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breast cancer and Hysterectomy breast cancer and Hysterectomy

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Unread 07-02-2008, 12:36 PM
breast cancer and Hysterectomy

I am new here and got info from komen site. I was diagnosed with beast cancer in feb and had bilateral masectomy followed by chemo.( Have one more to go) . I was reccomended to take tomaxafin for 5 years but that risk of cervical cancer increases. I have already had a couple of leeps and abnormal paps way before breast cancer started. I would like to know if anyone here has had a preventative hyster and ooph so they would not have to take tomaxifin. Also I have appt scheduled with gyno to discuss surgery any words of advice
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Unread 07-02-2008, 01:30 PM
breast cancer and Hysterectomy

My sister had breast cancer and her receptors were negative. According to another sister's gyn, tamoxifin is not effective with negative receptors. I don't know if that is your situation but I am offering this info for what it is worth.

Due to the sister with breast cancer, my gyn recommended I take tamoxifin, even though I asked him about the negative receptor issue. I took it for four years, from the age of 50 to 54. I was supposed to take it for five years but I decided I had enough - especially the constant gas.

When I was diagnosed with endometrial cancer this year at the age of 57, I asked the gyn onc about taking the tamoxifin. His response was that I would have been at greater risk for breast cancer, if I had not taken the tamoxifin, than my risk of developing endometrial cancer because I took the tamoxifin.

My one sister - whose gyn does not think tamoxifin is warranted because of the negative receptor issue - has decided she is not going to take the tamoxifin. The sister with breast cancer recently had her 7th anniversary post cancer. She had a lumpectomy, radiation and chemo because her cancer was considered very aggressive, and she never took tamoxifin.

I hope this info helps. Best wishes to you.
Unread 07-02-2008, 01:36 PM
breast cancer and Hysterectomy

Hi I am sorry to hear of all that you have been through since Feb.I too had a cancer diagnosis and surgery in Feb.

This has been my sister had horrible periods all through her 40s they were in the midst of correcting her bleeding problem when she discovered a lump...they then put the uterus on hold and dealt with the breast ca..she had ductal late stage 1 early 2 which required a lumpectomy and then radiation to follow ...she was then put on tamoxifan ...1 year later she was diagnosed with uterine cancer papillary serous tah bso was performed we will never know if the tamx. caused her uterine..

Wishing you the best

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Unread 07-02-2008, 03:54 PM
breast cancer and Hysterectomy

My mother has had two bouts with b.c. and this last time they put her on Tamoxifin... When my gyn/onc wanted to put me on it (without knowing receptor status) she said that they told her it put her at risk for uterine cancer... to which he replied "Well , she doesn't have that to deal with anymore.." Which looking back on it now, last week , he told me I had a 50-50 chance of recurrence... Needless to say, I am not taking it.
Unread 07-03-2008, 05:59 AM
breast cancer & hysterectomy

I had estrogen receptor positive breast cancer (will be 3 years in Sep) Had chemo first, (to shrink tumor before lumpectomy, otherwise would have needed mastectomy) then lumpectomy & sentinel node removal, then radiation. Was on Tamoxifen for 2 years (no problems or side effects)Had Ultrasound to check for uterine cancer since that can be a side effect. No cancer, but had a large fibroid tumor. We decided to be proactive & I had an SAH BSO. I consider it another positive step against keeping the breast cancer from coming back. Can't take HRT, but I'm in my third week of recovery & have had no mood swings, no more night sweats & hot flashes than usual lol! I will be seeing my oncologist the end of the month to see if I will switch to an aromatase inhibitor. Good luck to you all.

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