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shooting pains and spotting 11 days after BSO11 days post BSO-help!!! shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

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  #1  
Unread 02-02-2008, 12:05 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

Hi Ladies-

I had a BSO on January 22nd for endo and related pelvic pain. I felt pain for a couple days after the surgery and then I got much better. I was recovering much quicker than I expected and was relatively pain free after 4 days.

Yesterday i started having bad gas and shooting pains in my rectum area. I thought it was just gas pains and that i would feel better today. I don't and the pain is nearly debilitating.

I also had an overnight acne breakout on my chin. I'm wondering if my estrogen might be too high, making my acne flare up and making the endo pain that i've always had in my cul-de-sac area (which radiates to the rectum) worse.

Any ideas? I can certainly wait it out over the weekend but i'm concerned that my estrogen might be too high.

I was put on the vivelle dot 1.0 right after the surgery.

My body has always made a high level of estrogen so i wonder if the combo of my estrogen stores and the patch are making my level high.

Any thoughts?

Thanks!

LSH 2006 for aden. and endo
BSO 2008 for endo and cysts
Vivelle dot 1.0
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  #2  
Unread 02-02-2008, 01:04 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

(((tfig))) If you're having debilitating pains this soon after your BSO, you need to call your DR. There are many possible causes and it needs to be checked out.

High estrogen levels don't cause acne, and it takes a while for estrogen to make endo regrow, so I really doubt that your HRT is causing that and the pain this quickly. However, 0.1mg/day is kind of a high dose for someone who had endo (and probably still does, if it was in the cul-de-sac), imho; you may want to ask your DR about either lowering the dose (the patches can be cut in half) or adding a little progesterone to inhibit endo regrowth.

Let us know what your DR says, OK?
s,
-Linda
  #3  
Unread 02-02-2008, 01:37 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

Thanks a lot!
What you said makes a lot of sense. I think i'm just so used to pain that I just think it will go away. My husband was nervous today b/c i was literally doubled over with pain. They are like cramps that last about 1 min and then subside.

When i bear down to void it hurts in the lower abdomen and also when i tried to have a BM today i had to hold my tummy b/c it hurt so bad.

The odd thing is that I was totally fine, no pain, until yesterday.

Do you think i could have overdone it with activity this past week?

I think too that 1.0 is a little high. I think my doc. was more worried about my PMDD than my endo.

Will the patches work the same if they are cut in 1/2?

Oh, i forgot to mention that I am on a stool softener for constipation after surgery and I also have a monster yeast infection from the antibiotics they gave me during my surgery. Do you think either of these would contribute?

Thanks again!
Tera
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  #4  
Unread 02-02-2008, 01:47 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

(((Tera))) is your DR aware of the yeast infection? And are you absolutely sure - did they do a culture? Other conditions can look and feel like a yeast infection, so it's important to have it checked out.

Do you have a fever with those pains? That may be a clue and is something you would want to mention to the DR.

Yes, you could have overdone it; or it might not be your fault at all. But really, your DR needs to see you and find out why you are suddenly having these new, severe pains. That should not be happening and is a signal something is wrong.

s,
-Linda
  #5  
Unread 02-02-2008, 02:02 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

My doctor is aware of the yeast infection. I tried OTC 3 day cream and it did not work so she called in an RX cream on Thursday.

They did not do a culture but it feels like yeast and i always get a yeast infection when i get antibiotics. I had two rounds of IV antibiotics so i'm sure this is yeast. I have had trouble with yeast for years so i know the signs.

I do not have a fever but i've been really cold and seem to have pain everywhere in my abdomen. I did have some relief after i had a BM today but the pain is still there--i just don't have the cramping as bad.

Maybe i should lay down and take it easy and see if that helps. For the last 3-4 days i've been living life as usual. I have a 2 year old and a 6 year old and i've been doing all my normal activities. I wonder if my body is telling me to stop and rest more?

I definitely will call my doc. on monday. I don't think it's worth trying to deal with over the weekend unless i get a fever or unless the pain worsens. I have no desire to sit in an ER for 3 hours, only to have them tell me to see my GYN on monday Know what i mean?

If you have any other thoughts, please let me know. I do appreciate the feedback and brainstorming.

Tera
  #6  
Unread 02-02-2008, 02:59 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

Tera,
Are you still on pain pills? If so, what are you using? Could the pain pills be contributing to the pain? The reason I ask this is that after several of my surgeries I was given tylenol 3's with codeine. I found out the hard way that my body does not do well on codeine. I would be literally doubled over with the most awful abdominal pains and when trying to go to the bathroom I felt like I would explode from by belly and my bottom!

Perhaps you are not ready to go back to "life as usual". You did just have surgery! I think you need to rest.

That said, I do agree with Linda, if you're in that much pain you should contact or doctor or head to the ER. It is better to be safe than sorry.

  #7  
Unread 02-02-2008, 03:22 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

Thanks Kim!

I am not on pain meds. I stopped taking them 3 days after surgery b/c I was very constipated and it made the pain worse. My post-operative pain was not that bad so stopping the pain meds was not a big deal.

My gut feeling about this? I think it's endo pain that is due to the estrogen patch. It feels exactly like endo pain but it's more severe. Exactly the same places where i've had endo pain before (cul de sac and lower right side).

When I had my ovaries i would have this pain around ovulation, when my estrogen was highest. It would flare up again really bad right before my period, when my estrogen spikes and then drops.

I think the yeast, the constipation, my over-doing it AND the estrogen are probably all contributing factors. If the pain is still bad on monday i'll go in but after my hysterectomy i had some pain and it was really really bad and I went to the ER, only to be sent home after 6 hours of tests. It turned out that a nerve had been accidently stitched (internally) and the pain was from the pressure on the nerve. So, going to the ER doesn't give me much hope unless i feel it's life threatening.

I really appreciate your feedback. If you all think of anything else, let me know.

I will put my feet up and rest but i'm also going to cut my patch in 1/2 so i'm only on .5 instead of 1.0. I feel in my gut that the estrogen is making old endo flare.

Let's hope i'm right and that i don't have too many side effects from lowering the patch. I'll talk to my doc. but i'm not sure if the docs will believe me when i tell them it's endo pain.

we'll see!!!
Tera
  #8  
Unread 02-02-2008, 07:11 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!



I hope you are feeling better and if not, I hope you are able to talk to your doctor soon!

I have experienced shooting pains in the rectal area. Mine was either related to IBS and/or the filmy adhesion in that area that was just removed. Only time will tell since that pain was not a consistent one, thankfully since it was so bad!

During surgery for your BSO, did you have any endometriosis excision or lysis of adhsions? If so, could your pain be related to some of that healing?

Is your doctor knowledgeable regarding both endometriosis and hormones? If not, you may want to consider an endometriosis specialist, especially if you feel your current pain is related to endometriosis. If you had surgery less than two weeks ago and you are experiencing pain from endometriosis, that means there was endometriosis left inside of your during your most recent surgery and your surgeon may not have had the skills needed to remove it. If that is the case, that endometriosis could be a problem for years to come.

Has your doctor suggested using any progesterone along with the estrogen to help keep the endometriosis at bay? If you make any changes to your hormone dose, such as cutting your patch in half, be sure to talk to your doctor about it. There may be a specific reason your doctor has you using the dose you are on -- a reason unrelated to endometriosis.

We do have an Endometriosis Support where you can find support for specific endometriosis issues. But before chalking all this pain up to endometriosis, I would suggest checking with your doctor to see if there is something going on because of your recent surgery. You also want to be sure to rule out any other conditions such as IBS, IC, UTI, GI issues, etc. In your pain diary, you should keep track of any supplements and medications you are using, what you are eating and drinking, what makes the pain better or worse, how often are you urinating, havng a bowel movement, etc.

Just a thought, are you taking calcium? If you are, do you also take magnesium? Did you change any of your supplements since surgery? I recently had a laparoscopy and I am still not back on all my supplements and vitamins as my "guts" are not quite up to par.

I wish you all the best and I hope you are doing better. If necessary, do visit an area ER or Urgent Care facility. Or your doctor should have an answering service so that s/he can be reached at any time.

in there! S
  #9  
Unread 02-02-2008, 08:31 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

Thanks!

I do feel my doctor is relatively experienced with endometriosis, though i don't think she would be considered a specialist. Let me see if i can answer some of your questions.

I do have IBS and i've had it ever since i've had endometriosis. I usually have an inability to completely evacuate, which has improved with dietary modifications and some medication. I know IBS has a role.

I did indeed have endometriosis removed during my surgery. My doctor said it was "hard" meaning some of the lesions were hard lesions rather than soft, which I wasn't sure how to interpret. I think most of the lesions were in the pelvis and cul de sac area.

I know there is endo that was not removed. I have two areas that have never been able to experience pain relief--my lower right side, and my cul de sac. I've been seen by a specialist in the area (many years ago) and even he said endo can be microscopic and surgery will not always cure it.

I've been resting this afternoon and the pain is better but it's not gone. Today was the day to change my vivelle patch so i put on 1/2 a patch instead of the full 1.0 dose. I expect i'll have some estrogen reduction symptoms like hot flashes and headaches until the level stabilizes.

My doctor wanted me to be on 1.0 so i'd have less menopause symptoms after the surgery--we talked ahead of time and i had asked about a lower dose and she said that is fine with her but then she said most younger women do better with the higher dose. That is the only reason.

I think this pain i'm having is a combination of irritable bowel, yeast, and a flare up of pre-existing endo due to higher levels of estrogen. When i had my ovaries, i had this exact pain when i ovulated and before menstration, when my estrogen would rise. Other times i might have twinges of pain but it was not as bad.

I really wanted to start on a lower dose of estrogen after the surgery b/c of my endometriosis and my hormonal issues. My doctor, i know, won't mind at all if i switch. I just wish I would have started out lower to begin with. It seems easier to go up in dose if needed than down, which is what i'm doing now.

I'm sure some of the pain is healing pain too. It's just so wierd b/c I was feeling totally fine until yesterday--virtually no pain.

Thanks again! Let me know if i've missed something :O)
  #10  
Unread 02-02-2008, 08:33 PM
shooting pains and spotting 11 days after BSO11 days post BSO-help!!!

btw-are you on any hormones? just curious since it seems we are close in age and both suffer from endo. thanks!
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