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Unread 06-08-2007, 08:42 PM

Hi all
I just heard back from the endo specialist in Oregon and he believes most of my pain originates from my uterus, rather than endo. He suggests a partial hyst, and keep my ovaries to remove eggs later. I hope this is the plan for me because I was worried about not being able to have my own kids and I wanted to harvest my eggs, but thought I had to do it right away. Anyone have experience with this? I am both scared and excited that I could have the surgey as early as next month..since thats my only free time anyways. I just wonder if endo will still be a problem if its not all from my uterus.
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Unread 06-08-2007, 08:54 PM

I wonder if the specialist is thinking the problem is adenomyosis rather than endometriosis? Removing the uterus would take care of the adeno and pain it creates. Adeno occurs when the endometrium grows into the muscular wall of the uterus and can be very painful. You can learn more about adeno (and endo) here: Hyster Sisters' Endo/Adeno Resources.

If you have surgery with an endo specialist he should clean up any endo that he sees during your hyst. An endo specialist is usually skilled at recognizing the various appearances of endo and they know to look in all the nooks and cranies for all the hiding places. So if you are having pain because of endo hopefully having as much as possible removed will help.

Here is a website that can offer you info on surrogacy: www.fertilethoughts.com. Keep in mind that sometimes the ovaries do stop working after a hyst so you will want to be prepared in case this happens. Mine are still kicking at almost seven years post op so hopefully yours will work as well.

Many best wishes to you!

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