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Recovering from adhesion surgery Recovering from adhesion surgery

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Unread 04-18-2008, 01:46 AM
Recovering from adhesion surgery

Last April 18th, 2007, I had a LAVH. There was nothing "normal" a/b what my GYN found &, instead of the surgery lasting 2 1/2 hours, it was over 4 1/2 hours.

Every visit back to my GYN, I told him that it still hurt, I still can't bend, I still can't lift my toddler, I still can't make love to my husband. And, every visit, he would tell me to wait 2 months.

10 months after my LAVH, I requested a CT, to rule out any issues that can be seen. Since adhesions can't be seen by a CT scan, it came up clear. My GYN's initial solution for my pain is to put me on birth control (I had my left ovary but, nothing else). I told him that I knew my left ovary was healthy. My problem was on my right side &, unless birth control gets rid of adhesions, there was only one other viable option for my problem: another surgery.

So, Mar. 17, 2008 I had diagnostic laparoscopic surgery. My GYN found a large mass of adhesions on my right side, binding my lower right colon & cinching up the lower right part of my bladder.

I am still experiencing pain from the surgery, even though I was on bedrest for almost 2 weeks straight. With the exception of using the bathroom or taking a shower, I stayed put. So technically, I should be feeling better. I'm not. I'm still taking pain meds daily, still taking it easy, & still wondering when I'm going to start feeling better.

My GYN tells me to give my body time to heal. He said that after I had my LAVH too.

I'm trying to be optimistic but, after spending over 2 years in severe pain &, 2's straining & frustrating.

I'm so tired of being in pain. I'm tired of going to doctors, waiting in offices, & taking medicine to just get through the day. I'm tired of not being able to play like I used to with my 3 young children. I'm tired of not being able to make love to my husband.

It's exhausting to live like this. What else can I do???

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Unread 04-18-2008, 03:03 PM
Recovering from adhesion surgery

Blue Morph,
I'm sorry you're still having pain. I can relate to being tired of it. It's been my experience that with each additional surgery I've had, it takes me longer to recover. Sounds like your gyn did alot of work, it may take some more time to start to feel better.

Unread 04-18-2008, 06:23 PM
Recovering from adhesion surgery

I am sorry you are still hurting and feeling so weary. My last surgery for endometriosis excision and lysis of adhesions wiped me out far more than I thought it would! Even though I had complications with my hysterectomy, the pain and weariness from this last surgery was worse than my hysterectomy.

Give your body some time to heal. Since you have been in pain for so long it may take your body awhile to recover completely. Stay in contact with your doctor and get all the rest you can.

I know it is hard and frustrating and I hope you start feeling better soon!

in there! s
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Unread 05-07-2008, 04:47 PM
Recoverig from adhesion surgery....

I completely understand your frustration. I too had surgery to remove adhesions several years ago. It was frustrating for me when the pain didn't go away. It was less than it had been prior to surgery but was still there. Every time I went for a post op check up I was told by my GYN to give it more time. After 3 months my GYN decided that my adhesions had returned and that my only option was to live with the pain. Yes, I could have opted for another surgery but that would only cause more scar tissue and the cycle would most likely continue. So I have been in pain since. I take Lortab 10mg every 4 hours and have been on that regimine for years. I have tried long acting pain medication such as the duragesic patch and Avinza but the side effects were too much or the cost was too expensive.
I have just learned to live with it. At times the pain is severe and I can feel that I have pulled some of the adhesions apart. But for the most part it is bearable.
I honestly hope your situation turns out that you just need more time to heal. It is hard to live with chronic pain. It can be done, but it is hard to do.
Unread 05-07-2008, 07:38 PM
Recovering from adhesion surgery

Blue Morph and want2bpainfree, thanks for sharing your stories. You both describe exactly what I fear, which is that even after surgery, I'm still not going to be pain free. I'm supposed to give my doctor my decision on whether to go forward with a diagnostic laparoscopy tomorrow, and I have to admit that I just can't decide. On the one hand, I really would like to know if there is a legitimate reason for the amount of pain that I am in, but I also don't want to go all through the surgery and recovery again (yes, this would be #3 in a year) only to return once again 4 months later in the same condition. I admire your ability to cope with the pain, want2bpainfree. Blue morph, I hope you will be out of pain soon. It is exhausting to live like this!
Unread 05-08-2008, 11:58 PM
Taking Control

There is really no point in letting fear control your decision. Every person, situation, & surgery is different. My story is similar to other people's but, it is still my own. I have decided that no matter the outcome, no matter what the future may hold, I will still go on &, do what it takes to survive. Besides, my family needs me to be there for them.
Unread 05-09-2008, 10:30 AM
Recovering from adhesion surgery

Well, it isn't just the fear of never being pain free, it is also the fear of having to do this for the 3rd time this year. I guess after believing that life would improve after the first 2 and then being disappointed, I don't really have any hope that this is going to improve things either. If it doesn't improve, I just don't see how I will ever be able to face my doctor again and that makes me sad because I really like and trust him. I can't keep coming back every 4 months after surgery with complaints and I certainly can't keep having surgeries every 6 months.

Blue Morph and want2bpainfree, I admire that you are both dealing with the pain so bravely.
Unread 05-09-2008, 09:55 PM
Waiting it out....a lot

I've had 3 surgeries in the past 2 yrs. The first was an emergency Appendectomy May 28, 2006 (it was then that the Dr. originally discovered blood-filled clots on my right ovary & adhesions from my 3 C-Sections). The second was an LAVH Apr. 18, 2007 (my right ovary, right tubes, cervix, & uterus, + a ton of heavy adhesions were removed & lasered off). The third was a diagnostic laparoscopic surgery Mar. 17, 2008 (adhesions were found & removed w/ a scapel this time + he filled salene inside to help reduce the chance of adhesions reforming).
I wanted to get treated for my issues surgically a whole lot sooner than the military (@ the time, my husband was Active Navy) would allow me to. I had no choice but to wait. They told me for each time that I asked them to proactively treat my problems, they told me to just "be patient", "wait for the body to heal", "give it time", etc.
Each time, I couldn't believe it. It got to the point where I was verbally threatening them w/ legal action, demotion, or reporting to other agencies/people due to their behaviors. There was some circumstances where I had to bring a family member with, just to remind the Doctors/Specialists of what their job was, how to do it, how to treat me as a human being, & what to prescribe to make me feel better.
How sad is that???
Most of the time, all I could think a/b was: I don't have time for this kind of thing....I have a family to take care of.
I know that the LAVH alone can take over a year to fully recover. But, I also know my body &, there's only so much that a body can take. My most recent surgery was cinching up my lower right colon. If my Dr. would've waiting another 2 months (like he originally suggested), my colon would've been closed completely (which would've killed me, if left untreated). *sigh*
I think the thing that hurt me the most, was when I first came to the Doctors & Specialists &, none of them believed me. No one would listen. Everyone dismissed me. "Livid" wouldn't even begin to express how I felt.
But, no matter what they said, did/didn't do, or tested/screened me for, I remained ever-vigilent in receiving the kind of care that I needed.
Anyways, keep your chin up &, remember there is only 1 you &, you have only one life. Love yourself, live to love, & love to live.
Unread 06-11-2008, 11:06 AM
Recovering from adhesion surgery

I did have the laparoscopy to take down adhesions. I'm 5 days out now.

I just wanted to see how you both were doing. Are you still in pain or did that finally go away?
Unread 06-13-2008, 11:43 PM
Almost 3 months out from Diagnostic Laparoscopic

Thought I'd drop by &, give a quick update.
Just before my surgery, my GYN diagnosed me w/ something he called "adhesive disease". And, since I'm still in a considerable amount of pain, I don't doubt it.
But, now my husband is out of the Navy &, I have DSHS covering medical ins. & food stamps for me & my children. My husband & I have been separated (unofficially) since Apr. 21st. The way things have been going, I will be filing for legal separation this coming Monday.
Besides still being in a lot of pain (it's not improved &, continues to worsen), I'm unemployed, & my husband isn't making much @ his job.
I'm sure this is way much more info. than I'm supposed to share here but, I'm going through a very rough time &, I could use the support.
Thank you for listening.

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