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Update: follow up doc appt :( Update: follow up doc appt :(

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  #1  
Unread 08-02-2001, 10:25 AM
Update: follow up doc appt :(

Here's the shortened version my friends,:

Let me begin my saying Doc gave me the IBS song and dance. He said that I do have a mild case of gastritis and gave me some meds to get the acid content in my stomach down. He also wants me take the Tofranil he prescribed before that I have not taken. He swore that they won't mess with my hormones. :eyes:

I asked him how IBS could cause my incision to burn, itch, and pull and hurt. He didn't have an answer for that. I mentioned adhesions to him and he said "oh, adhesions don't cause pain"

Next he asks me if I'm still taking birth control I said NO, excuse me I have had a hysterectomy. I am taking estrogen and progesterone. Than he started on the why are you taking progesterone song. I told him I didn't want to hear his tune, it has taken me 18 months to get my hormones balanced and ain't NOBODY messing with them. End of that discussion.

Here's the best part: He says I seem depressed. Well darn it wouldn't you be if you've just spent the last 18 months going to 10 different doctors, going thru zillions of test, and the whole time you just keep swelling up more and more and the pain and pulling just consistantly gets worse! You've lost 8 lbs but yet you can barely get your pants over your tummy in the morning! Than after all this you tell me IBS!!! Grrr...

I'm sorry for ranting ladies, but I am just such a mess right now. I don't know what I'm going to do. I'm just so tired. Tired of hurting, tired of being miserable, tired of my clothes not fitting, tired of struggling to get thru each day. I want to be me again! I want to enjoy life and enjoy doing things again! Oh, but the doc did say that he didn't think it was all in my head. Yippee skippy!

Guess I will take the meds, against my better judgement with the tofranil. I'll give them 30 days and if I'm still this miserable or worse, guess I will trudge back to the ob-gyn and beg and plead on bended knee. I just don't know what else to do.

Thanks for listening friends. WAHHHHHHHHH!!!!
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  #2  
Unread 08-02-2001, 12:15 PM
Update: follow up doc appt :(

Awww Kim, I am so disappointed for you here's a very big and

I just can't believe he asked if you were on birth control , doesn't anybody listen????

Would there be anything wrong with following up with the gyn now? I just know that 30 days can be an awful long time

On the topic of him saying that adhesions don't cause pain......I think we could round up a hundred or so women to tell him differently

I'm sorry sweetie......I feel exactly the same as you, the old me is in there just screaming to get out past this swelly belly and all this pain too, we just need help getting there!!

hang in there and know we are all here for ya....and I would consider calling the gyn......but that's just me....here's another for good measure!
  #3  
Unread 08-02-2001, 01:24 PM
Update: follow up doc appt :(

Oh Kim....sending you a big ! That doc needs a swift kick in the rear end! It sounds like everything I've heard too. I've been told it's IBS and that adhesions don't cause pain. Then when they were sending me for tests, the doc asked "is there any chance your pregnant?". Ummm, gee, let me think about it....NO. I could understand if it came from a tech or nurse or something....but the doc???

There's got to be a doc out there who can help us. With so many of us having such similar probs, how can they still tell us all the BS? It just isn't right.

I'm sending you good thoughts and prayers that you stumble upon the the doc who will be able to help....

Love & Hugs,
Susan
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  #4  
Unread 08-02-2001, 01:34 PM
Update: follow up doc appt :(

Thanks for the s my friends. I really need them today.

Gidge, as far as going back to the ob-gyn now, guess I could do that. But I figure if I at least give the meds a shot I can say "look, I've had all these tests, I've tried the meds and IT'S NOT WORKING!!!!" I'll take this weekend and try to think about my next step here and what will be best. Thanks for the input and suggestions, I really do appreciate it.

Susan, this really is unbelievable isn't it?????? If one more doc says IBS to me I am going to scream so loud Gidge will hear me in Canada

BTW Susan how did your appt go???

Let me know when the posse is ready to go!!!! YeeHaw!! Giddyup!
  #5  
Unread 08-02-2001, 01:49 PM
Kim

I am so very sorry - I CANNOT BELIEVE he had the nerve to say adhesions don't cause pain. He may be a doctor, but he doesn't know squat about adhesions then! Yes, they cause pain! Just ask any of us and thousands of others!

I would try the meds (I know I would hate this!) and give them a chance.... BUT, if no relief came, back to the gyn and I would start complaining! I know you are beyond irritated and I agree with your plan. Take a deep breath and plan your next move. I cannot believe they treat us like this.

I have been off the board for a while. It has become a struggle to get through the day. I am taking pain meds my gyn gave me after surgery for some relief. My entire right side is swollen and hurting. My entire body aches something awful - I just sit at my desk in tears - and my nerve problem is starting to cause me to limp. I do see my Rheumy on the 15th and it can't come fast enough. I just want to crawl in a hole. The fatigue and pain is incredible and I know you can easily relate. I am supposed to see my gyn for a check-up, so I guess a call is in order to his office. So many docs, so little time!

My last ANA was higher than the first and I knew that, but when I got a copy of the report this week just for kicks, my pattern changed from the last time. I am really starting to wonder how much worse this will get.

Anyway, sorry for the vent. I wish I had supportive, healing words for you. I would like to stand in line to kick that doctor! I sincerely hope that you will find the right person to relieve your pain. This has been one long journey for you sweetie and I know you need to find some peace and pain relief. My thoughts and prayers are with you, as always.

Love & Hugs
  #6  
Unread 08-02-2001, 02:09 PM
Dumb doctors need to be rounded up...

...and locked in a room with hystersisters traveling on The Road. And they can't leave until they show signs of comprehending our complaints... grrr

Oh Kim, I'm so very sorry for this disappointment. I know you've been counting the days until this appointment. Did you tell this woosie you've gone the IBS route with the pills and such and found no relief? I agreed with my doctor about the IBS causing my pain because I already knew I had the condition and it got much worse after the TAH. I figured I'd give these drugs a try. But it really ticks me off when they use this as the pat answer for every symptom!

That remark about adhesions not causing pain was even more ignorant than my former obgyn who said, when I asked about them after the surgery, "Oh, you'll never have to worry about adhesions." Yup. Sure thing.

I think it may be a good idea to try the meds, too...as long as they don't mess up your hormones or anything. Try to relax this weekend. We'll have the pool party at my house instead of yours, ok? You can sun yourself on the deck and I'll tend bar (I make better hysteritas than DH)!

Take care sweetie
  #7  
Unread 08-02-2001, 02:11 PM
Update: follow up doc appt :(

Kim, I just thought of the nice dr that emailed me from the International Adhesion Society site........I think he's in PA and he was very helpful....consulted with me online and said that if I gathered my records together and sent them to him he would look at them free of charge and let me know what he thought......maybe you could check him out? Let me know if you want his email.....I think you can post right on the site and he will reply too!

It's a thought, I know you need to regroup and catch your breath...I know how ya feel, just disgusted right?

I can email you the address too if you want......you are NOT crazy, you ARE in actual pain......and there WILL be a dr who will make you better.....we have to believe.....we have to believe...

...look who came to give you a it's our mascot!!
  #8  
Unread 08-02-2001, 03:06 PM
Many Hugs

Dear Kim,
I'm so sorry you had to listen to the ridiculous statements made by that doctor. I'm thinking you need to see a urogyn and discuss the adhesions. I really feel for you and understand how awful it has been for you with all these tests and trips. I was also told I had IBS symptoms by the GI doc, but at least my urogyn believes adhesions definitely do cause pain and I had no argument from him in regard to doing a lap along with my rectocele repair to see what's going on. I'm sending healing thoughts your way and pray you will soon find the right doctor who can help you.
Love, Light, Blessings
Druid
  #9  
Unread 08-02-2001, 05:13 PM
Update: follow up doc appt :(


Oh Kim how
I think your plan sounds reasonable though. Unfortunately -and it drives me we have to be good little girls and do what they tell us before anyone else will listen about the possibility of further action. I'm with you, if you try the meds for say a month, and get no relief (as you suspect) then at least you can shove that in their face
I like you get so sick of them not reading our chart properly, not paying attention to detail. We are hurting, we are living this nightmare but to them we are just another name on paper.
I'm so tired...................so sick of fighting too..............but we must go on!
I'm not sure what it's going to take for each of us to get the treatment we deserve, I personally am getting sicker by the day and as weird as it sounds I hope it continues to deteriorate like this for the next few weeks when I see the immunologist. Maybe then someone will take notice..........god I hope I can last that 3 weeks. I'm revving up nicely here and having some scary symptoms...................we need more hysterita's Kim..........I'm thinking of you all and hoping for a resolution.
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