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Rare cancer running rampant in my family Rare cancer running rampant in my family

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  #1  
Unread 10-17-2008, 02:14 PM
Rare cancer running rampant in my family

My mother's side of the family has had 4 cases of Fallopian Tube cancer diagnosed in the last year. Including my mother, who starts chemo next week.

I'm really terrified. I am only 38 and will be facing the fact that I will need a total hysto very soon. I have a consult on 11/21 with my mothers surgeon.

I'm scared about what they may find in me.

Does anyone here have experince with that type of cancer?

I will have to have my ovaries removed as part of the hysto. Should I leave the cervix or have it removed too? I am just so scared for my mother and for myself. I'm not ready to have menopause over-night.
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  #2  
Unread 10-17-2008, 02:55 PM
Scared also

I do not have any experience with that type of cancer or any type for that matter. I have been newly diagnosed with ovarian cancer and am having surgery on Nov 5th to take a look and see what's going on...All I can tell you is you've come to the right place for support! I'm sure you will get many helpful notes and loads of hugs, nice thoughts and prayers....this alone has seemed to hlep me over the last week to get my head around everything and to make it through the waiting until we know exactly what we are dealing with. If you need someone to talk to, please feel free to e-mail me...I know we will both get throught this!
  #3  
Unread 10-17-2008, 03:03 PM
Rare cancer running rampant in my family

  Quote:
Originally Posted by islandaze
I do not have any experience with that type of cancer or any type for that matter. I have been newly diagnosed with ovarian cancer and am having surgery on Nov 5th to take a look and see what's going on...All I can tell you is you've come to the right place for support! I'm sure you will get many helpful notes and loads of hugs, nice thoughts and prayers....this alone has seemed to hlep me over the last week to get my head around everything and to make it through the waiting until we know exactly what we are dealing with. If you need someone to talk to, please feel free to e-mail me...I know we will both get throught this!
Thank you for the warm wishes. This type of cancer in my family is rare, but first moves to the ovaries, which is why I will be having a hysto soon.

I will keep you in my prayers as well, and hope it is good news on the 5th.
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  #4  
Unread 10-17-2008, 05:41 PM
Rare cancer running rampant in my family

Bulldoglover,
With your strong family history of cancer in your family, I assume that the doctor you are seeing is a gyn/onc? The best advice I can give you is to consult with one and see what this doctor recommends.

I am sorry that your family has had so much of this cancer in the last year. Has to be very hard on all of you.

s
Jane
  #5  
Unread 10-18-2008, 01:16 PM
Rare cancer running rampant in my family

Hi Bulldoglover,

Along with seconding the suggestion that you be treated by a gyn/onc, may I suggest that you look into the book "Sudden Menopause" by Debbie DeAngelo. She's a nurse and educator and has been through surgical menopause herself.

She gives lots of case histories and what these individual women did to treat their menopause.

As to whether or not to keep your cervix.. if you haven't had any "bad" or "suspicious" pap smears and if you don't have HPV and are at low risk for contracting HPV... I think I would be inclined to keep it. This is my opinion only and based on what you have shared and my tiny bit of knowledge. Take it for what it's worth (not much.. lol).

This is a very personal decision and your gyn/onc may have other ideas and can guide you to the best choice for your situation.

Best of luck to you.
  #6  
Unread 10-20-2008, 06:51 AM
Rare cancer running rampant in my family

Hi,
This is a very scary time for you right now. We all know how you feel. The unknown is so much worse than the known. I had stage 3C OvCa. I had a total abd hyster but my gyne/onc left my cervix in. It has taken me 5 years to find out why. She left it in because one of the first places for recurrence is in the vaginal vault & down the vagina. She left the cervix in so if I had a recureence it would be easier to detect. I hope that helps a litte. Oh yea, my gyne/onc recommended I take Calcium with Vit D for the menopausal symptoms and I have had no problem at all. Hugs
Bertha
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