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Bleeding/pain 2 years post op Bleeding/pain 2 years post op

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  #1  
Unread 04-13-2007, 07:19 PM
Bleeding/pain 2 years post op

I just wanted to see if anyone else had been down this 'road'.

I had a LASH in June 2005 due to endometriosis and adenomyosis. They removed the uterus, scar tissue, and any visable endo, leaving my ovaries and cervix. I was 26 at the time.

I've had endo for the entire 14 years that I've had periods. At one point, before my last lap, my uterus was found glued to my colon, and the endo had grown through.

I'd been feeling pretty good until last October. Then, I started spotting about the same time I should have had a period (since I still have my ovaries, I still have a cycle). Shortly afterward, I started experiencing that deep pelvic/cervical pain during the last week of the month. 6 months later I'm still having the pain, but it has started manifesting itself with my bladder/colon.

I have a colonoscopy scheduled in May to be sure that there is not a colon issue, but after that, I'm supposed to go back to my OB/GYN. He's already said that he didn't know what would be causing it, and I'm afraid if the colonoscopy doesn't find anything (which I hope it doesn't), that they'll just throw up hands and say they don't know.

I'm a teacher, and the pain and stomach problems I have during the last week of the month has started really affecting my way of life. Now, I'm getting really depressed thinking about having gone through all of that for nothing.

I guess I'm just looking for similar stories, support, whatever. This board was so wonderful when I went through my hysterectomy, and I'm glad I have it to come back to.

--
ktan
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  #2  
Unread 04-13-2007, 07:51 PM
Bleeding/pain 2 years post op



Since you have both your cervix and your ovaries, you could be experiecing mini periods. Since the cervix is the bottom portion of the uterus, it can also have edometium which responses to hormones.

And here is a link to some reasons why ladies do bleed post hyst: Bleeding post hyst.

Another thing to consider is that you have endometriosis. It can grow on the cervix causing bleeding. And of course, endo can be painful during the time of your cycle when it is the most inflammed.

I do hope your colonoscopy is clear and you are not having colon problems. If your doctors do throw up their hands because they don't know what to do, consider seeing an endometriosis specialist. You may even want to see one regardless!

in there and do keep us posted!
  #3  
Unread 04-13-2007, 08:03 PM
Bleeding/pain 2 years post op

The gastroenterologist said, and I quote, "If I was dragged out to the desert with no ability to run tests, with a gun to my head, and told to decide what was causing your problem, I would say that the problem is endometriosis and scar tissue".

He followed that up with a 'we do have testing and here's what we'll do' speech.

His recommendation was another laparoscopic after the colonoscopy. I just hate to be opened up all over again.
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  #4  
Unread 04-14-2007, 11:48 AM
Bleeding/pain 2 years post op

I undertand exactly what your doctor is saying! Been there, done that! And when everything was ruled out, my doctors all said "it is endo and adhesions." When I get to the point where the high risks of surgery are lower than my pain issues, I, too, will have to have a lap. I actually need one, my health just does not allow for one.

in there and do keep us posted! If you find that it is endo, we do have a new Endo Support forum for endo issues only.

s
  #5  
Unread 04-14-2007, 08:03 PM
Bleeding/pain 2 years post op

I am 99% positive that it is the endometriosis and adhesions that are causing all of my pain and problems.

I guess I just thought it would have given me more than 2 years of relief to have my uterus out.
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