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Confused re mass, failed ablation & disappearing hyperplasia? Confused re mass, failed ablation & disappearing hyperplasia?

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  #1  
Unread 07-21-2007, 09:44 AM
Confused re mass, failed ablation & disappearing hyperplasia?

Hello,

I am absolutely exhausted from endless tests and appointments, and really not sure where to go from here.

My follow up appt on Thursday was confusing. Despite a "severely thickened" endometrial lining and "lobulated" uterine wall (and everything else I noted in my prior posts) ... my biopsy came back not showing hyperplasia (just evidence of polyps). In Sept. 2006, it showed simple hyperplasia and enlarged uterus, and my uterus has enlarged even more in the last year since that biopsy/ultrasound was done.

Pap and cervical scraping were both normal (but the OBGYN could not see/reach the growths that are high up in the cervix). The "wonder boy" radiologist that my OBGYN sent me to was not able to locate the mass in the lower uterine segment that was both seen on CT Scan and felt by my OBGYN. Radiologist refused to look at the prior CT Scan & US that was done in June to even get a feel for prior issues found (i.e. if *he* doesn't see it, it doesn't exist ... GRRR ). I guess he is some WOO HOO Big Shot that "wrote the book" on ultrasound.

When the biopsies were done, it was extremely difficult and painful. My dr says this is due to a damaged cervix from the endometrial ablation done in June 2003 (different dr did the ablation). I don't understand how it is that the biopsy last fall showed hyperplasia, and the ultrasound last week showed a thickened lining, but yet the biopsy last week does NOT show hyperplasia. Can hyperplasia just disappear and then still leave a thickened lining?

Dr has back pedaled a bit from his first visit a week ago, where it was not even a question that I would need a hysterectomy. I should be GLAD about that. But I have mixed feelings.... mainly because it seems there is SO MUCH wrong with my uterus, and concerns that cancer could be masked. He wants to do a hysterescopy & laprascopy w/D&C before deciding for sure exactly what to do. He is running 4-6 weeks out.

When the ablation was performed, I was prepared for the idea that it *would* fail within 3-5 years ... and that a hysterectomy would be needed at that time. In the research that I have done recently, much of what I have found does not apply for a prior ablation patient. I have read that cancer can be masked if you have had an ablation. Also have read that an endometrial biopsy is not always accurate because it samples just a small area of the lining.

Honestly, I am just so completely overwhelmed right now. I just don't know what is right or wrong, or how to feel about where we are going from here. Part of me just wants to take out this uterus while we still have health insurance (our biz is not doing well, will probably go under in the next 3-6 months). Another part of me thinks that we should hold on as long as we can. Ugh. I feel lost. Thank you for making it this far, I just realized this is a long post. I feel like crying but am just too worn out
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  #2  
Unread 07-22-2007, 07:19 PM
Confused re mass, failed ablation & disappearing hyperplasia?

Hi BlueSkiesAZ

I can understand why you'd be frustrated and exhausted. I have seen posts from women who've had their hyperplasia resolve, (usually with hormones) but I have no experience with it myself. I had a thickened endometrial lining before my ablation and complications with blood being trapped under the ablated lining after, but not what you are experiencing. Is your GYN an oncology/gyn? If not, perhaps consulting one would be a good idea since you have a concern about cancer.

I hope you get things figured out and feel better. I also things work out with your business. The stress of that can't be helping your situation any. Stress takes its toll on our bodies one way or another.

Sending s to you
Beth
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