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Unread 02-10-2008, 06:24 PM
Dr. Google

Dear Perceptionist,

Please know that you are truly not alone in your suffering!! I too have fibro and have it bad. My body has been sent into one ugly tailspin and as my doc put it, a major inflammatory response to them being in the same area twice! Nope, I did not know what the outcome would be as far as side effects of the surgery or if my quality of life would get better. I did trade some aches and pains for different ones, but I am trying to stay positive as I work through them.

Did you know that being agitated, aggravated or just plain stressed out can maximize the amount of pain you are dealing with regarding fibro? Did you also know that eating sugar can also intensify your pain? Also, when you have fibro your pain threshhold is way lower than someone without fibro and what may seem like a 3 to someone without fibro can be nearly and 8 or more for us with fibro.

There are days when my dh can barely touch me or just the weight of his arms around my shoulders makes me hurt. Or days when the fibro is squeezing my chest muscles and/or muscles in my back that I can barely take a breath because it hurts so badly!! But there are good days as well as bad days.

My mom has fibro, I have it, my sister has it and my daughter (who is just 18) has it. So I've got a wealth of info to share with you and others about it.

One of the things that one of the ladies above shared with you is key. You need to be getting good quality sleep. Also if you can, see an internist and get them to prescribe ambien or another sleep aid. If your body is not resting it will not heal itself as quickly as one who is getting a good 6-8 hours of sleep every night.

Sending you gentle hugs! Keep us posted on your progress.
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Unread 02-10-2008, 06:27 PM
Dr. Google

One more month and I will be able to post in the "Road LEss Traveled" I relate moe over in that thread....
Unread 02-10-2008, 06:40 PM
Dr. Google

Sweetie, I have no advice but I do want to send you a big "hug". I'm so sorry for your pain. I wish you the best of luck in finding some relief from your pain.

Vent here when you need to. I think that we all can hear your frustration and will lend you support and send you prayers and good wishes.

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Unread 02-10-2008, 06:48 PM
Dr. Google

With Fibro. do your legs have a quick jolt to them when grabbed? I can't explain but is really worse since surgery and dr's said at first it was from the weird positions they put you in during surgery, I think that is not the reason afterall.
Unread 02-10-2008, 06:53 PM
Fibro & Hips

So I was told by Doctor Google that Fibro can be found in the hips?

I have severe hip issues. Popping, clicking, etc.

But when I stand straight my right foot points out and has since birth. It killed any sports career I had ever wanted to have. Running is not good for me. It pops and clicks with every step but when I was younger the dpctors told my mother, it was nothing to be worried about.

So can Fibro be found in the hip or is Fibro more an all over thing? The internet says it is more or less a psychological induced syndrome and not an actual explaination for muscles pain, stiffnes, and such.

The internet is art but sometimes it can be a picasso.
Unread 02-10-2008, 07:06 PM
Dr. Google

I'm very sorry for your pain. I wish I knew something to help you. You're in my prayers.
Unread 02-10-2008, 07:19 PM
Dr. Google

Sounds like you need a pain specialist - often hospitals have linked pain services - surprisingly they are usually run by a Dr of pharmacy (PharmD) they have a much better grasp of the physiology and chemistry of chronic and acute pain...they also have pain management and coping skills as well as support in getting your medical conditions treated.

Unfortunately no matter how good the surgeon there are always things that happen without warning, now you have the task of either getting solid answers from your doc on a plan or find one who will...not easy but definitely possible.
I am concerned with the amount of tylenol you are taking - 4 grams (8 tabs extra strength) is the high limit for 24 hours- it is very hard on your liver and will deplete your body of certain antioxidants that only your liver can produce... all the more reason for you to be seeing a certified pain specialist - to be honest I work with surgeons and I find they are very limited in their pain management skills!!
The suggestions about rest and dietary sources are very important-much research is being done on how our diet has depleted our bodies of essential protiens and nutrients (as a result of all the processed foods) the incidence of celiac disease and food allergies and the life altering syndromes such as fibromyalgia and chronic fatigue syndrome have increased by astounding rates in North America... The journalling may be very helpful in identifying events in your illness/pain... sounds like you are being very proactive in your health - sometimes when the frustration builds the trust goes and you are much better served by finding a new physician.... if you have any friends or family in the medical field sometimes they can give you insider tips on the bests docs to talk to...

Good luck and many hugs to you on what has been a horrendous journey...I am only 5 weeks post and from the hyster point of veiw that stuff is great but somehow I gained 2 herniated lumbar disks?????!!!?!? so I understand the frustration of -"in for one thing got another" and am working on the pain stuff myself...hang in there!

Trish,39 daVinci TLH BSO, lysis of adhesions adenomyosis, fibroids, atypia.
Unread 02-10-2008, 08:02 PM
Dr. Google

Fibro is all over, but particularly bad at specific trigger or tender points
Unread 02-11-2008, 07:34 AM
Dr. Google

I experience fibro pain in and through the entire hip/pelvic region. It will be a test through the next few months to see if having the endo excised that my pain in that particular area decreases.

As far as legs go...my legs spasm or jerk from time to time, especially at night when I am trying to quiet down before bedtime or am trying to fall asleep.

My internist (family doc) prescribed tramadol for me since I cannot take heavy narcotics or anything with codeine in them. I take two 50 mg. tablets at bedtime and I usually can get a good night's rest. Otherwise, I have ambien as well.

FYI, my main tender points are hips/pelvis, chest and upper back. From time to time my lower back as well.

Seriously consider writing down all of the areas that are affecting you with pain. It was my chiropractor that did a pressure point test and diagnosed me with fibro. I took that info to my internist and since I had already been through a battery of other tests that came up inconclusive, she agreed with the DX because of my family history.

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