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Surgery Has Been Postponed For Me Yet Again! Surgery Has Been Postponed For Me Yet Again!

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  #1  
Unread 03-18-2007, 08:24 PM
Surgery Has Been Postponed For Me Yet Again!

Hi Ladies,
I'm one of your Silent Sisters here, but have found this site, to be so informative. I Joined this site in 2004 I think, just before my first Surgery. I was told I was going to have a Hyster way back then, but it just didn't happen (It's all in past threads way back then)
My Surgeon just took Endo away, Cysts and scar tissue. Was a little dissapointed but in the end thought he did what he thought was best. Then he put me on Zoladex for 6 months, which was bliss. No Aunt Flo during that time.

Unfortunately, The endo all came back (As I thought it would) but this time became a lot worse, so inevitably ended back in my Dr's office.

(Round 2) After another lot of scans and discussions between three Surgeons, They decided it was time for the Hysterectomy for sure this time. But I was also told that my Ovaries are the cause of the Endometriosis. So My surgeon told me he was going to remove them, plus my cervix.
I have gotten really upset about it and have had plenty of time to think about this and I'm not sure I am prepared to go through with it completely. I agree to have my Uterus removed but nothing else. As far as I am aware, everything else is healthy and not life threatening. If it were, then it would be a different story.

The reason I am posting now is because My Surgery has been cancelled by the hospital. I was due to have this done today between 2 - 6pm. The hospital phoned to tell me that my Surgeon has had something come up that cannot be put off and he wants to do my Surgery with no distractions as apparently my surgery is going to be difficult (He will aslo have another surgeon to help). So now I am waiting for another date.

But after waiting all this time, I have discovered that maybe I don't want to go down that road completely after all.

Anyway, after being so quiet here for so long, I would just like to say hello to all you ladies in waiting and hope to be aquainted with you soon.

To all those having Surgery today and tomorrow, I wish you all well and hope you all have an uneventful and speedy recovery.

Warm Hugs to all.
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  #2  
Unread 03-18-2007, 08:52 PM
Surgery Has Been Postponed For Me Yet Again!

Welcome aboard! I have due to circumstances which I really couldn't really control, rescheduled twice. During the time since October when I decided to do the surgery, I have also had times where I am unsure as to going down the road. There are posts which I see that scare me, and then I will see one that makes me realize I made the right choice. I am now, with 10 weeks to go, sure of my decision and just eager to get it done with! I, like you also had a doc that wanted me to do a hysterectomy years ago, but I declined. Bottom line is you'll know when you are ready. You need to be ready not only physically but emotionally as well. Good luck with everything!
  #3  
Unread 03-19-2007, 06:57 AM
Surgery Has Been Postponed For Me Yet Again!

MarieAnn,
I had mine rescheduled three times last November and December and finally decided I could not deal with that and the holiday stress and just waited it out. Until last month. Now I'm scheduled for next month. Again. I can understand the frustration of re-thinking your decision after you get bumped from the schedule and given your previous bad experience I'd be tooling around in my head like you are. Bottom line, it has to be your decision and you have to base that on all the information you can get your hands on and the amount of pain you can tolerate. HUGE hugs to you, it *****, that is for sure!
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  #4  
Unread 03-19-2007, 07:56 AM
Surgery Has Been Postponed For Me Yet Again!

I think that if you're really not certain that you're ready for a hysterectomy - waiting to be sure is a good idea. Once done, it can't be undone. Take your time and do what is best for you

S
  #5  
Unread 03-19-2007, 07:07 PM
Surgery Has Been Postponed For Me Yet Again!

Thank you Ladies. I appreciate all your views.

There was a time when there was no doubt in my mind. Hysterectomy was my only option until I read all the information available to me here, but It all can get a little too confusing.

I know I am the only one who can make that decision to go ahead with the Hysterectomy or not to go ahead, but I'm wondering if I really do need a Total Hysterectomy. After all the thinking I have done, I have wondered if it is all neccesary? It is not so easy here in the UK to get to see your own Surgeon. I'm not too happy about seeing my own family Doctor either. The only time I will get to see my Surgeon now is when I get another date for the Surgery, I will see him that day.
I don't want to waste his time, if I get there only to tell him I am not prepared to have everything removed.
I have so many questions I need to ask but no one to ask.

I don't know if any of you ladies have felt like this, but it's driving me mad.

Being told that my Ovaries are the cause of my Endometriosis was new to me. I always thought it was the Uterus that caused it. Has anyone else ever been told this? I'm not sure when I will get a new date, so I have to make my mind up soon, so if anyone can help with any information, I truly would appreciate it.

Thanks again Ladies for your comments.
s to all.
  #6  
Unread 03-20-2007, 02:26 PM
Surgery Has Been Postponed For Me Yet Again!

marieann...sorry to hear that your surgery has been postponed. look at it as way to think about it longer and do more research,eat healthy and exercise so you'll be in better shape if you do decide to go thru with the hysterectomy. just noticed that singingintherain has had her surgery postponed also due to dr.'s herniated disc! best wishes to you!
  #7  
Unread 03-20-2007, 03:16 PM
Surgery Has Been Postponed For Me Yet Again!

Hi, thanks for your reply. I got so fed up with all the questions I have, I gave in and went to see my family doctor today. He explained everything to me and why I have to have everything removed. My Ovaries are the cause of my Endometriosis. So now I guess I have just got to get used to the idea and prepare myself. I'm really not ready to go through menopause at 39. The thought of having to take HRT is also a worry.
I know that there are a lot more people a lot worse of than myself and I should be greatful that it is just Endo. I know Endometriosis is awful and I know only too well the pain and suffering that it causes but at least it is not life threatening.
I still have no idea when I will have the Surgery now. I just have to wait for the call.
But thank you to all who replied. I'm really greatful for the support.
Warm wishes to all.
Marie
  #8  
Unread 03-20-2007, 03:22 PM
Surgery Has Been Postponed For Me Yet Again!

My OB/GYN called last night, close to 9 p.m., and told me that she herniated a disc in her back and could not do surgery -- and would I like to stay on the schedule with Dr. C (who has had only a year's experience). Um, no, thank you.

It's very frustrating. I pray you'll get rescheduled again soon.
  #9  
Unread 03-20-2007, 03:23 PM
Surgery Has Been Postponed For Me Yet Again!

Hi MarieAnn!
  Quote:
Originally Posted by MarieAnn
Being told that my Ovaries are the cause of my Endometriosis was new to me. I always thought it was the Uterus that caused it.
In simple language, I hope, here is my best description of endo that I hope will help. While the ovaries can affect endo, they are not the cause of endo.

Endometriosis is endometrium (lining of the uterus) type tissue implanting outside of the uterus. How it gets there is unknown, although there are several theories. Endo is not caused by the ovaries, but the ovaries do play a part in "feeding" endo.

The endo implants react to hormones produced by your ovaries, especially estrogen, just as the edometrium does. However, since the endo is not where it should be in the first place, it is unable to actually release and shed from the body like the actual endometrium. Instead the implants bleed into themselves. They can sometimes rupture, spreading to more places. And as the implants or inflammed, the area around the implants also reacts causing pain. The endo implants can also cause organs to adhere to each other as the implants touch each other from various places. This can also cause pain.

Some doctors believe that removing the ovaries, the organs that produce the estrogen from which the endo "feeds," along with the uterus is the best way to attempt to control endo. For some ladies it is benefitial, but for others it is not. And if your ovaries are removed, you are then without the hormones the rest of your body needs for a healthy cardiovascular system, bones, skin, eyes, libido, etc.

Besides the estrogen from your ovaries being an issue for endo, replacement estrogen can feed endo as well. So if you have a BSO, you may not be able to use HRT and would have to deal with surgical menopause along with risks to your heart, bones, etc. There is also some concern that natural plant estrogen (such as in soy or black cohosh) can be an issue. Estrogen can be stored in your body fat as well. And strangely enough, endo has even been known to make its own estrogen!

I was 25 when I had my hyst because of endo. My doctor and I felt that for the benefit of my overall health, it was best for me to retain both my ovaries. So far this had been the best choice for me.

Yes, I still have endo. Besides any microscopic stuff, the implants on my bowels were left untouched. I do still with endo pain. At times the pain builds to the point just before unbearable, and it can stay that way for months, and then it all goes away, and it can stay away for months.

For me the benefits of keeping my ovaries outweighed the risks. But I do realize that I might need a BSO in the future.

Do you see an endometriosis specialist? Have you had a second opinion regarding having your ovaries removed?

Not all doctors agree about what is best for those of us with endo. We are all unique. Endo acts and reacts differently in each of us.

If you are not comfortable with what your doctor is suggesting for you, please seek anothe opinion. It is wise to have at least two medical opinions prior to having a major surgery. A second opinion may confirm what your first doctor is saying, or may offer you additional suggestions. Get three or four opinions if it will help!

You may also want to read through the Endometriosis Resources to learn as much as you can about endo. The more you know, the better able you will be to make the right decision for you!

In the end, we have to decide along with our medical professionals what we think is right for our situation and then hope for the best!

s

P.S. I have been told by women with cancer, who also know about endo, that they are glad they had cancer, which was treated and they are now "cured," rather than having endo as I do since there is no cure and you live with it forever! So do not feel bad at all that you are frustrated! Endo is a very frustrating disease that can cause you to want to scream and pull your hair out!

in there! You are not alone in this battle!
  #10  
Unread 03-20-2007, 04:23 PM
Surgery Has Been Postponed For Me Yet Again!

I had everything removed. It seems that having your cervix and ovaries removed are the issues for you. Maybe someone with endometrosis who kept their ovaries can give you some idea of if that would be a good idea.
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