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Unread 05-15-2008, 12:24 AM
Nerve pain

Hi everyone. I am new to this thread but had my hyster over a year ago and have read through some pages of posts but not sure where all of you are having the nerve pain. I will try to make my story short as I sit here crying because I am in excruciating pain and woke up that way. I had pain running down my leg before I had my hysterectomy but was still able to function without pain meds. I have now been dealing with this pain for 4 years and no relief.

Well, after my hyst my leg pain got worse, it originally started in my right calf after I had started walking to lose weight. Well 6 weeks later I had to stop walking bec of the pain. I was still able to do the laundry, shop etc. but since the hyst my dh does all the laundry bec it hurts me too much to go up and down the steps and he does all the food shopping. My pain as it has gotten worse travels up into my right thigh and then into my groin and then lower back. I have tried physical therapy, acupuncture (which helped other areas of my back but not the leg pain) and the injections in my lower back (had 5 of those and none helped not even for a few minutes) they think it is a nerve but don't know which one. They did find a growth in my groin area but no one is sure what it is and in about a month will be going for another mri with contrast to see if it has grown and of course if it has I will have more surgery. Oh, I also had two c-sections and they used the same incision for the hyst. I also has the pain gets worse my incision also hurts me a lot. I am on morphine and neurontin (sp) but like now they are not helping at all. So I guess my question is did any of you have pain before your hyst or only since the hyst. I am at my wits end. My dh has fibromyalgia and rheumatoid arthritis and commutes 1 1/2 to 2 hours each way to his job. I feel like I am letting my family down with all this pain I am having, I know it was not caused by the hyst but it has gotten worse from it. Sorry I guess I just needed to vent as I am exhausted but can't sleep bec of the pain. Hugs to everyone who needs one right now.
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Unread 05-15-2008, 05:34 PM
Nerve pain

I'm so sorry you are in so much pain. I know what it's like to live like that and it is just existing not really living. I did not have pain before my hysterectomy, so I really can't identify with what you are going through. I did use pain meds for quite awhile and still must rely on them occassionally. I do hope they find the cause of your pain and can help you in some way. Have you been to a chiropractor?
Unread 05-15-2008, 09:31 PM
Nerve pain

Hi Agape, thank you for your thoughts and I am sorry you had to experience such pain. It sounds like you have it under control and that is great. Yes I have tried chiropractors, acupuncture, physical therapy injections in my back and nothing has helped. I am still hoping that someone or something can help me.
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Unread 05-17-2008, 02:15 PM
ongoing nerve pain from Hysterectomy!

Dear Poco:

No I NEVER had nerve pain in my pelvis before my Hysterectomy. BUT I sure have it now afterwards! My first nerve ablation worked great for only 3 weeks and now nothing works but nerve pills and narcotic pain pills.

My Gynecologist and the assisting surgeon damaged my inguinal nerve with the retractor they used to "spread me wide open" to rip out my Uterus and everything else!!

YES I am VERY ANGRY to them for leaving me with permanent nerve damage that CANNOT be fixed. They go on making $500.00 per hour doing surgeries to women that leave them with life-long pain and consequences and I am permanently disabled because of there screw-up. Does not seem quite fair to me? How about you?

I now have constant GOSH AWFUL Nerve pain that is 24/7!
It never goes away and will not leave me alone!
I take Lyrica for the throbbing/pulsating nerve pain and am on Oxycontin CR (controlled release) every 12 hours. With the help of these 2 pills I at least get thru the day, put it is a constant struggle! I often have thoughts of committing suicide due to my chronic pain. I have been severely depressed since my Hysterectomy and removal of my ovaries. Currently I am on my 4th try at anti-depressants since my hysterectomy. BEFORE my surgery I was on Paxil for 20 years, and totally stable with my depression. NOW I take Celexa, and hope and pray that it will work for me!

I also have had major depression because I have had chronic nerve pain for so long now, it's been 2 1/2 since my hysterectomy and getting my ovaries ripped out of my body.

I currently am not able to work and am filing for permanent disability because of chronic pain and major depression, ALL caused by my hysterectomy and my sugeons NEGLIGENCE with my surgery and leaving me with nerve damage.!

My husband is in remission from brain cancer, (luckily he was able to return to work, but prognosis is grim), I am not able to work and we are having to pay $950.00 out of pocket each month to keep our medical insurance!

The pain clinic has tried to help me with various injections, nervre ablations, etc, etc and they have not worked. I have to live with it the rest of my life! I also see a pain psychologist who helps me learn to live and try and cope with chronic pain.

If you have any questions, please post. Good luck in your quest for answers. Maybe you need to go see a Neurologist?
Unread 05-19-2008, 07:04 AM
Nerve pain

It is easy to blame... but this does not help anyone! You know you take a risk when you sign pre-op forms, you know you also take a risk if you do not seek help. Not every surgery will be successful, everybody is different and being operated on by surgeons that have given many years to train. They are human, they can have an off day, but unless your Dr. is chronically bad then buck up and get on with living.

Yes, I have pain everyday, I am blessed to not require medication to live with it.

Good luck to you!
Unread 05-20-2008, 11:07 AM
Nerve pain

(((Ladies))) If anyone every has feelings or thoughts of suicide, please call 911, go to the nearest ER, call a local hotline, etc. It is very important to seek help from a professional immediately.

Having constant, chronic pain is very difficult for many of us and depression is something many of us deal with at least from time to time if not on a constant basis. Besides finding help for the pain, it is important that we also find help for the emotional and mental side of our health issues. Some women find it helpful to have a counselor, pain management specialist, neurologist, etc. on their team. A great general practioner can also be very benefitial.

I wish each of you all the best as you continue to search for options and answers for you! S

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