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adenocarcinoma in situ adenocarcinoma in situ

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Unread 09-09-2007, 07:55 PM
adenocarcinoma in situ

Last April, I had my first bad pap ever. I was referred to a gyn oncologist who did a colposcopy and biopsies that showed adenocarcinoma in situ. In may, I had a cone biopsy to remove the bad cells, but I still have positive margins. My pap test in August came back abnormal, too. I went to a new gyn oncologist who did more biopsies and I am awaiting those results. I am very scared and starting to lose hope. I just turned 29 and want a family. I have been with my boyfriend for over 10 years, and we were planning to get married, but now that is up in the air, too. I just don't know what to do and I'm feeling very alone. I am having a very difficult time accepting that I may need a hysterectomy. Has anyone else had the same diagnosis? How did you handle it?
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Unread 09-09-2007, 08:08 PM
adenocarcinoma in situ


I haven't had your diagnosis,but I know what a frustrating and scary time this is for you. I am glad you found us; someone will undoubtedly be along shortly to share their experiences with you.

in there!
Unread 09-09-2007, 09:52 PM
adenocarcinoma in situ

CarolMC - It sounds as though they have caught this in the very early stages. I am glad to hear that you are seeing a gyn/onc. They are truly the experts in this field. I would ask them about having a radical trachelectomy to preserve your fertility. My gyn/onc offered it to me since I was only 35, but I was done having children and opted for the hysterectomy. I know there are other women on this site that have had the procedure done.

Please hang in there. I know it is a very scary time and the waiting and not knowing is always the most difficult part. the women on this site are wonderful and there is usually someone here 24/7. Ask as many questions as you need to and vent as often as you like. Sending you lots of
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Unread 09-10-2007, 07:53 PM
adenocarcinoma in situ

I was diagnosed with AIS. I had 2 children but really wanted a third. Because I had 2 children they highly recommended a hysterectomy. I skipped the cone and had the hyster.

In your case they could possibly do another cone or the trachelectomy to preserve fertility. When you have the hyster they usually do not take the ovaries so surrogacy is an option as well.

Best of luck with your decision. I am sorry that you are faced with this
Unread 09-22-2007, 08:06 PM
adenocarcinoma in situ

Hello there!

First, I am so very sorry you're having to deal with all of this. But, it does sound like you've caught things very early on which is a HUGE plus! Cervical cancer is very treatable when it is caught early. I'm very glad you're seeing a gyn/onc as they are the experts for gyn cancers. He/she should be able to discuss all available options, including preserving fertility if possible.

Remember, we're here 24/7!! You're NOT alone!!!

Unread 10-02-2007, 06:34 PM
I am here for you and sympathize


Just wondering...have you seen the gyn/onc yet? Any news??

I am in a similar situation ....I have had the bad PAP and colposcopy biopsies, but no cone biopsy yet. I am seeing a gyn/onc this Thursday 10/4/07 and am nervous. I have already been told that I will be having a cone biopsy at the minimum. Any feedback on your recovery from that procedure?

I think you are doing the right thing seeking an opinion from a gyn/onc. From what I have learned through research, AIS is tricky and should be managed by the specialists. That being said, there are options for many women who wish to delay hysterectomy.

Good luck to you! You'll be in my thoughts

Unread 10-02-2007, 06:41 PM
adenocarcinoma in situ

Thanks for you response. I have been under the care of a gyn/onc since May, when I had the cone biopsy. I recently saw another gyn/onc out of University of Chicago hospital. The biopsies she took came back better than expected and she feels comfortable continuing with the "wait and see" approach. Although it's not perfect, it's far more ideal than my other options. As for the cone biopsy - I found the recovery to be pretty easy. I was under general anesthesia, so I don't remember the procedure at all. When I woke up, I had some minor cramps. Probably the most uncomfortable part was that they put packing into my vagina to stop the bleeding (which stayed in until the following morning). The packing makes it kind of uncomfortable to urinate. I stayed over night in the hospital because a large portion of my cervix was removed and my doctor did not feel comfortable sending me home. I was a little sore for the next day or so, but it really wasn't too bad. I hope this helps. Best wishes to you - I know how scary it is! Thanks again for your response.
Unread 10-03-2007, 12:44 PM
I'm happy for you!

Hi Carol:

Thaks for your response, to my response!

I am glad you got some good news from your second opinion doctor!! That's great. I wish you luck with your follow ups.

I really appreciate you taking the time to share your experiences regarding the cone biopsy. I hope I won't have to stay overnight, but at least I'll be mentally prepared....just in case. It's going to be my first surgery ever. I guess I'm more nervous about the results....but there's no way to help that other than get the biopsy done!

Seeing the Gyn/Onc (my first time) tomorrow.

Thanks means a lot to have people here who have had similar experiences.

Unread 10-06-2007, 06:43 PM
adenocarcinoma in situ

Just wanted to say hi...I too was diagnosed with AIS- that was two years ago. I did have clear margins on my cone biopsy and have had clean paps and ECCS (every 3 months) since then. I have delayed hysterectomy since then in order to preserve my fertility- I am only 28. My regular gyn wanted to me have surgery two years ago, but the gyn/onc has said that we can wait...but if I start having bad paps the plan will change. If I had had positive margins, I am pretty sure that they would have pushed me to have the surgery...but every woman is different. Anyway, just sending good thoughts your way- I know how difficult it has been for me and I hope that things work out for you!

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