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have my date but now I'm scared! IUD maybe? have my date but now I'm scared! IUD maybe?

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  #1  
Unread 11-26-2007, 10:03 AM
have my date but now I'm scared! IUD maybe?

My surgery is scheduled for the 17th, and now I'm getting really stressed. I worry that since my only symptom is pain, what if it's not just the uterus? What if I still have lots of pain, just no period pain?

My sister has the Mirena and likes it. But I've noticed changes in her like worsening depression and lack of interest in things. She said it helped her cramps a bit and she only spots. But she said it took 6 months to stop the light flow she had daily. I'm wondering about it, but can't find any info on it helping that much. I've seen a few sites but they have only brief mentionings. And of course I've seen TONS of sites saying how bad the IUD is and not to take it. I have very weird symptoms when I add any hormones to my body including things like vitex and even soy. I'm worried about trying this.

I know it's something that I have to think about myself. But I would like any info possible. I can't see how something that irritates the uterus can help with pain. I worry about all the side effects. I think that if it doesn't work then I still "need" a hysterectomy. I think that if it makes things worse for the next three months then I'll waste my few remaining sick days and then can't get off work for a hysterectomy. But then the flip side is, what if it does work?

Another question is anyone who tried the Mirena how was your PMS? My dr stressed that witht he hysterectomy my PMS will still be there. I know this. But it sits in my head thinking it's almost as hard to deal with that as is the pain.

Now that I'm scheduled my stressing over this has gone up. My biggest fear (aside from horrible side effects) is that it won't do anything at all for my pain.
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  #2  
Unread 11-26-2007, 10:30 AM
have my date but now I'm scared! IUD maybe?

I had two mirena coils and they working very well reducing severe pain and bleeding. However the desirable effects seemed not to work the last time as I experienced pain and nausea again. I had my hyst in February and it was the best decision for me. If it is not too late I suggest that you get a second opinion. A hysterectomy is major surgery and irreversible. For me the mirena coil gave me some respite from the severe pain from the adeno that I was experiencing. If your only symptom is pain has somebody ever looked into the causes of your pain either by scans or by laparoscope?
  #3  
Unread 11-26-2007, 10:39 AM
have my date but now I'm scared! IUD maybe?

Hello Garden1313. I have just read the rest of your post. The coil did help my severe pain. With the latest coil some of it returned. I still experienced PMS with the coil ie tender breasts and bloating, moodiness. I still get PMS after my hyst because I kept my ovaries and am not menopausal. At forty five I didn't think that I would become pregnant aqgain. I am not menopausal and 'put up' with the PMS.
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  #4  
Unread 11-26-2007, 10:40 AM
have my date but now I'm scared! IUD maybe?

I've talked to my GP, pain dr, rhuematologist and two gyns about it. The main second opinion of one gyn suggested the Mirena, he said if it works fine, if not then you at least can say you tried it. But as I said my body doesn't like hormones. It's like it's allergic to them.

I have looked into other things that can be causing the pain, like IBS or other bowel poblems, cysts, urinary, muscle, back probelms etc... The problem is when I have PMs and my period my IBS and my fibromyalgia all get worse so I cna't tell which comes first, the hormones or the fibro/IBS. I know a symptom of fibro is dysmenorrhea. That makes me worry, thinking maybe it's just my fibro causing all the problems, if that's the case, then maybe a hysterectomy won't help at all.

My second opinion did think a hysterectomy may help the fibro pain, atleast that in the uterus and area nearby.

I think I feel bad because I feel like a wimp compared to others here. They have pain all month long, and heavy bleeding, they seem so much worse then me. And here I am thinking of something drastic. But it is a quality of life thing at this point. It is disrupting my life 2 weeks a month. But some of that is hormones not just the uterus.

My gyn told me that she wouldn't recommend a hysterectomy to just anyone. She said I've been having problems for years now and have seen about 8 different gyns about it and other drs in other areas as well. She does think it's justified.
  #5  
Unread 11-26-2007, 10:44 AM
have my date but now I'm scared! IUD maybe?

  Quote:
Originally Posted by Bagpuss45
I still get PMS after my hyst because I kept my ovaries and am not menopausal. At forty five I didn't think that I would become pregnant aqgain. I am not menopausal and 'put up' with the PMS.
My gyn refuses to take my ovaries unless she sees something once she's in there. She said I'm way too young. I said I don't want them out unless she has to (well we'll be looking close at the right one, because it's problematic) because I have osteoperosis, high cholesterol, heart problems and other issues in my family. My grandmothers breast cancer was sensitive to estrogen as well. (although she was post menopause and is now 12 years remission)
  #6  
Unread 11-26-2007, 11:13 AM
have my date but now I'm scared! IUD maybe?

It sounds like your problems are complex and you have consulted many specialists. I have no experience of fibromyalgia but there are many sisters who have. However I know how debilitating chronic pain is. I had reached the point where my GP did not know what to prescribe for my pain partly because I was allergic to it or it reacted with other meds I am on. It was a challenge when I went in for my hyst to know what to prescribe. I also have adhesions. which in themselves can cause pain often severe. I am now pain free. I think from reading your posts that you are doing all you can to research the various options available. If you have serious doubts could you delay having surgery? or give the mirena a try to see how you get on?
  #7  
Unread 11-26-2007, 02:02 PM
have my date but now I'm scared! IUD maybe?

I had the Mirena and I personally loved it. I can't tolerate BC pills so I never even tried the patch or depo. I had light flow for about 3 months (Nothing ever more than a pantyliner though) then NOTHING! It was awesome. In fact the only reason I had it taken out was that I thought it was coming out..but she said no but removed it anyway because that's what I had thought it was. Turns out I have a pretty severe prolapse. She said I didn't. How she could not tell??? Scary!

Anyway, the Mirena worked well for me because the hormones are contained in the uterus not going throughout your whole body.

Again, I loved it. I miss not having my period. Soon, I will be there again but with the hysterectomy.
  #8  
Unread 11-27-2007, 06:13 AM
have my date but now I'm scared! IUD maybe?

Hmm interesting. I think I'm going to give it one more cycle then try it. I'm a bit scared because my body really hates hormones of any kind, but my sister says the same thing, she hates the pill, but loves the IUD.
  #9  
Unread 11-27-2007, 07:15 AM
have my date but now I'm scared! IUD maybe?

Hi Garden1313
  Quote:
Anyway, the Mirena worked well for me because the hormones are contained in the uterus not going throughout your whole body.
One of my sisters has Mirena and is doing well on it. She had to stop BCP because of *severe* migraines with non-stop vomiting. Her GYN & Neurologist both said Mirena would be safe for her for the same reasons mentioned above.

She spotted for the first few months but is glad she stayed with it because she doesn't really have a period now.

This LINK has a little movie that helps explain how Mirena works.

Good luck with your decisions.
s
Beth
  #10  
Unread 11-28-2007, 08:18 PM
have my date but now I'm scared! IUD maybe?

I am one of the "lucky" few who has had nothing but problems with the IUD. It was my last try at something else before surgery. I have had almost non-stop bleeding since it was put in. I have had the same amount of pain (severe) as before. I still have all of the PMS symptoms I had before. I have scheduled surgery for this Friday after no relief and more issues with the IUD. I understand it can be wonderful for most people but there are still a few that it does not work for. It is always worth trying everything before something like major surgery.
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