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What do cysts and adhesions feel like? What do cysts and adhesions feel like?

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  #1  
Unread 11-26-2007, 06:38 AM
What do cysts and adhesions feel like?

I'm 4 months post-op from a TLH/BSO. After a near-perfect, fast recovery, I've been having some pain recently. It started about 2.5 weeks ago, so I went to the Dr last week and he found bacterial vaginosis. This accounted for the thin, white/light tan discharge, but not really the pain. I've finished my antibiotic, and the discharge problem seems resolved, but not the pain.

The pain can be described like this:
* My left ovary hurts just like it did pre-op -- except no ovaries exist anymore! It's a dull, nearly constant pain. If I'm up and about, I can forget about the pain.
* A dull ache under my diaphragm, more on the right side. Sometimes it's more burning than achy, sometimes it's nearer to my belly button. This one comes and goes. (Gallbladder-ish area, but with no other gallbladder symptoms.)
* Imagine a cartoon of the female shape. Now draw a dotted line around where everything was removed. That's where other pain is. Seems like a low, dull ache; sometimes there's a shooting pain around this line.
* Sometimes there's pressure where it feels like everything is going to fall out. It definitely feels vaginal.

DR did a pelvic exam, and said that since there's nothing left, it must be GI, and I should find a GI specialist. (He was also sure there was no infection on visual inspection, though the test results indicated otherwise.) He checked my pelvic floor, and said that it was good, so no prolapse is imminent. OK, I'm content with the the pelvic-floor-is-fine pronouncement, but I'm really not sure the pain is GI related. There are no other GI symptoms at all.

I've been reading the archives about pain months post-op. Cysts, adhesions, and infections top the list. Many posts reference pain, but don't really describe it. Can some of you sisters describe the pains you had with cysts, adhesions, GI or any other common problems in the 4-6 month post-op range? I'm trying to figure out which doctor to see next. Should I go back to him? Find a GI guy? Go to my primary care physician and ask him? Find another gyn? The answers y'all provide will help me choose which dr to go to next! Thanks so much in advance!
--------------------
TLH/BSO 7/17/07 for painful & heavy periods, endo & adeno
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  #2  
Unread 11-26-2007, 11:54 PM
What do cysts and adhesions feel like?

I'm having the same issues. I'm looking for answers too. I haven't seen my doctor about this. I hope we find some answers soon.
  #3  
Unread 11-27-2007, 04:48 AM
What do cysts and adhesions feel like?

Good morning skydog...we share the same hyster date. I too had an excellent recovery (as far as major surgery goes!) Was in to see my gyn about two weeks ago and it just so happened that I had been having some pain that started just proir to this visit so I was able to tell him about it. I had also had a mini xmas shopping vacation with the girls for two full days of running two days before this visit. It seems that we can still over do things and he told me to expect things to take 9 months or so to really feel better again. He also mentioned to me that when the incision turns from red to white on the outside that also means that the insides are healed. It makes sense to me. As far as getting answers I guess you have to ask yourself which doctor you trust the most. It sounds to me as though your gyn might be trying to fluff you off...(his job is done!) Maybe check with your family doc as he knows more about your history before being referred to a GI specialist for non GI type symptoms. Sometimes we can also read too much and this can freak us out even worse. Hope I was of some assistance. Take care and feel better.
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  #4  
Unread 11-27-2007, 09:38 AM
What do cysts and adhesions feel like?

Hi Skydog,

It must be very frustrating for you trying to figure out the source of your pain.
  Quote:
My left ovary hurts just like it did pre-op -- except no ovaries exist anymore!
I had a similar issue & finally resorted to a second-look surgery the year after my hyst. They removed more endo, my endo-involved appendix, and adhesions. The additional surgery helped the appendicitis type pain, and cuff pain, but I still have stabbing knife pains where my left ovary used to be. I don't know if it's adhesions on a nerve, or a nerve signal that just won't shut off or what it is.
We're all different, so no telling what yours is from but I just wanted to send you a & I hope yours is only temporary and that you find a doctor who will work with you to get things figured out so you can feel better.

Beth
  #5  
Unread 11-27-2007, 10:56 AM
What do cysts and adhesions feel like?

  Quote:
Originally Posted by cherryblossom67
It seems that we can still over do things and he told me to expect things to take 9 months or so to really feel better again. He also mentioned to me that when the incision turns from red to white on the outside that also means that the insides are healed.
When the incision changes from red to white -- that's a terrific visual way to "know" when things are back to "normal." It's also a way for our dh's to easily gauge whether our insides "should" be healed -- if the outside isn't done, the inside sure isn't!!!

I'm so glad you shared your story. You've helped me figure out that I probably should go to my primary care physician and let him help me determine where to go next. I'm really trying NOT to freak out by researching pain! I'm hoping to figure out if I should go back to the GYN and be more insistent that he check, or if others have found GI issues this far out so a trip to the GI isn't all that unusual (the immediate post-op problems seem to be the biggest problem, though, and I'm well past that stage).

Thanks, CherryBlossom!
  #6  
Unread 11-27-2007, 12:32 PM
What do cysts and adhesions feel like?

  Quote:
Originally Posted by sistabeth
It must be very frustrating for you trying to figure out the source of your pain. I had a similar issue & finally resorted to a second-look surgery the year after my hyst. They removed more endo, my endo-involved appendix, and adhesions. The additional surgery helped the appendicitis type pain, and cuff pain, but I still have stabbing knife pains where my left ovary used to be. I don't know if it's adhesions on a nerve, or a nerve signal that just won't shut off or what it is.
Beth, thank you so much for your description! More endo has certainly been in the back of my mind, since the pain is so similar to what I had before! I'm sorry to hear you still have pain.

Since my pain is fairly mild, and if I'm busy, I can usually forget about it, I'm not in any huge rush to get it "fixed." (Hmmm...reminds me of what I said *years* ago before the endo/adeno got so bad and I finally was about ready to do a self-hysterectomy if I had one more period!). I'm hoping this is just healing pain that will eventually diminish. But just in case, I want to know if others felt this way! It sounds like I definitely need to pursue this with a doctor -- and one that seems interested in finding the cause of the pain. It could definitely be gynecological in origin.

Izzybuzzy -- I hope these answers are helping you, too!
  #7  
Unread 11-27-2007, 01:26 PM
What do cysts and adhesions feel like?

Oh God, I understand. I'm 7 weeks post op, and last week (on 6 weeks post op) my doctor said... 6 weeks, you're healed, any further pain is fibromyalgia related. I feel shoved aside again. I've been so discouraged, I haven't even posted here in a couple weeks. The pain is definately better than pre-op, but it is Still There!!! I had LSH, uterus removed, that's it... laparoscopicly. So I know I have ovaries, etc... but the diagnosis was adeno (uterus only) - they never found endo in any of my 3 surgeries for this... and I am still in pain! I am hoping it is nerve pain that Will Heal with more time. Don't know how much more of this I can take, it's already taken 3 years of my life away from me and my loved ones! ...maybe I shoulda started a new post... Oh well, at least I'm talking to my sisters again.
Love and Hugs to you all - we've traveled a strange road for sure.
~Sue
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