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A little disappointed A little disappointed

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Unread 08-29-2007, 05:23 PM
A little disappointed

Went for my six week follow up today and Dr released me to do "whatever you feel like doing", including sex. He said I was 90% healed and still had a couple of stitches on the cuff, but nothing to be worried about. I told him I thought my hormones needed to be adjusted since I have absolutely NO sex drive at all. He said it was a little too early to start adjusting hormone levels. He wants to wait until I'm 3 months out before he adjusts anything.

I was a little disappointed in that since I was so looking forward to actually wanting to have sex with my DH when I got the ok. Has anyone else's doc put them off on adjusting hormones at 6 weeks?
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Unread 08-29-2007, 08:21 PM
A little disappointed


Congrats on your recovery progress. You almost had a great Dr visit.

It's strange to me how Drs differ in their handling of hormones. It seems some are very concerned to get them going right away. One sister here told about having compounding pharmacy HRT waiting for her the day after her hyst! It takes a while to get it all arranged.

My Dr just Rx'd me a dose of Premerine at my 3 week (LSH's make for a shorter wait) and I asked if it could be tweaked or played with. He said, "No." Oh well, it was obvious that he didn't want to spend any time with me on it. I called a couple of weeks later to complain about no sleep and hot flashes, talked to his nurse who was wonderful. She suggested the compounded HRT. That's what she was on. I called the local pharmacy that does it and got it going. My Dr called me and seemed pleased that I did it. Why didn't he suggest it? Anyway, Drs have some strange ideas about hormones.
May I suggest you get a little pushy.

You should not have to suffer (or DH). Stress is not good for you. With no ovaries, what's your Doc waiting for? You know you are going to need them and they sure seem to take a while to start working. I'm still waiting.

Good luck, maybe his nurse will help you! Best wishes.
Unread 08-29-2007, 09:00 PM
A little disappointed

Pattypat, thanks for the advice. I may give it a couple of weeks and call back. I came out of surgery wearing the Vivelle Dot .0375 and that seems to be doing fine as far as I haven't had any hot flashes, so I know he's not against hormone replacement. I know I should be grateful for that, and I am, but for Pete's sake! I'm only 41 and I'm not ready to give up an enjoyable sex life! The last few years have been uncomfortable at best to down right painful right before the surgery. I really am looking forward to enjoying myself again. But the battery's dead and I don't know if any amount of boosting can spark it enough to get this car started right now!
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Unread 08-29-2007, 09:15 PM
A little disappointed

jmchicks, You need some testosterone! Check it out. Lots of info here. Good luck.
Unread 08-29-2007, 11:12 PM
A little disappointed

There are two things you need to remember. One, it does take your body awhile to adjust to HRT so it is often recommended that you do give your body time with each change so that your body can adjust so you can truly see if it is working or not. Also keep in mind that you could have had residual hormones in your system and as they work their way out of your body your hormone levels could be affected.

Another important thing to remember is that you have endometriosis. Any estrogen replacement you use can feed any stray or microscopic endo that was left behind. Thus it is important to to try to use the very lowest dose of estrogen possible. You may also need to check with your doctor about using progesterone along with the estrogen as the progesterone can help balance out the estrogen so it does not feed any of the remaining endo.

If your doctor is not an endometriosis specialist or not a doctor who is very knowledgeable regarding endometriosis and hormones, you may need to find another doctor who is more knowledgeable.

It can be hard finding the right HRT balance which is why we call the hormone forums the "Jungle!" It takes a lot of patients and time! Keeping a journal regarding your symptoms can be very helpful for both you and your doctor(s).

I wish you the very best and hope you and your medical team can help you feel your best soon! s
Unread 09-07-2007, 08:58 PM
Warning - TMI

I finally got up my nerve and called my doctors' office today and spoke with his nurse. She was VERY understanding and said she would talk to the dr first thing Monday morning (he was out today) about getting me some testosterone. She also suggested I double my Vivelle patch since I'm on the lowest possible dose.

Well, DH and I finally got up our nerve to try out the new plumbing tonight. All I can say is WOW!!! For the first time in years, I actually did not have pain with intercourse and the big O was as good or better than ever. In fact, it was so good that I actually cried. Of course, that just blew DH's mind and really threw his "rythm" off, if you know what I mean!

Now, to get some testosterone so this can become a habit again instead of a rare treat for DH. Poor guy deserves sainthood for what we've been through these past couple of years!
Unread 09-07-2007, 09:17 PM
A little disappointed

Hi Cathy!

It's wonderful that you and your DH were able to enjoy your first post-op sex experience. You may find that your libido returns as you get further into your recovery and as you get better established on your hormone therapy. It does take a while for any hormone therapy to reach optimum levels.

While testosterone often does need to be used by those of us who have had an oophorectomy (removal of ovaries) it's not something that we all end up having to use. It really would be a good idea to have your free and total testosterone levels checked before starting testosterone therapy. Too much of any hormone is not a good thing and can bring with it some unpleasant symptoms. This link to the Too Much/Too Little symptom list will give you some idea of what to look for while working to find your balance.

Generally it's best to balance one hormone first before adding in another one as it can be tricky trying to figure out which symptoms are caused by which hormone if things are out of balance. As (((Weiser))) pointed out, you have the added complication of endometriosis so you may want to discuss using some progesterone to help counteract the effects that estrogen can have on any endometriosis that may not have been removed.

I'm sending s!

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