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Good Results With Radio-frequency nerve ablation! Good Results With Radio-frequency nerve ablation!

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Unread 07-12-2007, 08:34 PM
Good Results With Radio-frequency nerve ablation!

Just wanted to report in and let folks know that I am extremely pleased with the results of the radio-frequency nerve ablation I had done for chronic nerve pain 10 weeks ago. I live in Maryland so I went to Johns Hopkins to have the procedure done. I had the ablation done on nerves in my SI joint in my back, which, strangely enough, have been causing pelvic pain because they wrap around to the pelvis. My PM specialist thinks that, due to the positioning that we are in for the LAVH, that I ended up with a damaged SI joint which was producing pelvic nerve pain. It took 2 blasted years to figure all of this out! I know that people have written a lot on this board about nerve pain and I wanted to weigh in as another who would definitely recommend this procedure as long as it is preceeded by the appropriate nerve blocks to isolate the affected area and done by a medical professional well-trained in this technique. I was told that I will have to have the procedure repeated in 6-12 months and then hopefully the nerves will die out for good. Although I am currently pain-free, I have noticed that when the pain does "flare", the flare-ups are less intense and can be controlled with the pain meds I have on hand. Good luck to all of those struggling with nerve pain. I know it's a difficult pain condition to treat.
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Unread 07-13-2007, 04:35 AM
Good Results With Radio-frequency nerve ablation!

That is wonderful news Lisa! I am so happy to hear that the treatment has brought you relief.
Unread 09-19-2007, 11:32 AM
Good Results With Radio-frequency nerve ablation!

Lisa, I am so happy for you. I know what that feeling is like. I had my ablation done last July, and only now I am getting more flares and pain, so I am headed to the PM doc that did it last year to do it again this year. This past year has been wonderfully free. I am glad I took that step.

Big Big Hugs... Susie
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Unread 09-20-2007, 06:33 AM
Good Results With Radio-frequency nerve ablation!

I had an ablation done in 2001 on my cervical area. I have been pain-free since!! If I do certain things I know the area will be sore, but the pain can now be controlled with over the counter meds.
Unread 09-20-2007, 07:47 PM
Good Results With Radio-frequency nerve ablation!

Hi, that is good news. I wonder, how does one find someone that does this. Did you contact Johns Hopkins directly?, or did you get a referral?

Would this be in the practice of a pain management specialist? Thank you so much for sharing your good news...and some hope for those of us sisters trying to reach out for answers. Thanks so much. C. Anne
Unread 09-20-2007, 08:38 PM
Good Results With Radio-frequency nerve ablation!

Hi C. Anne

This procedure is in the practice of a pain-management specialist. Most pain-management centers require referrals from other physicians, however they're not hard to get. I got mine from my endocrinologist as I am diabetic. Your primary care provider will likely give you a referral. I initially heard of the procedure from my primary care physican and my local pain-management doctor, however, I elected to have a consult and any potentially risky treatment at a large teaching hospital because I wanted a place that performed a high volume of these procedures. Also, in the end, I did not really select the form of treatment, they did. I simply raised this as an option I had heard of and they initially ignored me. Lol. Hope this is helpful. Best of luck to you!
Unread 09-22-2007, 10:15 AM
Good Results With Radio-frequency nerve ablation!

This is encouraging news. It's nice to hear there's something out there that is helping.

Thanks for sharing and I hope you continue to do well.

Unread 09-25-2007, 06:35 AM
Good Results With Radio-frequency nerve ablation!

My pain management team consists of doctors of anesthesia. So they are familiar with performing nerve blocks and such. Not all pain management doctors are the same. So you will need to do some homework on the team you pick and what they do. Good Luck.
Unread 09-27-2007, 07:33 AM
Good Results With Radio-frequency nerve ablation!

Can I ask a personal questions here? I was wondering if there is any risk of losing your sensation sexually or your ability to control you bladder/bowel function with these ablations? I've heard of this before but it seemed so scary to me due to the above concerns. Does anyone know where we can research this procedure? It sounds very interesting, I was dx-ed with IC, a bladder disease a year ago but now the PM I am seeing thinks I might have some back/hip issues so I am very curious about this procedure. Thanks for the post!!

Unread 09-28-2007, 09:06 PM
Good Results With Radio-frequency nerve ablation!

Hi Lenee. In responding to your question, I'll give you my best guess, however, I would also pose this question to you doctor. Before you have the ablation, you will have 2 nerve blocks. Whatever sensations are blocked by the nerve blocks will be affected by the ablation of those nerves as well. If the nerve blocks, block your sexual sensation, especially the lidocaine part of the block, then I would think the ablation would as well. For me, The nerve paths of the nerves they were working on were not near the genital area so this was not an issue. They were in my back and higher up in my pelvic area. Your PM specialist will also know where the various nerve pathways are and which areas are affected by each nerve. Hope this is helpful. Lisa.

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