vertigo linked to hormones?????

boy it's been awhile since I've come back in here. I know I need this place to 'fix' my life

I had the hyst 4yrs ago June and it's been nothing but an emotional and physical nightmare since. The reason for the full hyst was endo and in that respect the surgery was a success.....but this other nightmare began.

I started on 200mg prometrium/progesterone right after the hyst in 03. 6mos after the hyst the dr put me on 2mg estrodial/estrogen and took me off the progesterone. I had major depression episode a year or so later and ventured back in here and after some research found adding back the progesterone would help with most of the symptoms. I do get dizzy with the progesterone but nothing that lasted thru the night to the next day.

now to 07 and a new OB/GYN that thinks 2mg estrogen is to high so a gradual dip to 1.5 of gynodiol estrogen for 3-4mos then down to 1mg I think was the plan. she said that i have too much estrogen in me and if we get that down I won't even need the progesterone.....UGH

I've had vertigo off/on my entire life as far as I can tell. We think head trauma as a kid caused it and it's just getting worse as I get older.

I'm now in serious medical debt looking at filing bankruptcy and the Dr's keep pushing more MRI's, sonograms and xrays after xrays to figure out my vertigo.

This past spring it started getting bad again and affecting my life. Spinning, blacked out vision, vomiting during car rides or if I turn around too fast. I threw up for 6hrs straight on a road trip now I'm afraid to go anywhere if I'm not on the Meclizine but I dont' want to live on more drugs everyday.

I'm now seeing a spinal specialist that is trying every avenue to figure out what is triggering the vertigo and after $15k in tests he said today "I wonder if it's hormonal?"....UGH.

so here i come to figure out if it's a simple med change and I might could have my life back???

.

so I guess after all that rambling my question is who else suffers the vertigo and was it hormone related?

Iv'e got a really messed up spine / neck that could really be causing some of these attacks but that is draining my life trying to afford fidning out thru that avenue.

Thanks for the room to vent and for any advice there might be.

Crash

Hi Crash....sorry you are having such a rough time. I will tell you that YES when my estrogen is low I have bouts of dizziness, almost to the point where I think I am going to pass out. Along with this comes panic attacks, and just an overall sick feeling sometimes not to mention all the skin itchiness that I am dealing with on a daily basis now. I might ask for a complete hormone panel blood test to see if this shows what your levels are. I wish you the best and hope for vertigo-free days for you very soon!
Hugs to you.....
:-)

	Quote:
Originally Posted by anna1968 Hi Crash....sorry you are having such a rough time. I will tell you that YES when my estrogen is low I have bouts of dizziness, almost to the point where I think I am going to pass out. Along with this comes panic attacks, and just an overall sick feeling sometimes not to mention all the skin itchiness that I am dealing with on a daily basis now. I might ask for a complete hormone panel blood test to see if this shows what your levels are. I wish you the best and hope for vertigo-free days for you very soon! Hugs to you..... :-)

Thank you

the panic is the worst and gets REALLY bad when I come here to research and find answers I know that's so weird to say but it's really hard for me to come here and read that so many are going thru this hell right along with me. that makes me very sad

The itchies have become an issue again for me these past few months. I don't get them every night but some nights I have jump out of bed with the Heebie Jeebies...... itching everywhere at the same time and at the same time not being able to sit still to save my life. But at this time of night I've taken my HRT and the dizzies have set in more and if I want an extra challenge the vertigo will pop in for a visit.

Benydryl sometimes helps, if i'm completely desperate I will take a pain pill to calm things down.

after reading some of the other posts here I'm thinking of asking the Dr for Klonopin. The spine specialsts assistant wrote that down on a post it for me at the first visit. she said she has a friend that developed vertigo in her 40's and that has helped her.

I've never had a hormone panel or levels checked either I've asked too......next time i will TELL them that's what I want.

Everything was going fine with my estrogen replacement until I tried upping the dose of my vivelle dot. That is when I noticed the dizzyness, especially at night , after sleeping. When I reduced my dose, I would be okay and it would go away. I have always had low blood pressure so I started to take it when I had these dizzy spells and it would be very low-80/45, in that range, which is low even for me. Too much estrogen seeems to lower my bp.

	Quote:
Originally Posted by chloelynn Everything was going fine with my estrogen replacement until I tried upping the dose of my vivelle dot. That is when I noticed the dizzyness, especially at night , after sleeping. When I reduced my dose, I would be okay and it would go away. I have always had low blood pressure so I started to take it when I had these dizzy spells and it would be very low-80/45, in that range, which is low even for me. Too much estrogen seeems to lower my bp.

WOW your BP is really low. I've always had low BP too, 100-90/70-60. I've asked the drs and they don't think thats too low or the fluctuation is anything to look at, but I keep tabs on it.

When I first started the progesterone and had to get up to pee in the middle of the night I would be so dizzy I would fall on the floor and have to crawl to the bathroom. I slowy got used to just bouncing off the many many door frames in this tiny house and that's how I've coped with these issues for 4yrs now.

The vertigo now seems to hit at anytime and I've had a very difficult time figureing out the trigger(s). I'm tired of being told I have the "paris hilton" walk during a vertigo spell, I have to walk with my hands out for balance it sucks, and puking non stop during the worst of the attacks.

I've now lost patience with the drs and jumped on this hormone avenue to research that while they keep ordering up xrays and other tests.

I'm this close to giving up and just trying to live with this and make it part of my life instead of waiting for it to be fixed or go away..........

I too am having severe dizziness after my tah, may 2007. I find mine is worse when I change the dosage of my oral estradiol. I am now weaning off my estradiol and starting on compounded estrogen, progesterone and testoserone. My dizziness had calmed down since I hadnt changed the 2mg dose of my estradiol in over 6 wks. Now its back since I am making another change to the compounds. I hope it settles back down after I have been on them for while. I too had all the mri's and tests. Always felt it was hormonal. Hang in there Crash and dont give up on trying to feel better!

	Quote:
Originally Posted by plahard I too am having severe dizziness after my tah, may 2007. I find mine is worse when I change the dosage of my oral estradiol. I am now weaning off my estradiol and starting on compounded estrogen, progesterone and testoserone. My dizziness had calmed down since I hadnt changed the 2mg dose of my estradiol in over 6 wks. Now its back since I am making another change to the compounds. I hope it settles back down after I have been on them for while. I too had all the mri's and tests. Always felt it was hormonal. Hang in there Crash and dont give up on trying to feel better!

Thank you very much, that is exactly what I end up doing...giving up and learning to just live in misery

I know it stems from 15yrs being mis diagnosed with the endo.....ER dr yelling at me I was sick in the head and wasting their time and dr after dr telling me I needed counseling for my mental disease because my pain wasn't real.

I'm now thinking my estrogen is bouncing up & down causing my vertigo....... i've gone from 2mg estrodial to 1.5 gynodial at about the time this nasty vertigo kicked in.

Now I think I need to reasearch what diet issues I have that is affecting my estrogen. I read in a post here yesterday that alchohol raises estrogen....I did not know that.

	Quote:
Originally Posted by Crash Thank you very much, that is exactly what I end up doing...giving up and learning to just live in misery I know it stems from 15yrs being mis diagnosed with the endo.....ER dr yelling at me I was sick in the head and wasting their time and dr after dr telling me I needed counseling for my mental disease because my pain wasn't real. I'm now thinking my estrogen is bouncing up & down causing my vertigo....... i've gone from 2mg estrodial to 1.5 gynodial at about the time this nasty vertigo kicked in. Now I think I need to reasearch what diet issues I have that is affecting my estrogen. I read in a post here yesterday that alchohol raises estrogen....I did not know that.

Hi, there! Has anybody ever mentioned "Benign Paroxysmal Positional Vertigo" (BPPV) to you? I have had several attacks of this in the last few years since my surgery (but also a few many, many years ago). It is HORRIBLE. I can relate to the vomiting, spinning, etc. So, I believe it's something one is pre-disposed to and probably gets worse with age. And I do believe I have aged more rapidly since my oopherectomy. Having said that - I will tell you that I'm also now a little more prone to garden-variety diziness related to estrogen or progesterone. Any change (up OR down) seems to set me up for mild dizziness.

Here's how I cope: first off, panicking makes the dizziness worse. I try to remind myself that it will pass and I'll be okay. Second, let me say more about BPPV. It's an inner ear issue (which is consistent with your head trauma) and the theory is that there are tiny crystals called "canaliths' that somehow find their way into the wrong area (vesitbule) of our wonderfully complex ears. These crytals then "ping" our balance center (which is in a specific vesitbule) and cause misery such as you described and I know about first-hand. There is a procedure called the "Eppley manuever" that can be done to get those pesky crystals back into the right area. Best done under a doctor's supervision, but I have done it myself and gotten relief. If you google "BPPV" you can get more information.

If you haven't heard of BPPV before, I strongly urge you to research. Sometimes just information can be comforting.

Good luck - let us know how that goes.

	Quote:
Originally Posted by katrina591 Hi, there! Has anybody ever mentioned "Benign Paroxysmal Positional Vertigo" (BPPV) to you? I have had several attacks of this in the last few years since my surgery (but also a few many, many years ago). It is HORRIBLE. I can relate to the vomiting, spinning, etc. So, I believe it's something one is pre-disposed to and probably gets worse with age. And I do believe I have aged more rapidly since my oopherectomy. Having said that - I will tell you that I'm also now a little more prone to garden-variety diziness related to estrogen or progesterone. Any change (up OR down) seems to set me up for mild dizziness. Here's how I cope: first off, panicking makes the dizziness worse. I try to remind myself that it will pass and I'll be okay. Second, let me say more about BPPV. It's an inner ear issue (which is consistent with your head trauma) and the theory is that there are tiny crystals called "canaliths' that somehow find their way into the wrong area (vesitbule) of our wonderfully complex ears. These crytals then "ping" our balance center (which is in a specific vesitbule) and cause misery such as you described and I know about first-hand. There is a procedure called the "Eppley manuever" that can be done to get those pesky crystals back into the right area. Best done under a doctor's supervision, but I have done it myself and gotten relief. If you google "BPPV" you can get more information. If you haven't heard of BPPV before, I strongly urge you to research. Sometimes just information can be comforting. Good luck - let us know how that goes.

Boy that does sound like what i go thru, down to I had it years ago and now it's back and worse.

I have an audioligist as a client, i'm a bookkeper, and I will ask her about this BPPV today and see what her input is, I will also google as you suggested.

Thank you for sharing your fight with this. Learning how to cope with ALL the changes from a hyst and the hormone roullette is such a challenge.

Crash

i also have dizzy spells since surgery. i have a pinched disc in my back but don't know if it's related.

i also have horrible allergy problems with my ears. they get swollen and it causes inner ear infections which makes the dizzy thing worse.

i'm having a hard time with anxiety too but i find that yoga helps with that 110% percent. i've been on every medication in the book for anxiety. as for a panic attack...i just try to ride those out as best i can.

progesterone helped with my anxiety.

anyway. hope we can all get some relief and muddle through!