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Leiomyosarcoma at age 33 Leiomyosarcoma at age 33

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Unread 10-24-2007, 09:31 PM
Leiomyosarcoma at age 33

Here is my story . I had two fibroids (1cm and 2cm) and had been spotting for about one year before and after my period which was a symptom commonly associated with having fibroids. I also had a pain half way along my biki line for about one year which I could not explain.

Early September 2007 my period started and on day 2 I woke up covered in blood. I waited that day and everything seemed normal until the next evening when I again lost a lot of blood and was incredibly scared. I woke up the next morning thinking to go to work and just sat in the shower and said to my husband I have to go to Singapore now something is really wrong.... I was pale as a ghost and got on the next plane.

When I got to Singapore I was given medication to temporarily stop the bleeding as I was now highly anemic and the next day I went in for emergency surgery to remove the fibroids. Never in my wildest dreams did I expect this from two small fibroids.

Two weeks later I received a phone call from my gynecologist to say that I had a Leiomysarcoma, a malignant tumor and would need a hysterectomy. All I could think was, fibroids are always benign.... as this is what I had read over and over again.

He referred me to a gyno-oncologist who did an ultrasound, blood test and CT scan which all came back clear. Then the surgery and pathology reports confirmed that the cancer had not spread outside the uterus. I was graded at 1a and told no further treatment would be needed. What a relief it was to hear those words . I am going back in January for a PET scan and will then go back every 3 months for a CT scan in the first year and every 6 months in the second year.
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