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Has anyone had a TAH due to rare mucinous cystadenoma? Has anyone had a TAH due to rare mucinous cystadenoma?

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  #1  
Unread 06-20-2007, 09:53 AM
Has anyone had a TAH due to rare mucinous cystadenoma?

I had a TAH & Appendectomy 5/30 due to a musinous cystadenoma. I understand this is very rare but I am very concerned because I was told because the tumor & appendix ruptured, that it could reoccur. The surgical technique for reoccurance is very drastic & I can't imagine going through it. I also learned that even with the surgery it could come back. I was wondering if anyone else had this & if they know of a surgical oncologist in NY who does this surgery. I'm trying to research doctors & am getting no where. Found 1 in Washington DC but thats too far. I believe the term for this is "Pseudomyxoma peritonei". I am so anxious about this that I
can't imagine how I'm going to function when I return to work in 3 weeks. On a scale of 1-10 my anxiety level is 11!
Thanks to anyone who may have some info.
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  #2  
Unread 06-20-2007, 11:04 AM
Has anyone had a TAH due to rare mucinous cystadenoma?

Have you checked in the Hystersister's forum for cancer support? Someone there might be able to help. I was blessed enough to be referred to a very experienced gyn/oncologist by my PCP. But it is even farther than DC for you. I didn't have the rare kind of maliginancy and am not having to do any extra treatment like chemo at this point. I also was told mine might come back. I think that part is pretty common with all types of cancer. I have to be tested every few months for the CA-125 and ultrasounds, etc until I think it is 5 years out to be declared cured. I have chosen to change my eating and living style to minimize the chance of it recurring.

Good luck!
  #3  
Unread 06-21-2007, 08:59 AM
Has anyone had a TAH due to rare mucinous cystadenoma?

Hi Cecilia,
Thanks for the info. I appreciate it. I'll check it out. I didn't have ovarian cancer though. My site of origin was the appendix & its questionable if its cancer. I'm having my pathology slide read by another MD. I'll be monitored by CT scans every 3 mo & can only hope for the best.
Best of luck to you.
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