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hysterectomy for adenomyosis hysterectomy for adenomyosis

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Unread 04-10-2008, 02:13 PM
Unhappy - hysterectomy for adenomyosis hysterectomy for adenomyosis

Hello ladies,
I am new and have just recently had a lap where I was diagnosed with endometriosis and what my doctor believes to be adenomyosis . He is scheduling an MRI to check out the uterus although everything I read says it can't really positively detect adenomyosis. I have all the classic symptoms of adenomyosis and with everything I'm going through I feel like lets just get the uterus out so I can get on with my life. He did suggest the hysterectomy also and since I hate MRIs (I'm extremely claustraphobic) I'm wondering if I should even bother with it. Has anyone else gone through this and had the hysterectomy? What was your outcome? This is all so confusing to me??!!!
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Unread 04-10-2008, 02:40 PM
hysterectomy for adenomyosis

i too was diagnosed with andomyosis, back in 1996. i had a LAVH in 2003 i was told that there was no other choice but the hyst, since i had endo,andomyosis,fibroids i did go ahead and have the hyst.at first the endo pain went away to an extent,but never really went away fully!!!
it's now 2008 and i'm seeing a endo specialist the end of this month for pain that has been there from the day of the surgery,but then again i have had many other surgeries since the hyst..endometreosis can come back EVEN after a hyst! please hang in there and good luck
Unread 04-14-2008, 08:57 AM
hysterectomy for adenomyosis


My personal opinion is that we should all understand exactly why a test is ordered before we undergo it. If I were you I would call my and explain your concerns and ask again why the MRI is necessary.

Hope you are feeling better soon!
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Unread 04-16-2008, 11:45 PM
hysterectomy for adenomyosis

A MRI cannot always detect adeno, quite often it can only be confirmed at pathology. I have endo as well as suspected adeno and am looking at other options now with an endocrinologist since the hospital cancelled my hyster that was to be in 4 weeks. I am frustrated but also grateful for the care being put into my case. One option I was told about would be just ovary removal as this will silence the endo and adeno, perhaps seeing a specialist to learn about all possble options and outcomes will help you make the best decision.
Unread 04-17-2008, 01:47 PM
hysterectomy for adenomyosis

Originally Posted by deebee123
I hate MRIs (I'm extremely claustraphobic) I'm wondering if I should even bother with it.
On the issue of an MRI, I am very claustraphobic but have to have MRI's of my head and neck periodically. My doctor orders sedation medications for me to take prior to the MRI and I also have them done in an open unit -- which is not so open if the scan is of your head and neck! So if you do decide to have an MRI, talk to your doctor about sedation medications and/or if you can have the scan while asleep.

I have read that MRI's can be effective for diagnosing adenomyosis and I have read that adeno is only diagnosed with pathology after a hysterectomy. So I would suggest talking over the pros and cons with your doctor and possibly getting a second opinion before going any farther with testing and surgery.

We do have many Endometriosis and Adenomyosis Resources you might want to read through for more information regarding both conditions! s
Unread 04-18-2008, 08:27 AM
hysterectomy for adenomyosis

Thank you for the info and advice. I actually did call his office and he prescribed Lorazepam for me which I did use before. I still get claustraphobic but am hoping that since the MRI is of my abdomen maybe I'll go in feet first ??? That would make things much easier. My surgeon did tell me that the MRI isn't always definitive for adeno but he thought it was a reasonable first step since I'm considering a hysterectomy. Thanks again.
Unread 04-18-2008, 08:35 AM
Hyster for adenomyosis

I was diagnosed with adenomyosis and just had a TAH 5 days ago. My doc said this is the only treatment. My adenomyosis was seen on laparoscopy, but I think the only definitive dx is by pathology after hyster. My surgery went okay. Healing, I have learned, will take a little time. I guess I was crazy to assume I'd be back to myself in a few days. It's improving every day though. Hope this helps. Let me know any questions!
Unread 04-18-2008, 10:08 AM
hysterectomy for adenomyosis

I hope your healing up well? Take it easy and give yourself plenty of time. My surgeon also said that the way to treat adenomyosis is to remove the uterus but the only way to be sure it is adenomyosis is like you said by the pathology. When I had my lap for the endo that is when he said that I have adenomyosis by the laparoscopy because it is enlarged and "boggy". I guess my dilemma is, if they can't say for sure whether or not it's adeno by the MRI then why have the MRI? If the report comes back inconclusive wouldn't I probably have the hysterectomy anyways since he is pretty sure it's adenomyosis and all my symptoms point to that?
Unread 04-18-2008, 03:25 PM
hysterectomy for adenomyosis

I guess I sort of agree with you, the MRI seems pointless especially since you've already had the lap. Especially if the whole MRI thing scares you. But it's ultimately your decision. My surgeon said the same thing about hyster being the only way to treat adeno. And he used some of the same words for my uterus, "boggy" and enlarged. He actually told me it was like a nerf ball. Go figure. I'm now several days post op and feel better every day, but I'm so very swollen. Let me know how things go. I'll keep you in my prayers
Unread 04-22-2008, 07:43 AM
Smile - hysterectomy for adenomyosis hysterectomy for adenomyosis

I decided to have the MRI. I took the ativan and they were able to have me go in feet first which made a world of difference. Now I'm just waiting on the results. One day at a time. Hope you're healing up okay?

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