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Unread 07-17-2007, 02:15 PM
confused Liz

Hi, my name is Liz and I was told that this would be the message board for me. I haven't been scheduled yet but my last sonogram didn't look too good. the fibroids have gotten so big that my ovaries are blocked and the technician had a very hard time finding them. She also mentioned my uterus is enlarged. I know eventually I will have this surgery done. My fustration is the not knowing how bad and what has to be done. I am really worried. Is this normal??
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Unread 07-17-2007, 03:22 PM
confused Liz

YES! Very normal. You have to teach yourself how not to take on too much of what is beyond your control. When I found out I had cancer I spoke with another woman with cancer who recommended NOT reading or doing research. She said it would scare me to death. I took her advice and found this website last week, six months post-op. I'm SO glad I wasn't here before surgery because it would've scared me even more! Everyone is so different and we all have such varying experiences and I know I would've focused only on the ones who to me, seemed problematic.

So, yes, it's normal to be scared, yes it's normal to worry, but it's also okay to go into surgery without knowing every little detail about what's going to happen. Bottom line is do what's right for you. Good luck!
Unread 07-19-2007, 01:08 PM
confused Liz

Hi Appreciation,

I had two large fibroids. It can be a very scary time deciding what to do. I felt like I was living a bad dream and I would just wake up and it would all be over.

I might suggest you research all your options. There is a wait and see option. Or possibly alternate procedures such as a UFE (Uterine Fibroid Embolization), a procedure that helps to shrink fibroids. Also, a myomectomy, which is a surgery to remove the fibroids only and it leaves the uterus intact.

Also, go to the HYSTERECTOMY CHECKPOINTS link at the top of the web site. Click, and go to the *Pre-Op* link in the middle and scroll down on it. It goes over the ~different~ types of hysts. Possibly you are a candidate for a less invasive hyst such as a TVH, a LAVH or a LSH, the surgery type I had. I found out pretty quickly in my research that not all hysts are abdominal surgeries.

As Echo8 replied, you are having normal emotions. I did a lot of Why Me?????? for a long time. Turns out my mom had smaller fibroids and my 2 sisters have had hysts since mine for fibroids also. I read online in my pre-op research that approx. 40% of women will experience fibroids. So...don't feel alone.

In the what is *best* for you. We Hyster Sisters are here to help if we can.

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Unread 07-19-2007, 01:29 PM
confused Liz

do lots of research on the different types of hysterectomies and see whether or not you are a candidate for one of the less invasive procedures. ask your dr what type of procedures he/she can perform and get another opinion if you arent comfortable. there are a lot of options available. good luck
Unread 08-01-2007, 11:20 AM
confused Liz

Hi Ladies,
I went to see the doctor finally and the thing inside of me is the size of a 3 month old fetus. because of my symptoms the doctor suggested 2 options. #1- a complete hysterectomy of #2- fibroid imolization where they go in and cut the blood flow to the fibroids and they shrink and my symptoms will get back to normal. If in 5 - 7 years they come back out then we can proceed with the complete hysterectomy. Hopefully I will have the surgery within the next 2 - 3 weeks. I hope everything goes well.
Unread 08-04-2007, 05:48 PM
confused Liz

Yes, perfectly normal... not that everyone experiences the same thing, but certainly very common. Some women have one large or several large fibroids, others have many small ones. They can be anywhere in or on the uterus, or within the muscle walls of the uterus. Other places are possible, but those are most common. It is also common for fallopian tubes to be obstructed, bloating, enlargement of the uterus and ovaries being hard to see is also quite usual. Excessive pain during menstruation, excessive bleeding, bleeding that lasts over a week, frequent urination, and even a feeling of fullness, in abdomen, and/or bowel, are all common symptoms. Though overeducating yourself about your problem can scare you, knowing something about it, can be reassuring, so when you get up for the fifth time during the night to pee, you do not start to worry that you have diabetes, if you know your uterus is pressing into your bladder.

To improve your quality of life, surgery of some sort, or a procedure of some sort, will have to be done, but as to what it will be, is something you will need to decide with your doctor, though this forum can certainly provide you with ideas, help, suggestions for your options and support.

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