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  #1  
Unread 06-23-2001, 02:30 PM
back from the castle

Hello everyone..
I just got home from the castle yesterday and it was not an easy journey. Because I went in with a chest cold everything was more complicated. I have been coughing with pain everyday. I had a fever everynight. So they kept me in for the full 5 days.
I had a total radical abdominal hyster, with a baseball size tumor on my cervix. (for those that don't remember) They had to peel away my bladder because of the tumor so I have a decatheter in for the next 3 months. They did find more cancer cells in my lymphnoydes and I find out monday to what degree.
I feel like this was one intense experience. I am having trouble passing gas, I haven't had a bowle movement yet, but I haven't been eating anything very solid yet. I tried to eat a tomato sandwhich which ended up coming back up.
I feel like the stiches on the inside are burning off my body. I am having incrediable crying fits declaring that I am not going to go though this anymore...
This is so intense.
One funny thing is my mom and I have become very creative with my pajama pants and the decatheter bag. I think I may have to market these things.
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  #2  
Unread 06-23-2001, 02:32 PM
back from the castle

3 weeks not 3 months with the decatheter.. sorry.. *hahah*
  #3  
Unread 06-23-2001, 03:22 PM
back from the castle

Hey there,
Oh my God....when I saw 3 months...I nearly fell off my chair. I see you corrected it...he,he,he
Well....sounds like you had a rough go of it. The catheter I am sure is most uncomfortable. I couldn't wait for mine to come out and I only had it for 24 hours. I was in for 5 nights as well when I had my surgery.

Glad that you are home. Just rest and relax, and remember to hold a pillow to your tummy when coughing. It will help some.

Drink lots of water and juices.
Keep us posted when you feel up to sitting won't ya!!
Hugs!!
Maria
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  #4  
Unread 06-23-2001, 03:22 PM
back from the castle

Oh C, a big to you. One good thing though , you have been to the castle and are back , that part is over. You certainly had a time of it though. I feel for you. x x I didnt have a bowel movement for about week, but you should ask your Dr about it maybe you can take a stool softener. I didnt eat much either, for awhile ,just take it slowly, you will get better. The gas I cant help you with, I was lucky and didnt suffer from that, but I am sure one of our great gals will be along soon to help.
did heaps of this , I know that you just feel like you will never be the same, but believe me you will. another big wish I was there for you. I am so sorry about the lymphnodes and will keep you in my prayers. The p.j's sound great, maybe there is a market out there, you may start a fashion trend. C, Please know that you are in our thoughts and prayers always. We are here for you anytime you need to come and cry or need support. Take care and please let us know the results Love always x x
  #5  
Unread 06-23-2001, 06:46 PM
back from the castle

Hi there --

I'm sorry you're feeling rotten. The surgery was the roughest part of my treatment, too. It's good that all of the bad stuff is out of there and now you can heal up. The best thing that worked for my constipation was Milk of Magnesia -- it does bring on a BM in about six hours just like the label says. I also didn't feel like eating after my surgery and my doc told me to just not eat if I didn't feel like it. The thing I did was drink Instant Breakfast for a while and only ate the foods that sounded good to me (stuff like applesauce and ice cream).

Take it easy and rest -- you deserve it!!

Love,

Cyndy
  #6  
Unread 06-23-2001, 08:10 PM
back from the castle

now I have new wonderful item to add to my list. They say its ok as long as I don't run a fever but, I am leaking! I knew they poked too many holes in me! no really, part of my stictchs are draining too much to my liking.
Why does it seems everyone else didn't have it so bad?
  #7  
Unread 06-23-2001, 10:16 PM
back from the castle

Christie

I'm so sorry you're having a tough time of it! And now the leaking stitches, too. Well, maybe your mom can rig something up to take care of that too! I also had "leaky" stitches for a few days. Just make sure there's no fever or redness in the area. It can seem really tough when you're in the middle of it. Recovery can be really hard sometimes.

Please rest. Drink lots of fluids. If you're still having problems with the bowel thing, call your doctor and see what s/he recommends. My very best wishes to you. I'll keep you in my prayers.
  #8  
Unread 06-24-2001, 09:13 AM
back from the castle

Keep an eye out for a high fever, super bright red bleeding, and a foul smell. You will have some bleeding in the beginning but not a whole lot...will go to a spotting soon after surgery.
Please hang in there. To help brighten things up, just be glad that your original post of 3 months with the cath was wrong and it really is only 3 weeks! That is something to be thankful for!!
Now remember to get lots of and PAMPER THE PRINCESS!
  #9  
Unread 06-24-2001, 03:51 PM
back from the castle

Christie,

My heart goes out to you. As hard as it is to believe each day will get better.

I also had a leaking area around the belly button for about a week and a half. I was extra careful about keeping it clean with
good old hydrogen peroxide and it healed quite well. But check with your doctor.

Please know that I'm thinking of you while you recover and while you wait for your results.
  #10  
Unread 06-24-2001, 07:53 PM
back from the castle

{{Christie}}

I'm so sorry you had such a rough go of it. Big {{hugs}} to you! I, too, wish I could give you them in person.

I used the ole Milk of Magnesia also. Worked pretty good for me too. I was also told to just eat whatever sounded good to me but to try to avoid gasey or constipating foods if I could.

I sure hope everything will calm down for you soon and you'll be able to get some like you need. Absolutely pamper the and keep that tummy pillow handy! That thing was the best thing I used throughout my first few weeks at home.

I'll be praying you receive good news on Monday. Please take care of yourself and let us know how things go.



Vicki
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