silly enough to think that I could manage that. I am just so very excited. There was nothing like this available when I needed it the most. I think it could be cathartic as well. Thanks again!! Jenn
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