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Unread 11-07-2007, 03:41 PM

Just had my TAH/BSO on the 22nd of Oct. I am on Estrace and all seems to be doing well with the HRT except at one week post-op I noticed I was lactating at night!!

I told my doc about it at my 2 week post-op and he said he had never heard of that before. He said it could be shock from surgery. He didn't seem to worried about it, alothough he said if I was still lactating at my 6 week post-op he would be taking some blood to check hormone levels , thyroid, etc.

Anyone have this before?????????/ My DH and I kinda laugh about it, this is something that is totally me. I just never thought one could lacate with no uterus and no ovaries.

Never the less it's not to bad and only happens at night. So weird.
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Unread 11-07-2007, 03:46 PM

You can do a site search and find other threads discussing lactating after a hyst! It may mean that your HRT is a bit high or that you still have estrogen in your system so your own "left over" estrogen combined with the HRT is causing the lacation.

While I did not experience the lactating issue, my mom had warned me about it as I kept my ovaries as she did. However, hers went into shock so she was given HRT. When she started lactating, her doctor knew her own ovaries had kicked in and he pulled her off of the HRT.

I hope your body settles down soon and the lactating goes away on its own! Hopefully you won't need all the blood work and tests in 6 weeks!

Unread 11-07-2007, 05:04 PM

Hey ror454!!!

Glad to see you on this site! I am so glad you are healing well. I am interested to see if anyone else has expericenced this as well. Have a good day, Cuz!!!
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Unread 11-07-2007, 09:52 PM

Your Estrogen has nothing to do with your ability to lactate. Milk produciton is controlled by a hormone made by your pitutary gland called prolactine. for women that are making milk and are not breastfeeding, it is likley due to a small begnin tumor located in the pitutary gland. Your MD can do a simple blood test to see if your prolactine levels are high, if so, they can give a drug that will shrink the size of the begin tumor. Although I stopped breastfeeding in January of 07, I have been making milk every since and my prolactine levels are normal (tested 3 times) so I am now going to a breast specialist next week. I was in premature menopause immediantly after the birth of my daughter so I have been without Estrogen for a while. Freaky for me because this is how my mom started out, making milk, then it changed to blood then it was breast ca......not to say that is the case with you, I am saying that for me, I really need to stay on top of the milk factory I have turned into.
Unread 11-08-2007, 10:30 AM

Originally Posted by tiff5220
Your Estrogen has nothing to do with your ability to lactate. Milk produciton is controlled by a hormone made by your pitutary gland called prolactine. for women that are making milk and are not breastfeeding, it is likley due to a small begnin tumor located in the pitutary gland. Your MD can do a simple blood test to see if your prolactine levels are high, if so, they can give a drug that will shrink the size of the begin tumor.
Actually, there are many causes for galactorrhea, or inappropriate lactation, estrogen imbalance and pituitary disorders being but two of them:
Causes of Galactorrhea

Pathologic Causes:

Primary hypothyroidism
Hypothalamic disorders
Pituitary stalk transection
Pituitary disorders
Prolactin secreting adenoma, acromegaly,
Cushing’s disease, Nelson syndrome, prolactinoma
Ectopic production of prolactin
Bronchogenic carcinoma, hypernephroma
Renal adenocarcinoma, ovarian cystic teratoma
Chest Wall Lesions
Surgical scars, herpes zoster
Neurological lesions
Polycystic ovarian disease

Physiologic Causes:

Excessive breast manipulation
Cyclic menstrual hormonal variations

Pharmacologic Causes:

CNS-dopamine depleting agents
Monoamine oxidase inhibitors
Dopamine receptor blocking agents
Phenothiazines (Thorazine, Mellaril,
Compazine, Trilafon, Stelazine)
Thioxanthenes (Taractan)
Inhibition of dopamine release
Chronic opiate use (methadone, morphine, heroin)
Blockade of histamine (H2) receptor binding
Cimetidine, famotidine
Estrogen, oral contraceptives, thyrotropin-releasing hormone
Serotonergic system stimulators
Amphetamines, SSRI antidepressants
Mechanism unknown
Calcium channel blockers (verapamil)
Tricyclic antidepressants (imipramine, amitriptyline, desipramine)

(((ror454))) I'm sorry you're dealing with this right now and that your DR hasn't been much help yet. I highly recommend reading that article for a pretty detailed discussion of all the possible reasons someone might be lactating.

In the context of being post hysterectomy, though, a couple of the most common ones are low estrogen levels (estrogen inhibits lactation) and hypothyroidism. The removal of the ovaries causes kind of a ripple effect throughout the entire endocrine system, and many women end up with thyroid issues, so I'd suggest asking your DR if he might want to check your thyroid function -- not just a basic TSH test, but the full workup. Here is a link to a great discussion about what all the different thyroid tests can tell you:

It's probably only at night because your adrenal hormone levels run on a 24-hour cycle, and checking those might not be a bad idea, either -- a small percentage of women have adrenal issues after this surgery as well.

And, of course, prolactin levels would be great to check as you deal with this issue so you know you're on the right track.

Come to think of it, perhaps your DR could refer you to an endocrinologist to address this, if it doesn't go away on its own soon?

I hope this helps.

Unread 11-08-2007, 10:56 AM

Thanks ladies for all the info. Sounds like what my doc told me is pretty much what all you have heard or experienced.

So I guess blood tests here I come at my 6 week post-op. I know my body has had a major shock, so am fine with waiting things out a bit until my 6 week check up. As of yesterday I feel like I might be getting some hot flashes......very mild but know I will need some changes by my 6 week check up. All part of the process, I know!

Thanks again ladies.
Unread 11-08-2007, 12:10 PM

I experienced lactating at 2-4 weeks and now it is gone. I think once my natural estrogen was gone it stopped. In the past I did have a prolactinoma about 3 years ago. I had an MRI after my hyst and there was none there this time so they said it was my hormones out of whack. Good luck.
Unread 11-08-2007, 01:42 PM

I have been lactating since my surgery almost 10 weeks ago. I had very tender breasts as well, but that seems to have settled down. I am not producing a lot of milk, but enough to notice and my boobs are HUGE!!! All of a suden they just seem to be really big. I have the nurse again tomorow for my HG, so am going to ask about it then.

Unread 11-08-2007, 11:24 PM

i got puffy boobs, and sore nipples, and felt pregnantish - lol - for a week at 4 weeks, and then it subsided when i ovulated..........guess the hormones are all over the place???? hmmm......its all sooo complicated......gee.
Unread 11-09-2007, 12:45 PM


OMG, I was lactating last weekend! My breasts were kind of mushy since the surgery and I squeezed one and a milky liquid came out.

It didn't hurt but was freaky so I called my doctor who said to wear a comfortable supportive bra and not squeeze or play with them.

I've been wearing a sports bra since and they have not leaked again. I did nurse my children for a few months when I had them but never experienced anything like this other than then.

I also found this to be helpful. and and

They don't talk about after hysterectomy exactly but have some good info.

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