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Trying to make the best decision?? Trying to make the best decision??

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  #1  
Unread 06-30-2007, 01:22 AM
Trying to make the best decision??

Hi Sisters, I am new here and I am greatful I have come across this site. Nice to know we are not alone in all of this.

Trying to make the best decision??? I am 35, have had 3 laps,(one at age 20 & 21) last one 6/12/07.

Both of my ovaries are completely attached to the wall of my pelvis, stage III endo, and suspects adeno. Was told Lupron is about 80% effective to reduce endo, however it will not help detach my ovaries, nor will it be to effective with adeno. Does anyone else have attached ovaries?

I have about 1 week a month where I feel okay, the rest of the month I am exhausted and in pain and now getting depressed. I am tired, and think I am going to do a TAH soon.... What to do??any advice??
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  #2  
Unread 06-30-2007, 04:18 AM
Trying to make the best decision??

Hi,

I'm the same age as you and sometimes I feel like my body is giving out on me. I have all the same issues as you but not the attached ovaries. I'm the exact same every month I only have a small window where I feel "normal" whatever that is. Sometimes I think I could cry all day. I'm miserable.

I'm scheduled for a LSH, bladder prolapse and a sling on July 23rd and for me as nervous and as sick I am about it . . .It can't come fast enough.

I've been reading alot of the other sisters posts and I think its the best decision for me. I can't live like this. I feel like I'm too young to feel this way. I hate being exhausted and miserable. I don't know if its right for you but I felt it was the best option. I miss feeling good.

My thoughts and prayers are with you. I'm sorry your going through this. Luckily, the sisters are here to help!!
  #3  
Unread 06-30-2007, 04:41 AM
Trying to make the best decision??

I am so sorry you are having this pain and these reproductive issues.

So you've just had a lap. a couple of weeks ago. Did the dr. "do" anything while he was in there (ie. cut away the endo or take care of adhesions)? Or was it just diagnostic and exploratory? Does your dr. feel confident to take care of these issues? What does he/she say to do?

I would advise you to find an "endometriosis specialist". Maybe someone could help you do that for the area in which you live.

I am not at all the same age as you, and it sounds like you've been dealing with pain and issues for some time. But I can share that I do have attached ovaries and likely adeno and Stage IV Endo (I'm 46). My new dr., who does specialize in Endo and laparscopic surgery and pelvic complications, initially gave me the option of Lupron or surgery. I was surprised that he recommended Lupron for me, but it could be because I am getting close to menopause anyway.

I chose the surgery route and told him I'd be willing to have any 'parts' taken out that need to be. He immediately set me up for an LSH, as I thought I'd like to try and save the cervix. The news for me is that he STILL wanted me to go on Lupron, in addition to the surgery! So I just started it last week. He says if I take it for a month prior to surgery, it should help there to be fewer adhesions and less trauma during the surgery itself. He will decide what to do about the ovaries when he is 'in there', but I am pretty sure that I will lose at least one of them.

I've read that adeno does not 'get better' by itself, but rather gets worse and worse.... unless you could make it to menopause, in which case it often is not a big problem anymore. But, at your age, you have a much longer ways to go to hit natural menopause, I would think!

I hope you can find a dr. that you feel confident in his/her skills, knowledge and expertise in what you are going through. I can also tell you that I've heard that it is much better to get as much endo excised BEFORE getting a hyst., as it becomes much harder to 'get it all' after a hyst. has already been done.

My surgeon is going to excise the endo first, and then probably take out the uterus.... all in the same surgery.

I hope you find some good answers that you can feel good about.... and soon!

Brenda
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  #4  
Unread 06-30-2007, 08:24 AM
Trying to make the best decision??

My ovaries and uterus were adhered to nearly every organ close by, the colon and each other. Reading to surgical report was like reading how to do a jigsaw puzzle. But my gyn/oncologist was quite skilled and I don't think I have had a tougher recovery than if things would have been all neat. I agree that a good surgeon you have confidence and trust in makes all the difference in the world. I am feeling better by the day and have more energy than I have had in a while.

Take care and I hope you continue to move toward better health. Keep us posted.
  #5  
Unread 06-30-2007, 01:29 PM
Trying to make the best decision??

Thanks for all the info. My doctor did laser what he could, but they way my ovaries are attached would require a whole other major surgery, and he is not real confident it would help. He is an endo specalist. He did say he would have to take everything. He really is leaving the choice to me at this point due to my age and having no children. Really, how many more surgeries should I go through?? UGGHHH...I just want to be well

Good Luck to all of you! Thoughts and prayers are with you too!
  #6  
Unread 06-30-2007, 02:22 PM
Trying to make the best decision??

  Quote:
Originally Posted by Smilingdolphin
Thanks for all the info. My doctor did laser what he could, but they way my ovaries are attached would require a whole other major surgery, and he is not real confident it would help. He is an endo specalist. He did say he would have to take everything. He really is leaving the choice to me at this point due to my age and having no children. Really, how many more surgeries should I go through?? UGGHHH...I just want to be well

Good Luck to all of you! Thoughts and prayers are with you too!
Hi! I am wondering what your surgeon meant when he expressed that he is not really confident that major surgery would help??? That is rather discouraging news... especially since he is an endo specialist. I'd like to hear more about why he doesn't think that taking out your uterus, etc. would help. Please keep us posted!

Brenda
  #7  
Unread 06-30-2007, 09:13 PM
Trying to make the best decision??

Hi Brenda,

It is a a surgery that would require detaching the ovaries, however, especially for my right side (because it completely buried under the pelvis wall) it may cause more damamge and the sucess rate is not real high due to possible reattachment and more scar tissue. The recovery for this other surgery is 8 weeks, if it does not work then I am in for a TAH for sure. Too many surgeries...much expense...what do you think?
  #8  
Unread 06-30-2007, 09:26 PM
Trying to make the best decision??

My gut reaction is to try to have one more surgery and get everything that needs to be done, be done all at that time.... even if it means that uterus and ovaries must go. But, ultimately, the decision is yours alone. Only you and your doctor really understand what is happening in your own body (and mind).

I do hope and pray that you can come to a resolution that you feel comfortable and at peace about. All this second-guessing that we women sometimes go through sure is rough on our systems (speaking from my own experience here)!

Thanks for explaining more. I had one ultrasound in the middle of my cycle the beginning of June, and it showed that both of my ovaries were attached to my uterus and the posterior broad ligament. Then I had another ultrasound last Wednesday, and my doctor said that my left ovary was still adhered. I said, "Oh, so my right one is free?", but he said, "No, not exactly!" I have no idea what this all means, but I have to have confidence that my surgeon, who happens to be an expert in this field, will make the right call when he gets a good look at those ovaries during my surgery. I sure hope so, anyway!

Keep smiling, and I'll try to, too!

Brenda
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