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New Here and seeking advise! New Here and seeking advise!

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Unread 07-17-2001, 06:23 PM
New Here and seeking advise!

Hi there,
I wish my story was different than all the other women who suffer from endo, but unfortunately we all experience the same misery as the next! I have come to the decision that I am going to demand a hysterectomy on Thursday when I see the doctor! I just don't want to play this game anymore! It has been years of pain, heating pads, extreme hemmoraging, narcotics and just pure misery, and I have finally made up my mind that I want to start living a healthy life! For anyone that has gone through the surgery.....Will it benefit me to keep my ovaries??? I really want to, but I suppose if things are bad I wont mind if I lose them either! I am just scared at this point, but relieved that I have finally come to a decision after all these years! Any support would be appreciated! Thank you!!! Mary!

By the way, I am 35, have had my tubes tied and 2 beautiful girls ages 4 & 8! I feel that I shouldn't have to suffer anymore!!!!! Thanks again!
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Unread 07-17-2001, 07:43 PM
New Here and seeking advise!

Hi Mary and Welcome!

I'm so glad that you found us!! This is the best place around for information, support and hugs!

There are many women here who have experience with the pros and cons and different approaches to endo, and someone will be along soon to share that with you. In the meantime, you might want to do a search using the search button at the top of each page, and look at threads on endo. (must be hundreds..lots of good information!)

Keep reading and posting! I found that the Pull Down menus on the home page are especially good reading...many stories from other sisters about their experiences.

Hang out here with us and we'll help you get through this! Keep us informed on how your doctor visit goes!!

s to you!

Unread 07-17-2001, 08:01 PM
New Here and seeking advise!

Hi! I didn't have endo, but my doctor thought that I did. Because of my age (37) he was really against taking the ovaries even with endo. He believed that it would lead to health problems and said that if I did have endo, he would treat it without taking the ovaries. You should discuss the pros and cons with your doctor, taking the ovaries can lead to cardiac problems and osteoporosis. I'm sorry that you're having such a hard time, I'm glad you're taking steps! It's pretty much what I did.

Good luck!
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Unread 07-18-2001, 05:23 AM
New Here and seeking advise!

Hi Mary,
Welcome to HysterSisters! I had a moderate case of endometriosis along with Adenomyosis of the uterus. Mary you will definitely need to speak with your doctor on the issue of removal or keeping the ovaries.

I will share with you my experience that I had with my gynecologist who was also my surgeon. He recommended that the ovaries be removed because I was over age 35. Younger than 35 he recommends leaving the ovaries. My ovaries had Chocolate Cysts on them----which is another name for endometriosis that adheres to the ovaries. They were badly diseased from the endometriosis.

Besides my age and the chocolate cysts on the ovaries, he said that often times the ovaries are greatly affected after having had surgery plus the risk of ovarian cancer. Taking everything into account: My age, Chocolate Cysts on ovaries, Risk of developing Ovarian Cancer............I decided to have my ovaries removed.

I don't regret that decision of having my ovaries removed. I asked lots and lots and lots of questions.

Are your ovaries affected by the endometriosis? I did not want to leave any trace of endometriosis in me for fear of it growing back.
I can relate to the pain that you experienced all these years.

Has your doctor recommended any alternative procedures to treating this endometriosis without doing a hysterectomy at this point? I strongly urge you to make an appointment with your doctor and go in with a LIST of QUESTIONS. Find out what can be done before having to resort to a hysterectomy. If you do end up having a hysterecomy you will want to ask lots of questions regarding keeping or removing your ovaries.

Please keep in touch and let us know how your doctor visit goes and what treatment path you are going to be following.

s to you,
Unread 07-18-2001, 06:08 AM
New Here and seeking advise!

Dear Mary, I too threw in the towel from suffering from endemetriosis. I had my tah/bso on 4-10-2001. I had wanted to keep my ovaries but when she operated on me both were very diseased and had to be removed. I know she had my best medical interest in mind. I also am going thru sugergical menopause I am at the 3 month mark and 3 to go Each doctor has different opinions on the route to go with hysterectomies and hormone therapies. Some doctors like mine make you wait a period of time before placing you on hormones. I would continue to read alot of posts from this site both pre, post and the hormone jungle. Then I would sit down and write a list of all your questions to discuss with your doctor. Only you and your doctor can make the best decisions based on your medical history and family history. A hysterectomy is a life changing event for many women and it is important be prepared for the changes that are in store for you. On a positive note I have just passed my 3 month mark and I feel wonderful. The only thing I was not prepared for was the surgical menopause and hot flashes in the summer are very warm But this to shall pass in a few more months. Overall I have absoulutely no regrets in my decision. My life is so much better without pain. Best wishes, Diane
Unread 07-18-2001, 06:25 AM
New Here and seeking advise!

Your doctor and my doctor believe in waiting awhile after the hysterectomy before placing us on hormones. The endometriosis feeds on estrogen and this is why my doctor told me to wait 5-6 weeks before starting hormones. Any minute pieces of endometriosis can start to grow back and start spreading elsewhere in the body IF you start hormones too soon after having had the hysterectomy.

Some doctors put their patients immediately on hormones immediately after surgery. It's amazing the different schools of thought on this subject. I guess it depends on the degree of your endometriosis and in my case adenomyosis.

More information on this can be found in the hormone jungle---the archives there. You can also do a search to find articles that discuss endometriosis growing back as a result of hormone replacement therapy started too soon after a hysterectomy.
Unread 07-18-2001, 06:59 AM
New Here and seeking advise!

First I want to say, don't decide anything until you have seen your doctor. You sound just like me when I decided to finally "throw in the towel". I have had enough. I want to be a good mom again and do stuff with my kids. This is just my situation. I am only 30 and would have liked to keep my ovaries. I have been growing weird cysts on one ovary so that one has to go. Then my dr. said that some of my endo is microscopic and that she knows she can't possibly get it all out. So no hrt for a while. She also told me and I also knew that my remaining ovary would produce estrogen and could cause a reccurence of the endo. After my last lap to get rid of some more endo, it started back in two months, so we know that it was growing fast. So my dr. and I together made the decision to remove both ovaries to give me a better chance of keeping the endo at bay. Remember that this is just my story and you really need to research and talk to your dr.
Unread 07-18-2001, 08:06 AM
New Here and seeking advise!

Thank you all, for your support and suggestions! I will surely let you all know what happens tommorrow at the doctors! In the meantime, another day of mind-boggling questions! Not a minute goes by during the day where Im not thinking about all of this! Its just another subject of the endo that's tiring me out also!!!! Thanks again, and I will be back tommorrow!!!!

One more question....Have all of you sufferred from terrible stomach problems as well??? Diahrrea, etc. etc.???? Just wondering! Thanks, Mary!
Unread 07-18-2001, 08:27 AM
New Here and seeking advise!


Well I know exactly how you feel. I am having a LAVH after suffering from endo to long. I am 39 two daughters 18, and 15. I have to schedule vacations around my period and life in general. I just want to start living again. My doctor is going to leave one ovary if it is still not involved with the endo. Good luck on your decision. There is so much great information here. Take care, Karen

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