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DX of  Leiomyosarcoma DX of Leiomyosarcoma

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  #1  
Unread 06-27-2007, 12:05 PM
DX of Leiomyosarcoma

I just returned from my DR appointment at cancer clinic. Good news is don't need radiation or chemo treatment, but because the diagnosis a rarer cancer ( leiomyosarcoma ),I will have to have pelvic exams every 6 months and a chest x-ray annually to monitor possible cancer cells that have 40 % chance of recurring. I pray to God all cancer is gone with my hysterectomy, so life can soon be lived with peace of mind!
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  #2  
Unread 07-04-2007, 08:28 AM
DX of Leiomyosarcoma

Jaminicoke,
You might want to get a second opinion on your surveillance and situation. Sarcomas are different and you need to get info from a doctor with experience in leiomyosarcoma - not just gyn cancers. There is more info on the web including a yahoo chat group that can give you info.
I got a second opinion for my own peace of mind. He did recommend more surveillance than my gyn/onc had suggested. Fortunately still no further treatment. Coming up on my two year aniversary of NED! But if something does show up in the future, I know of some resources who have the experience that will help my chance of beating this cancer!
  #3  
Unread 07-04-2007, 11:55 AM
DX of Leiomyosarcoma

Marve
Thanks for the advice, I'll look into the second opinion as my gyno gave me the impression I should be seeing someone else, she's not an oncologist. I did get checked (pelvic exam)out at the cancer center in Toronto, they informed me of what symptoms to be aware of as well. I am making appointments for a 4 month follow-up pelvic exams & I just had a chest x-ray, too.
P.S. Happy 4th of July!
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