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Saw OB/GYN Specialist today-Now scared & a bit MAD Saw OB/GYN Specialist today-Now scared & a bit MAD

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  #1  
Unread 06-08-2007, 04:12 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

Hi All,

Well ladies I saw the ob/gyn specialist today and the good part is that there was no argument as to hyst over ablation, if I decide to move forward on this she will do the hyst.

But we were discussing options and I had stated that I would prefer to keep my cervix and ovaries. She asked why and I stated my well researched reasons & personal reasons as to my decisions at which point she basically blurted out that the only type of hyst she can do is vaginal so the cervix has to go!

Anyway, the session moved to an exam and a biopsy and when she was done, she informed me that along w/ my fibroid tumors, I have a condition called Hyperplasia, which means cancer or at the very least pre-cancer (doc's words) so I have no choice it'll all have to go including the ovaries.

Now I had to leave there for a 10 hour drive (lots of fun just after a biopsy!) and this drove me nuts the whole trip. The first thing I did was log on and start researching Hyperplasia and now after spending hours imaging the worst I'm Mad! In all likely hood there is no cancer, it's a possibility, but a small one. I now feel she is using scare tactics to get me to conform to her abilities rather than allowing me an active choice as to how to proceed and find a doctor who can fit the criteria! Now if the labs come back showing atypical results then by all means I want it all gone! But to lead me to believe that Hyperplasia means cancer in order to get me to fall in line is just wrong!

I already have a follow up for a second opinion in a couple of weeks.

My question here, is who's had it, was it cancerous or not and what thoughts on my experience today????
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  #2  
Unread 06-08-2007, 05:52 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

i havent had hyperplasia but this just makes me so mad that a dr would question whether a woman wants to keep her cervix and ovaries and would do a surgery because its the only way they know how to do it. i cant believe a dr cannot have enough pride to tell someone that although she doesnt know how to do it the way you want it, she can recommend someone who can. i totally agree that if theres a medical reason and any chance of disease...take what you have to! but to want to remove healthy organs because she isnt trained to do any differently is just wrong. i left my dr for the same exact reason. besides his rule of "over 45, everything goes", he finally admitted when pushed that he wanted to remove my cervix because he didnt know how to do an lsh. i could go on and on because this is such a pet peeve of mine, but i wont. good luck with your second opinion...get a third if you need to. no one should be bullied into a certain type of procedure just because their dr isnt trained. and to mention cancer makes me even more mad. i personally could not use her for what she said...just like i left my gyn after years because of how hard he tried to convince me to remove my healthy cervix/ovaries. good luck to you...i hope your biopsy comes out clean and your second opinion can give you better options.
  #3  
Unread 06-08-2007, 05:58 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

Definitely, time for a new doctor who will listen to you and explain your options WITHOUT bullying! It might take some time, but is worth the search. I loved my doctor and so did my husband. Trusting the person who is going to be operating on your body is key to your peace of mind!
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  #4  
Unread 06-08-2007, 06:59 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

I agree with Morgan, your Dr is bullying you a bit.

I'm glad you have a second opinion lined up. Since it sounds like it is quite a drive for you, can you line up a 3rd opinion at the same time? Maybe even if you have to stayovernight? I guess I have so many issues with your Dr's actions and comments, if it were me, I would see my 2nd opinion as starting over and not even include it.

I had hyperplasia 15 years ago. I had it froze off (with biopsies months before and again after) and it was 'gone'.

Maybe there are good reasons, medically, to remove your cervix and ovary's. That being said, I think your Dr did nothing to calmly explain your circumstances and options.

One last thought, although you might not even want to think about this, Non-abdominal Hyst options always have the potential of being converted. My point being, how can a Dr say they only know VH? I find it hard to believe any Dr can say they have never had to convert. And I think if that was the case, I wouldn't be real confortable wondering if I would be their first one.

Best wishes on your journey. The one wonderful you do have is this site and all the amazing women on here.

Julie
  #5  
Unread 06-08-2007, 09:54 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

I would definitely seek another opinion if at all possible. I had a doctor 10 years ago who tried to bully me into a hysterectomy before I even had laparoscopic surgery to confirm endometriosis. He was adamant that a hysterectomy should be done right then and there if he found endometriosis and he would not let it go despite the fact that I kept telling him no. I was young and naive (though the 2 don't necessarily go together), and I went into laparoscopic surgery completely not trusting him, which in retrospect I see now was really stupid even though nothing happened. After laparoscopic surgery and a confirmed endometriosis diagnosis, he became even more of a bully about a hysterectomy and I moved on.

I know you NEED to have a hysterectomy, so the story is not exactly the same. I just wanted to echo some of what the others have said, which is to not let yourself be bullied into something you don't want. Don't be afraid to stand your ground and do what is reasonable and right for YOU! And, never go into surgery with a doctor you do not completely trust!

I hope that all goes well for you and that you find an excellent doctor to work with!
  #6  
Unread 06-08-2007, 10:10 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

ReaAnn,

I also had an endometrial biopsy that showed hyperplasia. In fact, it said "focal complex" and with "atypia present." This would suggest an even greater precursor for cancer. The biopsy I had following my hysterectomy showed NO cancer. In fact the hyperplasia was not even mentioned in the post-surgical path report.

I did have everything removed. But it was my choice, as well as my doctor's.

I would definitely go with a second or even third surgeon. You need to have the procedure YOU need, based on objective data - not to be coerced by a surgeon with her own agenda.

Good luck!
  #7  
Unread 06-08-2007, 10:43 AM
Saw OB/GYN Specialist today-Now scared & a bit MAD

ReaAnn,

You should be mad :burning:, and you are doing the right thing! I haven't had what you have, but I am just steamed for you! I fired my doctor and got a new one. Last year she wanted to do a hysterectomy, but didn't have a good reason, and couldn't explain my pain. I felt like she wanted to get a few more "practice" hysterectomys under her belt. We are all behind you!

Princess Gretchen
  #8  
Unread 06-08-2007, 12:13 PM
Saw OB/GYN Specialist today-Now scared & a bit MAD



I am sorry that your appointment did not go well and that you are upset. It is good that you have a second opinion lined up already. Another thing to consider is that if there is indeed cancer cells are a chance there could be cancer cells, you might want to consider seeing a GYN/oncologist and having a GYN/oncologist perform your surgery. They have the skills needed to take care of any cancer issues and thus if there were surprises during your hyst, they would be the most prepared to deal with them. A GYN/oncologist would also have the most knowledge regarding whether or not you should or should not keep your ovaries and/or cervix based on your specific condition.

Many best wishes to you!
  #9  
Unread 06-08-2007, 12:37 PM
Saw OB/GYN Specialist today-Now scared & a bit MAD

I had hyperplasia with atypia and carcinoma (cancer). I had a LAVH on November 10, 06. I treated my cancer with meds MEGACE for a year during which the cancer and hyperplasia went away. I came off meds in June 06 and by Oct 06 my biospy sais hyperplasia (which is like two steps away from cancer) I had a second biospy done and it too said it was only hyperplasia but this time we decided on the hysterectomy. Well the pathology report showed the my endometrium did in fact have cancer. That being said they left my ovaries. Two days ago my best friend had the surgery for the same reason cancer (caused by pcos) and they had agreed to take her ovaries but once inside decidied to leave them. Laproscopic Vaginal Assisted Hysterectomies do require you to take the cervix. I would get another opinion sounds like she isn't very sympathetic to your needs.
  #10  
Unread 06-08-2007, 02:58 PM
Saw OB/GYN Specialist today-Now scared & a bit MAD

RaeAnn

It sounds like your appointment did not go well at all today. I would recommend that you get copies of all of your tests, including this biopsy and get to a gyn/onc. Have a doctor of this specialty look at your records and examine you. This specialist would be in the best position to determine whether there is the hyperplasia and what this all means for you. If your doctor today was a gyn/onc, then find another one who you can work with.

If there is a precancer or cancer of the uterus, the cervix usually goes as the cervix is part of the uterus. If left, this would be a prime place for a recurrence. Should it be cancer, the important thing is to remove as much as you can.

Now, I am looking at my Mayo Clinic Guide to Women's Cancers. I see that there are 4 main types of endometrial hyperplasia. It looks like it depends on which type you have what your risk is of it becoming endometrial cancer. I also see in there that there are treatment options that may be done to prevent it from becoming cancer, again, depending on the type you have.

s and let us know what you decide to do.
Jane
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