four months and still pain - Page 2 | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Support Posts > Hysterectomy Recovery (post hysterectomy)


HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support
Reply

four months and still pain four months and still pain

Thread Tools
  #11  
Unread 01-16-2008, 09:44 AM
four months and still pain

MisTre, After I started staining, I went back to the surgeon who did the hysterectomy. He told me it was uneven healing of the vaginal cuff . He cauterised it and said everything else was fine (correct). He is not a talkative man, but from what I understood, I should have no problem with sex. Baloney!!! He also told me, if I have the staining again, go to my gyno. Now my gyno is a very nice, understanding young man, but he is more interested in delivering babies than dealing with older women. He too says go have sex. "But it is painful and impossible" No answere from him.
Sponsored Links
Advertisement
 
  #12  
Unread 01-16-2008, 11:02 AM
four months and still pain

Hi Carol. Your gynie sounds like the one I just parted ways with, in that he is a lot more interested in young fertile women than dealing with the needs and issues of older women. Because of this I suffered needlessly with problems that he ignored or said "well, you are getting older" (I was only 40!), and that could have and should have been taken care of years ago.

I have no regular gynie at this point and have to find one, but I am going about it like a job interview: I am making appointments to meet them and flat out ask them if they have the interest and knowlege to deal with a post-hysterectomy menopausal woman. Any hemming and hawing and I am going on to the next one in the phone book. I have realized that I can't make a doctor care about me, so I have to care about myself enough to get the right answers, which is how I ended up with my urogyn surgeon and having TAH, etc, in the first place. The overall results of my surgery is really wonderful for me in every way except the sexual aspect, so no regets on my part for having it done. Only wish I had doen it sooner!

Still, it burns my butt that so little information is passed on by the surgeon about the issue of post-op sexual activity. They seem to believe if you have some kind of opening down there it is good enough for sex, whether it is painful or not; the woman's enjoyment seems to be a non-existant item on the post surgical list of recovery goals. "Go have sex" is not an answer when the equipment is too small or too rigid or too scarred to even allow penetration, or too painful to be endured without being put under general anesthesia!

I also wonder if the attitude would be so cavalier if it were men having the excrutiating pain in the situation - probably not, considering that they push viagra on 80 year old men so they can enjoy a sex life beyond their years and natural phsycial abilities. Can you imagine what a different answer there might be if it were our partners saying "I have pain and burning and bleeding and abdominal cramps when I have sex with my post-hyster partner"?

Honestly, Carol , the one thing I have learned from what I have been through over the past few years is that if your doctor isn't giving you the care or answers you need, find another doctor. My awe of phsyicians has long since left me and now I think of them like biological auto mechanics; if some fellow kept taking money and not fixing my car or telling me to "just drive it" and the problems would go away, I sure wouldn't keep going back to him. So I am determined to never go back to a gynie who says "just live with it"!

HUGS TO YOU!!!
  #13  
Unread 01-16-2008, 01:00 PM
four months and still pain

hey carol.............i haven't had staining, post-sex, but, one day out of the blue last week, there was a pinkish stain? strange?

hey mis tre......i can't believe there is a human in the world who would think that incontinence/prolapsed uterus does not require treatment? what a moron? as for getting my dr's to listen, i write a list of probs, then give them.....apparently, according to a study recently, drs make their diagnoses within the first minute, and, its impossible to tell them all symptoms within that time-frame. also, i make sure i am armed with plenty of knowledge, and enforce that i wish to be responsible for my own health, that they are there to aid that? if they don't like my involvement in me, then, i find another dr ! !
hey CAmich, i reckon you should have a "follow-up", not that will necessarily resolve everything, but, at least you should find out where you're at with the internal stuff, to a degree at least. for myself, i would like to think that cauterising with the silver nitrate, or whatever, might help, but, i can't see how that is going to help with the bladder spasms etc? hmmm.....
hey txlady, i would hazzard a guess that your area of pain would have to be the "ex-uterus" area. would have to be the cause of tenderness/nerves severed etc??? and, no doubt a "time" issue for resolving? fingers crossed ! !

hey honey bear.....i have been trying all different positions, and being on top definitely gave me more confidence in the beginning, but, made no differece to the cuff area being hurt? if dh had a weeny member, it might be useful ! ! lol.......????

hey may13......what does your gyno friend mean by "bungled" scar tissue??? and what does "knock down" mean???

and, as for having to wait a year........GROAN.......how come they don't tell us this stuff, so that we are prepared??? they make it seem like 6 weeks, and the new woman/life party begins??? hmmm.......gee.

ps mis tre.......could you very slowly slowly over time, stretch the opening??? you could engage your dh in the process, and make it fun?? that is, so long as he doesn't get carried away ! ! i can imagine it would be scary though, wodnering if the old problems will return? hmmm good luck ! !
Sponsored Links
Advertisement
 
  #14  
Unread 01-16-2008, 01:19 PM
four months and still pain

Hi Geneieve! Thanks for your response. LOL! Yes, glad you just said it, my former gyn is indeed a moron. Since I left his "care" (much sarcasm there) I have run into a few women of a certain age who had horror stories about "ol' doc pat on the head" as one woman put it. I don't want tea and sympathy from a doctor, I want the resolutions that his assumed skills can provide. "Ol' doc pat on the head" doesn't have any skills (or interest) beyond delivering babies, that's for sure.

Overall, I have no regrets about any of my surgery and think very highly of my urogyn surgeon. But as she told me today over the phone, I have to find a gyn to provide ongoing care and HRT management. She said those are just not her area of expertise and I appreciate her candor.

My frustration with her was mostly due to her not being realistic with me & DH about what we could expect, and because of that, yes, we thought it would be party time at 6 weeks and instead it was like having a torture session (LOL). Quite upsetting to us both - but I am so grateful to have found this site because knowing I am not the only one with difficulty, and that it often takes a lot longer than six weeks, makes me feel a lot better - if for no other reason than it takes the bewilderment away and the pressure off!
  #15  
Unread 01-16-2008, 01:32 PM
re:four months and still in pain

My surgery was in oct. I have been in constant pain since. First started with a uti. Then the pain in my vagina has not stopped. I have been to many doctors. I had a diagnosis of vulvar vestibulitis. I sit all day at my job,and that has made my condition unbearable. I am taking elavil to hopefully stop the pain. I still take percocets to help with the pain. Now a new development. I have started having cold and numbness is my arms,hands and feet. I have to sleep on my back due to the vagina pain. I am a side sleeper, so I do not sleep as well as I want to. Went to see a neurologist and I am to get a mri done on my lower spine area. Had one on the pelvic and everything then was normal. Could this be nerve damage? Do I need to give all of this more time. I wish I was told about all of these problems that could occur before my surgery. I was just told I would be tired. I have both ovaries taken out, so I am in menopause big time. Taking the dot patch to help with the hot flashes. Started it when I first got home, but I got such a bad headache I stopped. The doctor last week told me to cut it in half. Hope soon to feel like I used to. I see pain management late feb. I have been told this can take up to a year to get back to your self again. I hope not. Thanks for listening.
  #16  
Unread 01-16-2008, 10:57 PM
four months and still pain

hey sisters.........i just had a good idea...........might send our dh's into have member reductions - they can become famous for being the only males in the world wanting a reduced size ! ! ! LOL.........very loud ! ! ! HA ! !

oooh, i'm wicked today ! ! ......gee.

ps if we didn't try and laugh, we'd only cry, and there's not much future in that ! !
  #17  
Unread 01-17-2008, 12:02 AM
4 weeks post op

Hi everyone,
I am 4 weeks out of a radical hysterectomy. After my doctor cut me from hip to hip he realized that they were to small so had to cut also from belly button down. I tell you the point where they meet is still painful, and I have a sore from the drain tube that will not heal.
i think the worst part of all this is I am an emotional wreck! i can't stop crying, i go in my room and cry for hours , wetting my whole pillow. And I have night sweats every other night. I have an appt. with a endocrinologist for hormone therapy next week and it aint coming soon enough. i can't seem to concentrate on anything. On the positive side i lost 17 lbs.

The swelling and pressure in my belly is still there , and sleeping in the bed is not very comfortable. i'm 32 years old and BROKEN! On the positive side the pathology from my uterus should pre-cancerous cells, with a 40-50% chance of developing to cancer within a year, so I guess besides the endometriosis and poly-cyctic ovaries i guess thins was a good thing.

But I seriously feel the emptyness. Sorry this post is so long, noone at home to hear me vent and strangers just don't understand.

Thanks for listening..If anyone has any advise i would love to hear it
"Broken Kim"
  #18  
Unread 01-17-2008, 05:08 AM
ditto, ditto, ditto

Hello all, Hi again Gen,
I'm with you all. I told my DH I felt there must be a conspiracy that we are not better informed. I'm ready to shout from the rooftops for all women. I asked my DH if he had somehow grown. That made him smile. Since I too felt broken I started digging and don't know how I missed it but all these wierd things are supposedly from the loss of hormone production. I think it's like a vehicle being out of fuel. I feel so stupid that I thought removing the producers of my fuel was going to be better than just reduced fuel. I had no idea vaginas could shrink and lose wall thickness if they weren't touched! If what I'm reading is right, the painful sex, chapped and tearing openings, lack of response, decreased sensitivity, low libido, low(er) energy, dry skin/scalp, joint achiness, withdrawal from normal activity, sleep probs, headaches, etc can be helped with hormone regeneration or replacement, (depending on severity of symptoms and whether you still have ovaries). I have hope, I hope not misplaced in Bio-hormones, etc. The Sexy Years by Suzzane Somers has been an eye-opener for me! It's sold on this site and in bookstores. Here's to getting our sexy selves back!
  #19  
Unread 01-17-2008, 10:15 AM
four months and still pain

  Quote:
Originally Posted by Genevieve07
hey sisters.........i just had a good idea...........might send our dh's into have member reductions - they can become famous for being the only males in the world wanting a reduced size ! ! ! LOL.........very loud ! ! ! HA ! !

oooh, i'm wicked today ! ! ......gee.

ps if we didn't try and laugh, we'd only cry, and there's not much future in that ! !
Oh you are so funny! I told my husband that all the time. Every time we think about how we don't get to have sex yet, I tell him if he wasn't so large we could be! It is his fault. LOL! He just laughs. Who would have thought we would ever complain about this issue? Anyway thanks for the laugh. By the way how is the autoimmune stuff going? Hope you are feeling better.
Janelle
  #20  
Unread 01-17-2008, 10:21 AM
four months and still pain

  Quote:
Originally Posted by StillKim
Hi everyone,
I am 4 weeks out of a radical hysterectomy. After my doctor cut me from hip to hip he realized that they were to small so had to cut also from belly button down. I tell you the point where they meet is still painful, and I have a sore from the drain tube that will not heal.
i think the worst part of all this is I am an emotional wreck! i can't stop crying, i go in my room and cry for hours , wetting my whole pillow. And I have night sweats every other night. I have an appt. with a endocrinologist for hormone therapy next week and it aint coming soon enough. i can't seem to concentrate on anything. On the positive side i lost 17 lbs.

The swelling and pressure in my belly is still there , and sleeping in the bed is not very comfortable. i'm 32 years old and BROKEN! On the positive side the pathology from my uterus should pre-cancerous cells, with a 40-50% chance of developing to cancer within a year, so I guess besides the endometriosis and poly-cyctic ovaries i guess thins was a good thing.

But I seriously feel the emptyness. Sorry this post is so long, noone at home to hear me vent and strangers just don't understand.

Thanks for listening..If anyone has any advise i would love to hear it
"Broken Kim"
I am so sorry you are feeling this way. I too had a radical hysterectomy and I understand how you feel. I will tell you that it does get better! It just takes us longer. Remember they took out more than a normal hyst. and more nerves and tissue is traumatized. I feel for you as I remember how bad I felt at 4 weeks. Please just try to get lots of rest and don't try to do anything too soon. If you want to talk about your issues please private message me. I will be praying for you.
Janelle
Reply

booklet
Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions
Register




Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
2 Replies, Last Reply 01-08-2011, Started By vsabbath2
3 Replies, Last Reply 09-15-2010, Started By lizzy12
8 Replies, Last Reply 10-28-2009, Started By tori39
3 Replies, Last Reply 09-22-2009, Started By wazzy524
2 Replies, Last Reply 09-07-2007, Started By cedler1
7 Replies, Last Reply 11-17-2006, Started By otessa
5 Replies, Last Reply 11-11-2006, Started By sloemoe
9 Replies, Last Reply 01-24-2006, Started By peace lily
1 Reply, Last Reply 10-11-2005, Started By Lady P
8 Replies, Last Reply 09-06-2005, Started By TrishaS
6 Replies, Last Reply 11-16-2004, Started By JingleTV
4 Replies, Last Reply 03-23-2004, Started By rosettaann
4 Replies, Last Reply 03-12-2004, Started By Winterscastle
3 Replies, Last Reply 10-08-2003, Started By ManderJ
4 Replies, Last Reply 04-22-2001, Started By Janers
6 Replies, Endometriosis Support
8 Replies, The Road Less Traveled
6 Replies, Preparing for Hysterectomy (pre hysterectomy)
16 Replies, Pelvic Floor and Bladder Issues
1 Reply, The Road Less Traveled



Advertisement

Hysterectomy News

October 26,2020

CURRENT NEWS

HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive

TODAY'S EVENTS

Calendar - Hysterectomies - Birthdays


Request Information


I am a HysterSister

HYSTERECTOMY STORIES

Featured Story - All Stories - Share Yours

FOLLOW US


Your Hysterectomy Date


CUSTOMIZE Your Browsing  


$vbulletin->featuredvideos is not an array!
Advertisement


Advertisement