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  #1  
Unread 02-10-2008, 03:57 PM
Dr. Google

Fibromyalgia can be a "side-effect" of having a LAVH/RSO????





Wish someone would have told me!



Ya know... I wish I had been told allot of things about this whole ordeal that I wasn't!!



Like "this may help, but we may trade one problem for another".



Ya know?! NO ONE told me that other problems that are torture in themselves could arise from having this **** surgery!



You don't even know how I feel. I mean come one! I have been on this **** Earth for nearly 30 years and the whole nearing 30 years HAS BEEN TORTURE! I envy those healthy-pain free jerks I pass every **** day whole have no reguard for what they have. No gratitude that they can be with their spouses and children and not be in pain or have to sit of the sidelines!!!



I am sooo **** angry that 5 months post op and I think I just came to grips with the fact..., THE DOCTOR'S HAVE NO IDEA OR PLAN to manage my qualitliless life! I mean wait, lets watch, maybe it's this but if it is not, then it might be that!!!



I don't even know where to begin when I sit in the doctors office and my husband says we need to seek another specialists advice and care since I am truly not getting better. I am not where the doctor's say I should and can't accept I am not!



Do you know how irritating it is to come and hear about all the great lives these people are ahaving who had there surgery WAY AFTER ME! I mean great for them, but I have to come to a point where I realize it is depressing to see that I am such an rarity and I stand in this stupid three ring circus...starring myself! Don't know why the heck the doctor's are sitting in the bleachers and eating peanuts with glow-in-the-dark headbands, as if they had nothing better to do?!



What do I do?

Go to a specialists? I thought I did, after all this is a GYN issue.

So they send me to another doctor for another 1 out of possible 3, more needed surgeries!!!!!



Recommend pills of hormones, antidepressants, antibiotics but when I ask for some freakin pain management....NOPE, you shouldn't require meds to manage your pain. A Tylenol or Advil should do just fine... HaaaaaHaaaaaHaaaaa.



Where do they come up with these "guidelines" for how bad pain is from one person to the next? Do they find this in the "How to Deal with Complicated Patients Made Complicated By the Medical System"?!



URRRGGGHHHHH!



So I start looking into some of my sypmtoms and the surgeries I am being referred for.



According to Google, I have Fibromyalgia and 100 other conditions!



So for the pain..



1500mg of Tylenol/ 4 hours up to 5 times a day. (Does nothing but get rid of a headache)



1600mg of Ibprofen/ 6 hours (Nothing but headache/toothache relief.)



So I get given a Rx. for Tylox...



Makes my muscles and chest hurt and I throw up, the whole night. I call the doctor to see if I can cut them in half and try a half of dose and he says nope, deal with it. I call back the next day and ask the nurse to please help me with this and offered to bring back the Rx of Tylox to the office (1 hour from my house) if they could give me something that is as effective with out the vomiting and muscle pain. They say sure, bring in the Rx that your insurance paid for and we will re-write you a Rx for Percocet at a lower dose which can be cut in half and the issue will no longer be.



My dear husband does this for me and I got relief (minor) from some of my symptoms. I was able to do some of my daily tasks.

Then I start working this past week. I was fired (they worded it way nicer) for taking too long to recover and so my new job, I want to look and try my best so that I can have a secure for of income. Part time but still a bit of income. I am SOOO sore.



I go to the urology specialist WED do I tell him I need pain management if they are going to keep bouncing me from one dr to another without helping in between? According to my GYN and GP, I shouldn't require pain management at this point post op. (..???)



Sigh.



So Google is about as accurate as the doctors I have been cared by? At least I don't have to pay for Google!
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  #2  
Unread 02-10-2008, 04:02 PM
Shouldn't They Be Looking?

If I go to the GYN or ER and tell them that I have bad vaginal cuff pain and throbbing, etc and they do an internal (finger ) and say IT'S YOUR BLADDER, it's inflammed. SHOULDN'T they also (look at the surgical site) even though it was 5 months ago???

Sigh..

I want to go to the ER but what are they going to do for me. Stop the stinging, and stabbing feeling? Are they going to turn my **** bladder off so I can experience this thing called "restful sleep"?

No one can help me and that is BS!!
  #3  
Unread 02-10-2008, 04:06 PM
Dr. Google

I come here and try to learn and read and relate but I find that is too hard. I am so complicated medically that when I read another thread by another poster, I find myself going "But I know I am not her and my problem is not quite that..."

Sigh....

Obviously I am angry and when I tell the doctors that, they say "it's for other reason unrelated to your surgery".

Are they serious!?
If ya can't do ANYTHING with out pain, can't have sex, can't exercise, can barely work, can't stand in the shower, can only sit on the sidelines as a result of issues I DID not have prior to this surgery, HOW CAN THEY NOT TAKE SOME RESPONSIBILITY?

Banging head on wall...
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  #4  
Unread 02-10-2008, 04:18 PM
Dr. Google

Wow perceptionist - that sounds awful.

If I were you, I'd be looking for a new doctor pronto. Is that an option? I"m not a doctor, but how can they tell what is wrong without an examination? There is no reason for you to be having his kind of pain. That just doesn't seem right.

I hope you find some answers soon. My heart goes out to you.
  #5  
Unread 02-10-2008, 04:23 PM
Dr. Google

Thank you Karen.. Sigh. Thank You.
  #6  
Unread 02-10-2008, 05:12 PM
Dr. Google

Hi Perceptionist...I hope you find out the problem...can you go back to your surgeon rather than the ER.......Have you ever had cystitis.....it is an inflammation of the bladder, I have had for 20 years on and off.....but the first few years, I thought my insides were going to fall out...no one knew what it was until I went to the 3rd urologist.....I said to him, I can't have sex, I can't sit, I can't sleep and I feel like my insides are going to fall out....my bladder was very inflammed all this time.......just a thought, something to ask your doctor...hope you feel better very soon
  #7  
Unread 02-10-2008, 05:27 PM
Dr. Google

Hi Perceptionist It's very clear that you're angry right now. Are you sure, though, that your DRs aren't, in their own clumsy way, trying to help you? I read in another post of yours that you've been referred to a urologist and have an appointment coming up this week. Is it possible your GYN feels that, as (((Rita))) said, you might have IC (interstitial cystitis); and if so, that you need to be treated by a urologist? That doesn't mean it isn't related to your surgery, just that a GYN isn't the best specialist to treat it.

Unfortunately, many of us end up post-surgery with conditions that aren't our DRs' faults but that require us to see other specialists to diagnose and treat. Myself, I turned up with diverticulitis and a perforated colon at four weeks post op - my GYN tried to blame it on herself, on the hyst, thinking maybe she'd nicked something, but she hadn't; it was a result, as near as anyone could tell, of years of diverticulosis, the anesthesia shutting down my GI tract for a few days and then eating a very high fiber post op diet. Luckily, she thought to send me to a gastroenterologist to check to see if there were other causes for my pain than a surgical error, and he found the problem ... but even so, I continued to have problems and a year later ended up having most of my colon removed. It forever changed my life (and that's not even mentioning the lengthy, painful recovery). Yes, it was probably triggered by the hysterectomy, but it wasn't up to my GYN (who did the TVH) to fix it - she's not qualified to do that.

I understand your anger, and the "why me?" As far as I can tell, there is no good reason why some of us end up with long-term problems after the surgery and many don't. I can't look back and blame anything I, or anyone else, did. It just happened. I'm sorry it seems to be happening to you.

I hope you get some answers from the urologist.

s,
-Linda
  #8  
Unread 02-10-2008, 05:49 PM
Dr. Google

if i were in the pain you were in, i'd research the closest university/teaching hospital and see a professor/director of gyn services. go to someone who is highly trained to treat problems like yours. even if you have to travel, its worth it to get answers. i had to travel 2 hours for my hysterectomy and dont regret it at all. even my appts are 2 hours away (4 hours total) just for a recheck. but i know i'm getting the best possible care possible and my health is worth it. so is yours
  #9  
Unread 02-10-2008, 05:53 PM
Dr. Google

I'm so sorry for what you are going though. I can really hear your anger and frustration.

As someone that has been diagnosed with rheumatoid arthritis, Sjogren's syndrome, and fibromyalgia, I can certainly sympathize. It took 18 months of severe pain to get someone to listen to me. In my experience and those of may people i have come in contact with on arthritis support forums, Fibromyalgia is very often a problem that has not fully manifested itself. Once I got my RA under control and started getting some sleep, my Fibro cleared up. Another good friend of mine finally figured out she was allergic to legumes, a third found out she had sleep apnea. Being deprived of deep sleep will cause any healthy person to have the same group of symptoms and I get it back if I don't get enough rest. Travel is torture for me because I don't sleep.

A good place to start my be to run down the sleep issues. If you can get a sleep study and they see that you aren't getting deep REM sleep, they will have to do something to find the root of the problem. Then they will have to admit you are in pain and have something wrong.
I hope you can get help soon. Being in pain constantly is horrible, I did it for years and am suffering now because I had to stop all my RA medication for this surgery and an unrelated minor surgery 6 weeks before it. I've been pushing through it for two months now and it stinks!!

Another good thing to do is start keeping a journal or symptom log. Track an many things as you can. Pain levels, sleep, what you have eaten, your activity level. Everything can be a clue. You would be shocked at what havoc something like simple Gluten can do to someone with Celiac's disease that hasn't fully manifested. No one is going to care as much about tracking this down as you so it will be up to you to sleuth it out. Keep fighting and take charge of tracking what you are doing and going through.
I hope you get the help you need soon
  #10  
Unread 02-10-2008, 06:02 PM
Dr. Google

dressedupinblue, I will research this. But yet I can not get a straight answer to which type of dr?
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