LAVH/LSO - at age 29 (kids mentioned) | HysterSisters
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LAVH/LSO - at age 29 (kids mentioned) LAVH/LSO - at age 29 (kids mentioned)

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Unread 07-03-2007, 10:55 AM
LAVH/LSO - at age 29 (kids mentioned)

Well -- I figured it was about time I came over here and told my story. I am finally coherent enough to do so.

It all started 12 years ago when I discovered I was pg with my first child. It was a boy and I miscarried at 20 weeks along. It was a sad time. A growth had formed on the umbilical cord cutting off life support to his growning body. But that is when the trouble was discovered.

It started out with extremely painful periods and bad paps. I had a cone, loop, and freezing done at different times during my life and things seem to go down hill from there. I had many laps done to correct this or that over the years.

One thing I want everyone to know is ... trust you body and what you are feeling. What you know is true. Each time I went into have an u/s for diagnosis ... what the u/s showed was always different from reality. My docs have said this is not possible, that the u/s will show everything. IT DOES NOT! If you think something more is wrong -- follow through on it!!!

This year, I knew in my heart that things weren't right down there. The pain was unbearable almost constantly, it effected the way I lived, my relationship with my husband, my children, everything. I avoided my pap for an additional 6 months and then held my breath.

My doc called me in and said ... it doesn't look good. You have 2 options I think ... meds or surgery. I am sending you to a specialist. Okay ... I am thinking another lap. Boy was I shocked to here hyster! I heard nothing else the doc said after that. Got a sec opinion. Then a third. All agreed a hyster was the best solution .... they disagreed on the timing.

I followed what I felt was best for me. My gut told me the u/s was wrong. According to the u/s .... I had 2 fibriods, a slighly enlarged ovary (was I ovulating?), an enlarged uterus (due to 3 kids?), and a fluid filled fibroid (pre-cancerous?). Nothing serious. My case was considered very mild despite the pain. The specialist even suggested the pain might be due to something else. Endo has been thrown around for years but never confirmed.

I agree to the surgery despite my doubts. I figured if everything is out and its not the problem at least we won't be wondering if it is the problem any more and can focus on other things.

The day of surgery --- My doc came in and told me that the surgery would take at the most an hour. That my case was mild to moderate in level. That I would be home later that evening and not to worry.

I came out of surgery 3.5 laters with my case being severe to life-threatening. I had endo .... everywhere. I had andeo .... everywhere. My cervix was 3 times the norm. My uterus double its size. I had 4 fibroids plus the fluid filled one. I had cysts all over my right ovary as well as endo. It had to be burned off to save. The scary part ... my left ovary. It was deformed to the point of not being recognized. What was shown on the u/s was a large chocolate cyst - rectangle in shape covering it. My doc is quite certain it is the beginning stages of ovarian cancer. We are awaiting the pathology reports right now to confirm it.

Ovarian cancer isn't caught usually until its to late. If I had waited for this surgery .... it would have been to late. I am so glad that I had this done now so I can watch my boys grow.

I also now know how truly blessed I am to have any children. When I lost my first, I was told I would never have another. I shocked my docs with the second. But thats when endo was suspected. That normally causes infertility. I had all the tests done -- I was infertile. I went through and prepared my dh and son for a family built on adoption but again God blessed me. And then a third. Each pg was extremely high risk and I spent 20+ weeks in bed with them all but to know now the impossibility of it all. WOW!! What a miracle!!

Waiting was the hard part. Planning on what to do with my family when I would be there was also hard. The lagistics of it all have been nightmarish. BUT Hystersisters has been my rock. I thought of canceling a million times. It was too much stress on my children (ages 2, 4, and 7) and my hubby. The women here talked me through it and kept me on track. Through all the tears and anxiety. Through what to pack and how to survive afterwards. What I would do without this place -- I have no idea!!

I am truly amazed at what docs can do laproscopically now!! The after surgery pain has been minimal -- especially compared to what I was having before.

However, I have had quite a few complications. One tip -- follow-up on your hospital labs. I never asked how my labs were. What my blood work or urine test said or why my blood pressure was so low. That caused problems when I got home and I spent my first week going back and forth between home and the dr office. Things are on the upswing at 11 days post op but I would have been doing better before hand.

If you have questions -- on anything. Even things that would be TMI elsewhere -- you can ask on hystersister and the are all willing to help! I am so greatful for all their advice, the prayers and hugs, and this site! I can't wait till I am fully recovered. There is so much in life that I always wanted to do but couldn't. I think now I finally can!
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