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Laparoscopic supracervical hysterectomy: LSH complications Laparoscopic supracervical hysterectomy: LSH complications

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  #31  
Unread 03-21-2008, 07:51 PM
Laparoscopic supracervical hysterectomy: LSH complications

I had a LSH in May of 2007 for endo. My uterus was stuck to my abdominal wall along with other endo problems. I was O.K. for a couple of month's, except bad sweats. No mood swings or anything. He said a low dose of hormones would be O.K. I thought he knew what he was doing. He said it was a low dose. Turned out it was a hormone cocktail of many different types of estrogen and it was the strongest amount available in that RX. I started having pain again and I went back to him. He had told me after the surgery of a possibility of coming back. I told him it was the same kind of pain. He told me it could not be hurting because he had removed everything except the cervix. He basically pushed me out the door. I found a specialist a little further out the said it was definitely endo and he had some good results with some hormone suppression with a couple of different medications. He said we would try that so I may not have to have surgery again. It did not work. I ended up being in more and more pain. Then, my bladder prolapsed. The specialist did not do that kind of surgery but a family member had used a good Dr. that knows endo and prolapses. My origonal Dr had told me that keeping the cercix would keep prolapses from happening. I asked specifically that question because there it a history of that in my family. That is why I went with the LSH. He did not tell me otherwise. Since then I have found studies that says it does not provide anymore support for the pelvic area than if you have it taken out. I found it in many different medical journal pages posted online. I had my surgery again in December, had the spot removed and yes, it was endo, and my bladder put back in place. And a small patch of endo on cervix. He said he left cervix thinking with removal mayby that would be it. Now I am having bad pain with my cervix. Can't be with hubby, Spasms, etc. Those studies I mentioned also say when the cervix is left, people have a higher rate of pain, the cervix becomes painful, very bad during sex, and usually ends up with endo on it. The new Dr. examined me and said the cervix had definitely dropped, and with the pain, endo probably is back. He showed me the records transferred from my origonal dr and they are very generic. Don't tell hardly any specifics of what he did during surgery. Gave overview, basics of LSH, but that is it. So this other Dr. now is going in to remove my cervix and take a good look around to see what else my former Dr. may have missed or messed up. Because I also found an article that reported a case just like mine. Uteris stuck to wall, pain around left overie most but at right overie as well. That Dr. done a LSH to remove everything and in the removal of the uteris, because of the procedure, some of the endo on the uteris scattered like confetti. Some small specks that could be seen, some microcopic. And you know anything it touches, it grabs onto. Withen 6 months she had pain on cervix and it dropped. She was back in and had endo on cervix, endo in other places, and bladder had dropped as well. Conclusion was better not to do LSH for major endo problems. Not only did that happen to me, then he gave me a strong dose of Hormones to make sure they got kickstarted. All I had was the sweats. I could live with that. But he said there was no danger and it was a low dose. He either didn't know or lied. Either way it's awful. Now I am going in for my 3erd surgery in less than a year. All because of him. I wish I could knock his head off. I am so angry. First I was upset about the new surgery. Now I am mainly angry. He did everything wrong now I am having to pay with my body.
Sorry I went so long. I had to vent.
I just wish I knew what to do except let my new COMPETENT Dr. fix me.
Melissa
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  #32  
Unread 03-23-2008, 01:26 PM
Laparoscopic supracervical hysterectomy: LSH complications

Hey, I feel your pain girl. If I didn't have that LSH by my first dr. I wouldn't be in the mess I am in too. Good luck with your surgery. Three in a year is a lot. I had two and I feel it. I hope you have good support. It's been almost 4 weeks since my surgery and I still feel like crap. My body is worn out. Do these drs. know what women/mothers have to do? It is so hard to be a mom right now. My poor kids, all they say about me anymore is my mom is sick she can't do anything. Absolutely stinks.
  #33  
Unread 03-23-2008, 01:57 PM
Laparoscopic supracervical hysterectomy: LSH complications

Painful,

You had your second surgery already. What did they do and how did it go? As for me, I should've just kept my bad utti. At least I understood what was going on in my body. I don't have a lot of pain, just bloating after even the smallest amount of food. I had my endoscopy and was too late in trying to get that and the colonoscopy done at the same time. But that is scheduled soon. I also will see my surgeon this friday for the first time since my 2 post ops. I am sure that he won't be happy since I have called him a number of times regarding itchy burning vagina. He prescribed some nyastin cream which does help, but should I still be on this. My surgery is will be a year in july. I NEVER wanted this, but after I was told about the LSH, I decided to do it. My regular GYN only does the traditional surgery and I was afraid of that with my history of scar tissue. My figure isn't even the same and that is equally depressing.
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  #34  
Unread 03-23-2008, 02:51 PM
Laparoscopic supracervical hysterectomy: LSH complications

He told me before my LSH that there would be no use in doing any tests that endo would not show up on any tests. He did a vaginal exam and my uteris was tender. Very tender. But I found out now he should have done some imaging tests to at least see if I had any organs sticking together before he went in. My uteris was stuck to my stomach wall and from what I am seeing, the LSH was not the best choice for that kind of endo because cutting the uteris into parts to get it though the tube can scatter microscopic specks of endo in your body to get on other organs and could activate and grow later. Then he put me on that estrogen that he said was a low dose and said was O.K. that turned out to be a high dose. Leaving cervix does not give you any more pelvic support no matter what they say, my bladder fell in 4 month's after my surgery. I told him that was a concern because of my family history. And he didn't tell me that the cirvix prolapse was a possability and a lot of the times with endo, the endo ends up on the cervix and it has to be romoved anyway. Pluss I found that there is also a chance that when endo is very strong and present on the left side, which that is where mine was the worst, the probe they use on that side can redeposit microscopic endo cells during procedure due to movement before the endo is cut away in that area. He just did a bang up job on me didn't he. Because all that has happened. Fallen bladder returned endo, surgery in december. Fallen cervix, returned endo on cervix and now just in the last couple days, I am feeling pain again on my left side, surgery again in april. when I approached him to tell him left pain returned in first place, dissmissal in less than five min. and tole me no way it could be back because nothing is there and almost pushed me out of office to send me somehwere else.
Great guy huugh. I have not been able to sleep I have been so mad. I am just mad and hurting and confused.
  #35  
Unread 03-24-2008, 10:52 AM
Laparoscopic supracervical hysterectomy: LSH complications

McCreel,
I am so sorry. It seems like a lot of us have received a bad job. I read later that a LSH is not a good choice for endo or a lot of scar tissue. I did as much research as possible and I only read (at that time) that it was not recommended for a lot of large fibroids, which I didn't have. I will let you guys know on Friday what the dr. says. I know when I call him, he returns the call a couple of days later. His compassion is not the same as before.
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