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Four Weeks Post-op & life is a mess :( (Updated April 12) Four Weeks Post-op & life is a mess :( (Updated April 12)

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  #1  
Unread 03-27-2008, 03:07 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

I had my surgery four weeks ago. I'm healing nicely and every day seems to be a little better then the last. My pathology report came back negative for cancer, which was a huge relief. Unfortunately I didn't even get to enjoy that news because yesterday my husband went in for an MRI due to some headaches and bad symptoms he's been been suffering with since September. Turns out that he has a brain tumor. I am just in shock and so profoundly sad that I just don't know what to do with myself. My emotions are already a mess from my surgery and now this! We meet with a neurologist tomorrow to discuss our next steps. More then likely he will be going in for surgery next week sometime. Now the tables are turned and I need to step up and take care of him. I'm just so devastated right now and I don't know where to turn. I should also mention that his mom was just diagnosed with brain cancer in January and has little time left to live according to her doctors. Why does life have to be so hard all at once? Thanks for listening.
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  #2  
Unread 03-27-2008, 03:26 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

you are going through so much..i'm so sorry. i pray that your husband gets good news at the dr's
  #3  
Unread 03-27-2008, 04:09 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

My thoughts, prayers, and hugs are with you. Much strength and comfort to you and your family and you and your DH face this new challenge.
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  #4  
Unread 03-27-2008, 04:10 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

Sending many prayers your way!! I am very sorry that you have so much on your plate right now. Prayers that God will make you stronger each day and give you the strength that you need to help take care of your husband. But mostly that you will receive some positive news about your husband from the dr. HUGS!

Did you have your ovaries removed also? If you kept your ovaries many times they go into shock for a while after surgery which can make you feel like you are on an emotional roller coaster. The reason I am mentioning this is that if you did keep your ovaries you might want to talk to your dr. about putting you on a small dose of hormones to get you through until your ovaries kick in. It might help with your emotions a little. Just a thought.
  #5  
Unread 03-27-2008, 04:11 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

Hi Wishonastar,

I am so sorry too.


When life hands us lemons...instead of lemonade...it can feel like the lemons are being thrown at us sometimes. So you just stay strong!!

Like hysterectomies...other surgery types are keeping up with all the new medical science. It sounds like you and your DH are getting good sound medical advise so far. You also live in CA...where I used to live...and CA has some really great Drs and good hospitals.

I just say...remember Elizabeth Taylor. She had brain surgery over ten years ago for a brain tumor and she is in her mid-70's now. So...brain tumors can be operated on. Just wait to talk to your neurologist.

Just keep the faith and we Hyster Sisters will put your DH in our prayers.

Sending best wishes~

Mary
  #6  
Unread 03-27-2008, 04:11 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

I'm so sorry to hear that you're having to endure all of this at once. I had a brain tumor removed in 2004 (benign, thank goodness!) so I know how scary all of this is. I hope everything goes well for your husband!
  #7  
Unread 03-27-2008, 04:13 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

wishonastar:

My thoughts and prayers are with you and your DH during this very difficult time.

BIG s,
  #8  
Unread 03-27-2008, 05:44 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

Dear Wishonastar,

I wish I was there to give you a hug right now.

As it is, my prayers are winging your way. May you, your husband and your family receive all the support and love you need right now. And also the peace to allow God to work his plan for all of you.

Also remember to give yourself time to rest. You are still recovering and you don't want any setbacks now. We sometimes forget to care for ourselves as well as the others around us.


Hugs,
  #9  
Unread 03-27-2008, 06:40 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

Thanks so much for all of your kind words. I know that my story was a bit off of the traditional "Hystersisters" path, but I really just needed to talk (so thanks for listening). HOPEFORPEACE~ you had asked if I had my ovaries removed, and the answer would be yes. I had one removed back in September of 07' and the other one when I had my hysterectomy four weeks ago. I have been on estradiol since one week after my surgery and it seems to be helping some. KATSME57~ You mentioned that you had a brain tumor removed. How did that go? What is the recovery time for something like this? Thank goodness your was benign! At this point in time we believe that his is benign as well, thank God! I just feel so overwhelmed with all this heavy stuff in our lives right now. I feel that I am a strong person, but even superwoman has her limits. I know I have to think positive and use all my energy to do as much research on this as possible right now, just like I did before I had my hysterectomy. After all, knowledge is power, right? Thanks again for listening and I'll update as I know more for anybody that's interested.
  #10  
Unread 03-27-2008, 08:19 PM
Four Weeks Post-op & life is a mess :( (Updated April 12)

I had two neurosurgeons tell me they couldn't remove it because it was too close to the brain stem. The third one I went to said he could get it out. When I came to in recovery, I was more coherant and in less pain than when I had the hysterectomy. I spent the night in neuro intensive care, and was moved to a regular room the next day after I had an MRI that showed there was no bleeding. I spent one night in the room and was released the next day.

The fatigue was the biggest issue with recovery. I had no problems moving around, and there was not that much pain. I had to take a heavy duty steroid to prevent swelling for several days. I have had some short term memory loss, but nothing really to speak about. I had double vision for a couple of months that may have been due to a nerve or muscle being nicked during surgery, but that returned to normal without any problems. The tumor was diagnosed as a low grade glioma.

The surgical site healed quickly. I had to wait a few days before I could wash my hair (yuk!) but there was very little swelling. I was back to work in about 4 weeks. The bouts of fatigue would come and go for several months.

Comparing the two surgeries, the pain and physical trauma was much worse for the hysterectomy, but the fatigue was a little worse for the brain surgery. But it was not at all debilitating.

I hope this helps some. Brain tumor are alot more common than you'd like to think. I'll keep my fingers crossed that your huband's is benign!
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