After 3 months, still having pain from my second cone biopsy..... | HysterSisters
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After 3 months, still having pain from my second cone biopsy..... After 3 months, still having pain from my second cone biopsy.....

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  #1  
Unread 06-13-2008, 11:57 PM
After 3 months, still having pain from my second cone biopsy.....

I first off have to say that I have been a faithful reader for months now. This site has been amazing for my mental clarity and helping me make decisions on my future medical decisions.

Today I am reaching out because I just can't seem to get all of my questions answered.

1.) I have had the following procedures in the last year: Leep, Cone Biopsy, and recently an additional more drastic cone biopsy.
I am 27 years old, just married and haven't had children yet. I am trying to preserve what is left of my fertility (hence the multiple cone biopsy surgeries) My doctor would otherwise recommend a hysterectomy.

I had my latest cone biopsy surgery april 5th and now 3 months later I am having pain when inserting tampon's and having sex.
Has anyone had this? I have 3 more weeks until my follow up pap appointment and when calling my doctor for questions...he is continuing to say- its just sensitive from the surgery. (he is making me feel like i am crazy) Has anyone had any issues with Pain 3 months after a cone biopsy? My previous surgery didn't feel like this, and I am starting to worry that the pre-cancerous cells are starting to spread....

2.) I also wondered if anyone has decided to hold off on a hysterectomy to have the cervix amputated ( i forget what its called). Were you able to conceive and have children? Did you need to go on bed rest for the pregnancy?
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  #2  
Unread 06-14-2008, 05:36 AM
After 3 months, still having pain from my second cone biopsy.....

dear candace1483

I can so relate to your pain....i had adnecarcinoma insitu in my cervix.....and had numerous procedures constantly over a 5 year period.....including pap tests, colposcopies, biopsies, cone biopsy and LETZ procedure....i experienced long lasting pain and discomfort for months like you....i too found my dr didn't understand this and would brush me off...but it is very real pain and discomfort.......i decided to stop using tampons.....and that did help ......and hubby and i had to do some trial and error in the sex department to find ways to do this without it hurting.......i can soo relate to what you are feeling....it is very frustrating.....i too worried lots if it was spreading.

i'm sorry i cant help you in relation to your other questions because mine was diagnosed after my first child.....and after a biopsy i was then sympton free...so was able to have a 2nd child.....I remained sympton free for several years until it returned.......thats when i had the 5 years of constant procedures...before i eventually had a TVH hysterectomy

i hope i have been of some help to you and i wish you all the very best ..... let me know how things are going for you...remember you can send private messages too if you want x
  #3  
Unread 06-14-2008, 06:37 AM
After 3 months, still having pain from my second cone biopsy.....

Hugs Candice,
I'm sorry you are going through all this! You have been through so much in the past year. I hope you are able to get to the bottom of the pain soon. If your doctor is not being very helpful, perhaps you need a second opinion?

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  #4  
Unread 06-14-2008, 06:56 AM
After 3 months, still having pain from my second cone biopsy.....

hello, candice. with all the surgeries you've had on your cervix, particularly in a short period of time, i'm not surprised that healing would be taking a longer time with this last surgery. you may want to wait on the tampons and intercourse to give the cervix more time to heal. i'm sorry you've been going through all of this. i'm assuming you're seeing a gynecologic oncologist, right? if not, then you should! they're the experts. and, hopefully they've discusssed a trachelectomy with you which will preserve your ability to become pregnant.

it sounds like you have either persistent or recurring dysplasia, and do you know if you have persistent hpv infection as well? you may want to ask if your hpv infection is active during this whole time you've been having the dysplasia. the longer the hpv is active, the higher the risks for developing dysplasia/cancer. and that means you want to do everything you can to try to clear that hpv infection....eating 'right' (including the veggies that have been shown to reduce hpv infection), getting enough sleep, reducing stress, getting your vaginal health as good as possible (reducing inflammation, etc)

i would also recommend you visit the national cervical cancer coalition's website for more info: www.nccc-online.org

sending gentle hugs as you struggle with all that you're going through....
  #5  
Unread 06-14-2008, 10:13 AM
After 3 months, still having pain from my second cone biopsy.....

Welcome Candice, this site IS wonderful, isn't it!?!

I"m sorry to hear you are in so much pain. I have occasional vaginal discomfort 3 months after my cone, but I've only had the 1 (and it was on the same day as yours).

My advice is, if you aren't comfortable, get another doctor. There is no point in feeling like your doctor won't address your concerns.

((((hugs and prayers for you)))))
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