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Endo and estrogen Endo and estrogen

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Unread 07-29-2007, 06:43 PM
Cool - Endo and estrogen Endo and estrogen

So, if I am completely off estrogen, the endo won't grow? Only my cervix has been left in me because it is attached to the bowels. If any endo has been left (even without estrogen), will it continue to grow?

The reason that I am asking, is that I am scared to go off my estrogen patch. I don't want to hit full menopause cold-turkey, as I want my family to have some fond memories during this time, instead of a total witch!
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Unread 07-29-2007, 08:10 PM
Endo and estrogen

I had a TAH and BSO, completely removing everything, including both ovaries. According to my doctor, that was the only way to completely prevent endo from returning.
Unread 07-29-2007, 08:24 PM
Endo and estrogen

So, if I am completely off estrogen, the endo won't grow?
Ideally, no estrogen would mean that endo could not grow. However, estrogen can be stored in your fat cells, foods we eat can have plant estrogen, endo has been known to create its own estrogen, and our bodies can continue to make estrogen by converting dietary cholesterol to progesterone, then to testosterone and then on to estrogen. So, it is possible for endo to grow even without your ovaries and without using HRT and endo has been found in menopausal women. So it is very important that you are seeing a doctor who is very knowledgeable regarding endo and HRT so you can make the wisest choice for you.

And one must consider that our hormones are benefitial for our overall health so depending on your medical history and your family medical history, not using HRT may have adverse affects on other parts of your body. You must consider your heart, bones, skin, eyes, etc.

I wish there was a perfect solution and a cure for endo, but there is not. Endo acts differently in each of us and it can be hard to manage our symptoms while managing our overall health. We each have to weigh all the pros and cons for us, specifically, and do what is best for us.

Talk to your doctor. Seek second opinions. Find an endometriosis specialist. Talk to an endocrinologist. Have a good GP. And besides seeking advice from medical persons, research and learn all you can so you can make knowledgeable decisions.

I wish you all the best and you each decide what is best for you! s
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Unread 10-07-2007, 08:48 PM
Endo and estrogen

Thanks for the info! By the way, what is HRT?? I am terrible with acronyms!

I am pretty stuck with govt. medicine (military), but I have an appt., with a surgeon next week and whose opinion I trust. But, I am going to push for a laproscopy. Right now, my stomach is extended and painful from time to time, and I am pretty worried. All of the x-ray, CT scan, colonscopy, etc. is not showing anything, and I know that endo doesn't show up on these type of tests.

I live near Dayton, OH, if you or anyone else reading this has any knowledge of a good place to go for endo specialists, I am very open to any opinions right now.

Thank you all for being so wonderful! It is so good to find someone to talk to, and who understands!
Unread 10-08-2007, 06:44 AM
Endo and estrogen

Claire - it sounds like we are in the exact same situation. I have an appointment with an endo specialist in Michigan in a couple weeks as I am back in the same excruciating pain, despite my ovaries being taken AND never having taken any estrogen. My cervix was left as it was attached to the bowel and that is where most of my pain comes from; although in the past 4 months, I'm back to the daily, constant pain.
Unread 10-08-2007, 09:30 AM
Endo and estrogen

Hi again!

HRT stands for hormone replacement therapy. You can read through our common abbreviations here: Abbreviations.

There are endo specialist in Ohio that you can find using the link I gave above (be sure to also click the link at the bottom of that page which will take you to a list of doctors by state). You would want to interview any of them just as you would any new doctor. You can also call area hospitals and ask if there are any endo specialists affiliated with them. Ask your GYN or GP if they can recommend someone. There may be a GYN near you who treats a lot of endo patients who you might be able to see, even if you can't find an endo specialist. Or you may need to travel to see one. Often if traveling is necessary, they will allow you to send your medical records for them to review before you make the trip.

I wish you all the best! in there!
Unread 10-08-2007, 09:32 AM
Endo and estrogen

Yes, it sounds as we are in the same situation. The only exception is that I am on the estrogen patch. I went with that because I was afraid of hitting instant menopause after my hyst. 2 years ago.

Have you found any more info about your situation? I am not in too much pain yet, (not like before my hyst.) but, it is starting up again. Let me know how your appt. goes, and I'll let you know about mine.

Do you know how we leave messages for each other on this website??
Unread 10-11-2007, 08:06 AM
Taken off HRT and Feel GREAT

A little background - I have suffered with endo since late teens early 20. I am now 41 - back in 98 i had a hysterectomy (uterus, cervix right ovary and tube) slowly the endo creeped back (of course because I still produced hormones) well 5/07 i had my last ovary and tube removed (with other surgery) - 1 1/2 weeks after surgery HOLY MENAPAUSE - my doc put me on HRT and that helped but he gave me too much and I knew I had rectal endo and he stated after the surgery he did not see it (great) well the HRT gave me horrid rectal pain - we lowered the does - still there but bearable - finally after having enough with this doc (and the urgyno) I found another doctor - he stated that while taking HRT i will continue to have endo pain - he switched me to effexor - well I have been on that 1 month and no more mood swings, hot flashes or memory loss - I feel wonderful - of course I upped all vitamins esp calcium - but I just wanted to share with anyone suffering from Endo - as long as your producing estrogen your endo will continue to be an issue - a peiod of being off hormones does indeed help (as I am totally pain free) - menapause is a scary thing especially being young -
I just wanted to share my experience as this may help others -
PS - when he upped my HRT to 6.5 the endo pain was unbearable worse than I ever had in my life - then when we lowered it was tolerable - lowered again more tolerable but there - off HRT GONE
Unread 10-11-2007, 10:12 AM
Endo and estrogen


If you decided to try being off the estrogen patch, discuss the option of an anti-depressant, such as effexor with your doctor, as LTarM suggests.


I am glad to hear you have found a good fix for you : effexor for mood and hot flashes and being able to be off estrogen which should hopefully cause your endo to die off.

I have been really fortunate with my fix, too. I had a final round of Synarel for 6 months, was endo symptom free even after an add back of estrogen (Ogen) and I had my BSO at the end of the 6months of Synarel. I maintained my estrogen dose after the BSO. Occassionally, I need some vaginal estrogen. During that time, I was also on an anti-depressant, Zoloft. Not sure if that one is known to help with hot flashes, but it certainly helped me get some perspective and get myself back on the road to a cure. I was seriously depressed about the endo.

Really all things considered I'm a walking success story. No endo, off the anti-depressant and physcial fitness wise I am in the best shape of my life.

There is hope, girls!!! Keep the faith!

Unread 10-11-2007, 02:21 PM
Endo and estrogen

Thanks for giving me some options in case that I have to go off of estrogen. I am going to see the surgeon on Mon., and hopefully, we'll get a laproscopy scheduled. I am still in pain...so I am ready to get any endo or scar tissue removed.

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