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Adhesion Surgeon or Specialist????? Adhesion Surgeon or Specialist?????

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  #1  
Unread 04-27-2008, 10:47 PM
Adhesion Surgeon or Specialist?????

Are there adhesion specialist or adhesion surgeons out there? I didnt know if I should go to a regular surgeon or if there are specialist for this. I'm sick of surgeries and now I'm faced with another one . The pain from these adhesions are driving me nuts. I'm so mad that this is happening to me. I've been through enough and now
this. The last surgery the dr said he used something so the adhesions wouldnt come back but it's not 100%. Well I guess it didnt work. I've been having this pain on my left side for 6 weeks now . Had several test and gyn said it's either the endo or adhesions or both.

Thanks for any info

Sherrie
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  #2  
Unread 04-28-2008, 05:38 AM
Adhesion Surgeon or Specialist?????

I can't wait to see if anyone answers this. I too suffer from adhesions and I'm facing another major surgery from damage to other organs from the adhesions. I've seen 3 Drs. so far and "none" really seemed to think adhesions are as big of a problem as "I" think they are.
  #3  
Unread 04-28-2008, 07:16 AM
Adhesion Surgeon or Specialist?????

I have had adhesion surgery along with my other surgeries every single time they have gone in...until this last time. However, I did have a surgeon standing by to do the surgery, just in case. I have had the same surgeon for the past several adhesion surgeries, and trust him to do the job right. He is an Gastroenterologist (sp?). I lucked across him when I had my appendectomy after going to the ER.

Whatever you do, find someone that has a good reputation, as well as someone you connect with to some degree. You will feel much better if you know you can trust them to do the job. My surgeon has a partner that I am not sure I would trust to do the job the "right" way. It's just my opinion, but it's how I feel about the situation and I tend to go with my gut (ha-ha).

We will be relocating soon and I will have to do my research all over again to find someone in our new location for each thing I need a specialist for. I'm not looking forward to it, but know I need to have these people lined up in case I need another surgery.

Good luck to you and keep us posted.
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  #4  
Unread 04-28-2008, 08:06 AM
Adhesion Surgeon or Specialist?????

Menoherone,
Are the dr's not believing your in pain or are you talkin about the severity of the surgery?

Lisa,
So have you been able to have your surgeries laproscopic? Every surgery I've had , had to be abdominal because my adhesions are so severe. All my syrgeries I've had severe adhesions. I wish they could do it laproscopic. I wonder if I can find someone that would at least try it lapro. My doctors that have done my surgeries have all said no way Thats why I was wondering if there are surgeons that are specialist in this.

Thanks for your replies

Sherrie
  #5  
Unread 04-28-2008, 09:54 AM
Adhesion Surgeon or Specialist?????

The most frustrating thing about adhesions(scar tissue) is the more surgeries you have the worse they get...there really is no proven way to get rid of them or eliminate them. Surgery for adhesion "lysis" or separation of tissues is done by general surgeons or colo-rectal surgeons...as far as I know there are no specialists because adhesions can occur wherever you have surgery on your body. Most surgeons discourage further surgeries unless the pain is unbearable or if they are causing obstruction in your bowels. I wish you luck and hope you are able to find relief from your pain...take care
  #6  
Unread 04-28-2008, 10:06 AM
Adhesion Surgeon or Specialist?????

I have my GP stumped. I have all the symptoms of divlerticulitis-the pain on the left side, the Dr. that did my colonscopy said I almost jumped off of the procedure table when he came to "that spot" in my colon. BUT I don't have any fever or chills and my bowel movements are just fine. Usually they go from one extreme to the other. I asked him if adhesions on the outside could be constricting my colon causing the divlerticulitis infection. He said "maybe but he's not sure". Adhesions don't show up on most imagining tests. The GP told me he didn't think I really needed pain pills! I can't even begin to think about going through this without something for pain. Even with pain meds...I still have pain!
After doing as much research as I can on this, most Drs. are split as to what kind of surgery is best. Some believe in Laproscopic because you aren't doing any cutting and that helps prevent further scar tissue, but some believe "going inside" is the only way to see everything clearly and remove more adhesions that may be causing the problems.
  #7  
Unread 04-28-2008, 10:17 AM
Adhesion Surgeon or Specialist?????

Even if the surgery is done laproscopically there is still cutting or cauterizing, the surgeon still has to "go inside"...it's less than open but the inside work is the same, there is less of the muscle disturbance which is what speeds the healing time. Diverticulitis (an infected diverticulus - or "pouch" off the colon wall) is totally different from adhesion obstruction both very painful. The non-infective diverticulosis can form many pockets and pouches which can be seen both with a colonoscopy or ct scan. an obstruction caused by adhesions can be seen but the actual adhesion can't be imaged. It is very tricky and frustrating because you can't see or fix an adhesion without surgery (which ultimately causes more!!) I have worked with many patients who have horrible adhesions and I know I have developed many after my surgery...just wish there was a definitive treatment!!
  #8  
Unread 04-28-2008, 01:34 PM
Adhesion Surgeon or Specialist?????

Hi bumble!

I have had adhesions along with endometriosis. My last surgery was performed by an endometriosis specialist who is also a pelvic pain specialist. He specializes in removing endo as well as lysis of adhesions. Since you have endometriosis and adhesion issues, have you considered consulting with an endometriosis specialist who might be able to check for both and take care of both problems?

Are you keeping a symptom/pain journal regarding what you are feeling? If you can show your doctors what is going on it can help them decide which treatments and medications might be best for you. I have used ReliefInsite’s online pain diary in the past and found it helpful.

When looking for the right doctor for you, ask if the doctor s/he treats many patients with adhesions and what type of treatment methods does s/he use. Does s/he treat women with endometriosis and what treatment methods are used for endo?

Because you are having left sided pain, it might be a good idea to have a gastroenterologist involved in case there is an issue with diverticulitis/osis. You probably need to have different tests done to rule out any possible conditions besides adhesions and endometriosis since those two aren't likely to show up on any test. Ovarian remnant symdrome (ORS) could be an issue and that could be seen on an ultrasound. A colonoscopy could be helpful. CT scans are generally a good idea to help see what is going on.

We have a couple other forums you might find helpful: The Road Less Traveled for those facing long term complications and Endometriosis Support for endo issues. Depending on your specific diagnoses there are other forums that might be helpful for you as well. We also have an extensive Resource Database where you might find a lot of helpful information.

I am sorry that you are hurting right now and I hope you and your doctors find out what is causing your pain soon! Stay in touch with your doctors about what is going on and ask for referrals when necessary! in there! S
  #9  
Unread 04-28-2008, 02:45 PM
Adhesion Surgeon or Specialist?????

They know I have diverticulitis. I had a colonoscopy done by a gastroenterologist and that was the results. What they don't know is if this was caused by adhesions constricting my colon. I don't have a bowel obstruction or symptoms that go with it. I have never had any problems before (with bowels or anything) and now I have the severe pain. I had my hyster because adhesions had pushed my uterus out of position and my ovaries were covered. So they know I have the adhesions but because my case of diverticulitis is not "textbook" they are wondering if it's being caused by the adhesions.
  #10  
Unread 04-28-2008, 02:52 PM
Adhesion Surgeon or Specialist?????

Thanks everyone for responding,
I did have abdominal and pelvic U/S and I just had a endoscopy and a colonoscopy done on Thursday. Everything came back ok. I'm just at a loss at what I should do. It's a vicious cycle with the endo and adhesions. I've also had the cystoscopy. I think thats what its called where they look in your bladder. I'm just hoping it goes away on its own. Yea right thats not my luck... but a girl can wish right

Sherrie
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