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Cervical dysplasia Cervical dysplasia

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  #1  
Unread 07-01-2008, 05:35 PM
Cervical dysplasia

Hello all, this is my first real post on here. I just wanted to vent and ask a few questions to you knowledgeble ladies.

I am 29 years old and about 4 years ago or so was told that I had cervical dysplasia. I have had LEEP 2x and a cone biopsy once. More colposcopies and biopsies than I can count. I have been asked by two doctors if I am done having children, because they are concerned with the speed it comes back. It has been stage 2-3.

I currently have no insurance. I am currently a temp employee at our local hospital with hopes of getting hired on (great benefits!!). It has been 10 months since my last cone biopsy (once again, no insurance). I realized that I needed to get in to some dr. to get my pap to see the latest damage. I really shouldn't have waited so long. I went to Planned Parenthood. I havn't been there since I was 17yrs old. I explained everything to the doctor (and they had requested my records from my gyn, but they hadn't gotten them). I also wanted to ask her about a strange little flap of skin I recently found on my clitoral hood.

I felt that she didn't take anything I said seriously, treated me as if I was some stupid young girl. Was very rough with me, looked at my "flap" and just goes, "oh you have warts. Want me to get the acid and remove it today? If I can find the time?" I was shocked. She was so rude. I said no, not today. She told me that I most likely have multiple strains of HPV if I really have such high-grade dysplasia.

My plan had been to have them do my colposcopy and biopsy (which I am sure I will have to have) and then see what happens.

I don't know what to do anymore. She treated me so badly, and rudly but I know I will need to get this done. I don't have the money to pay out of pocket to a gyn. This whole thing has been hard enough on me without having this rude woman treating me like I am nothing. I know that the majority of their patients are very young girls, and I am not. I went to them, because I care about what is going on with my body, and want to keep up on it.

I have decided that once I do get insurance I will be getting a hyst. It will be easier than having to worry for the rest of my life that my dysplasia will some day turn to ca.

Sorry this has been so long, I just felt you were a good group of girls to vent to.

Thank you

Carly
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  #2  
Unread 07-01-2008, 06:29 PM
Cervical dysplasia

It's good that your staying on top of this condition. I understand what you have been going through, having gone through it myself. I would have told the doctor that she was too rough and rude with you. You know your condition, and she shouldn't have treated you like a nobody. Having said that, I hate to burst your bubble, but even having a hyst is not the cure all for dysplasia. I had my hyst in June '07 for the same thing , the first time it was at CIN III, Dr. told me at time I was a hairsbreath away from cancer, the second time it came back it was at CIN II-III, and I am now dealing with abnormal cells on my vaginal cuff which as I understand it is common after hyst, trama of surgery, etc.. I have to wait 6 months for repeat pap and see what happens, if cells are still there I am probably looking at laser surgery, again. The virus is still in us and can still cause havoc, but this time if there is no cervix it can cause vaginal cancer (VAIN). You will still need regular paps to make sure the virus is not active. Hopefully you get on full time at hospital, get some good insurance and get this taken care of quickly. You already know how important this is. If you have to go back to planned parenthood, maybe see if you can get different Dr. or if you have the same one tell her that you don't appreciate being treated the way you were before, that she was rude and that you care about your body and want to keep on top of this BEFORE it turns into cancer. Good luck and let us know what your pap results are when you get them back.
  #3  
Unread 07-01-2008, 09:29 PM
Cervical dysplasia

Call your local Health Dept.

Many states have medical "insurance" available to breast and cervical cancer patients. You have to meet the financial guidelines but it sounds as if you would qualify. I qualified and have received GREAT care from top notch Drs at one of Missouri's finest Cancer Centers. I as well was uninsured. I HAVE had co-payments here and there, but I have not had to face the huge financial stress of cancer treatment.....Please do not delay getting treatment because you can't afford it...you can't afford NOT to...call your Health Dept. and talk with them. They immediately told me NOT to worry about the money side of things as they would help get me cover with state insurance...they did and I was in an oncologist office within a week...Best of luck to you!!
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  #4  
Unread 07-01-2008, 09:29 PM
Cervical dysplasia

dear carly...i'm sorry you were treated like that...a doctor should be compassionate and educate you, not patronize you. can you request another doctor at the clinic? i don't know what you can do but please look after this situation. be sure this doctor knows what she's doing. i'm not familiar with your condition as to whether it warrants going to a specialist or not...hopefully someone will come along with some advice for you.

continue to stay on top of this. best of luck to you. take care and let us know how it goes.
  #5  
Unread 07-01-2008, 09:53 PM
Cervical dysplasia

  Quote:
Originally Posted by jabberjawz
Call your local Health Dept.
Excellent idea!! They should have info on any possible state/county programs for which you may qualify. If you have to go back to PP, please request a different doctor. There's no excuse for treating anyone like that, I don't care how old/young they are.

Whatever happens, please follow up on things. You're health is definitely worth it!!


monami
  #6  
Unread 07-02-2008, 11:17 AM
Cervical dysplasia

Oh, I knew that posting on here would be a good idea. I will look into my health department. It is just so frustrating. I will keep you guys posted. Thank you!!

Carly
  #7  
Unread 07-02-2008, 06:39 PM
Cervical dysplasia

hello, carly. so sorry to hear that you have recurring or persistent dysplasia and while youre trying to take care of your health, you received such a lack of respect from the doctor.

a great resource to help figure out how to get health insurance coverage is the Foundation for Health Coverage Education with a website at http://coverageforall.org/ where you can find specific programs for your state and eligibility requirements.

and as strongredhead has posted, having a hysterectomy is not a guaranteed cure to dysplasia. you'll want to stay on top of your check ups, and you may want to get hpv tests to determine whether your hpv is always active....that's an added risk for you if it is, because the longer it's active, the higher the risk of developing dysplasia/cancer.

and, your doctor gave you accurate info about having multiple strains of hpv; 'low risk' strains can cause genital warts while 'high risk' strains can cause dysplasia/cancer.

hope you're soon able to get health care so you can start the path towards being healthier! let us know how you're doing!
  #8  
Unread 07-03-2008, 07:06 AM
Cervical dysplasia

I had a hysterectomy last summer because of my recurring dysplasia. My first post hyst pap came back low grade SIL, and for the first time, I tested
positive for HPV (all my pre hyst HPV tests were negative), so I guess now my dysplasia is in my cervical cuff. Sigh.

Wishing you the best, and I am sorry that dr treated you so callously. I might consider writing a letter to the director of that clinic, and to Planned Parenthood's headquarters (or whatever). Hugs, and hang in there.
  #9  
Unread 07-03-2008, 09:01 PM
Cervical dysplasia

Carly, I'm sorry she treated you so poorly. I don't have any advice, but I can offer ((((((((((((Hugs and prayers))))))))))))))
  #10  
Unread 07-05-2008, 05:38 PM
Cervical dysplasia

Well, I havn't gotten my results, but I did contact my health department. They asked me if I had heard of PP. Apparently that was the only suggestion they could give me for assistance. We do have a program for breast/cervical issues, but you have to be between the ages of 40-65. Oh well, when I schedule the appt for my colposcopy I will request someone else.

Thank you girls for your suggestions and support!! I will let you know when I know something.

Carly
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