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Seeking advice - 4-1/2 weeks post-TVH Seeking advice - 4-1/2 weeks post-TVH

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  #1  
Unread 11-08-2008, 05:09 PM
Seeking advice - 4-1/2 weeks post-TVH

I am looking for some advice, I don't know what to do. Let me start by giving you a brief summary of what I have been through and what I am going through now.

I had a total vaginal hysterectomy on 10/07. Everything went well........only removed cervix and uterus as planned and was able to do this vaginally. I was out of surgery at about 11:00am. I can't begin to tell you how happy I was when I woke up to find out it was able to be done vaginally.......NO INCISION!!!!

The nurses sent my Husband home around 3:30 as they told him I would be out of it and sleeping for the rest of the day and night. About 5:00 that evening a tech came in to take my temperature. She had no idea what type of procedure I even had done. Something told her to lift up my covers and when she did, my bed was saturated in blood. She pushed the red button on the wall and within seconds my room was full of nurses, my bed was flipped so my head was down and they were holding my ankles to keep me from falling off the bed. My Doc was called and a nurse called my husband to inform him that I was being rushed into emergency surgery for severe internal bleeding. My blood pressure was 52/38. My Doc finally arrived and the took me running down the hall for surgery. I was in surgery for over 5 hours.

I asked a nurse after all was done what had happened and she told me that an artery to one of my fallopian tubes was not cauterized after my 1st surgery and this is what caused all the bleeding. My Doc however at my 1 week appointment told me that the bleeding was caused from a VERY LARGE cyst on my right ovary that ruptured. I asked him why he did not see this VERY large cyst during my 1st surgery and he told me it was not normal procedure to look at the ovaries when the planned surgery was to only remove the uterus and cervix. I found this kinda weird as I had to sign a piece of paper 30 minutes prior to my surgery stating that the plan was to only remove my uterus and cervix, HOWEVER, if he saw anything wrong with my ovaries while in there, he would have to remove them as well. I ended up having 4 blood transfusions, I now have an incision from hip bone to hip bone with 14 staples.

At my 1 week check up, I told my Doc that I was having a burning sensation when I went pee, he told me this was normal due to all the stuff I had done during surgery.....fair enough. At my 2 week check up, this burning was worse, I again told him and he again told me that with everything I went through, this was normal........I told him that I could live with that if it was getting better BUT it was getting worse and I knew my body and something was not right. He told his nurse to take a urine sample (basically to shut me up). The nurse told him that since it was a Friday afternoon, they would not get the results back until probably Tuesday (4 days later) so did he want to prescribe an antibiotic in the mean time. He said no cause he knew the results would be negative. WELL, I received a call from the nurse at the beginning of the next week telling me I had a SEVERE UTI and they were calling me in an antibiotic immediatley.

Now, at 4 1/2 weeks post-op I am experiencing a stabbing pain on my left side (still have my left ovary). This just started yesterday. When I am laying down or sitting, it is just a dull ache, however when I move my left leg, bend the slightest little bit or go to sit or stand up, I feel like someone is stabbing me with a knife.

My dilemma is, I really don't have alot of confidence in my Doc after everything and am SCARED to death to have another surgery! I don't know if I should call another OB Monday morning and see if I can get an emergency appointment (not sure if I can seeing as I would be a new patient), call my family Doc or go back to my OB??????

I am looking for any advice, opinions, similar stories, anything someone can share with me. I am so stressed and scared and don't know what to do.

Thank you to all my sisters who have been here to support me and everyone else on here........I don't know how I would have made it through this recovery without all of you!!!!!
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  #2  
Unread 11-08-2008, 06:39 PM
Seeking advice - 4-1/2 weeks post-TVH

How awful! I think I'd call my family doc (if you have confidence in him), explain what's happened and ask for a referral to another ob/gyn asap. Good luck to you, please keep us informed.
Rose
  #3  
Unread 11-08-2008, 06:53 PM
Seeking advice - 4-1/2 weeks post-TVH

((Tammy))

How horrible! That doc sounds like he might not take you seriously. Definitely call your family doc or if you have a doc referral service call them and explain.

I hope you find someone to give you the care you need and deserve!

((Hugs))
Buzylady
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  #4  
Unread 11-08-2008, 07:32 PM
Seeking advice - 4-1/2 weeks post-TVH

I would definitely seek a new doctor.
  #5  
Unread 11-08-2008, 07:44 PM
Seeking advice - 4-1/2 weeks post-TVH

yes, a new doctor. What a horrible thing to have happen - thank God the nurse found you when she did.

I wonder why you were told it was an uncauterized artery at first, then told it was a ruptured cyst? I had a cyst to rupture in 1996 but had no external bleeding - I'm not sure how big it was at the time. You should definitely ask for a copy of all you op reports and path reports also so you can get all the answers you need.

Take all the time you need to heal, especially with an incision that big. I can't remember right off - I know a LAVH uses a laprascope, does a TVH?

God Bless,
  #6  
Unread 11-08-2008, 07:49 PM
Seeking advice - 4-1/2 weeks post-TVH

  Quote:
Originally Posted by Skipper65
yes, a new doctor. What a horrible thing to have happen - thank God the nurse found you when she did.

I wonder why you were told it was an uncauterized artery at first, then told it was a ruptured cyst? I had a cyst to rupture in 1996 but had no external bleeding - I'm not sure how big it was at the time. You should definitely ask for a copy of all you op reports and path reports also so you can get all the answers you need.

Take all the time you need to heal, especially with an incision that big. I can't remember right off - I know a LAVH uses a laprascope, does a TVH?

God Bless,
I was old by a nurse it was an uncauterized artery, the Doc told me it was a ruptured cyst. I have copies of all my post-op reports but can barely uderstand what they mean!!!

What type of symptoms did you have when your cyst ruptured?
  #7  
Unread 11-08-2008, 07:59 PM
Seeking advice - 4-1/2 weeks post-TVH

Tammy - you need a new Doctor ASAP. You need complete confidence in your post op care. Unless you are educated to do so - the post ops reports might just as well be in another language.

As example - for me - I had two doctors for my surgery, one was my regular GYN and one was a specialist-oncologist GYN. The specialist had terrible bedside manners, it was difficult to get answers from him and I am a person who asks a lot of questions. So I took everything back to my GYN, who was patient and explained EVERYTHING to me. I would have been lost if it wasn't for her kind and gentle way - and she is taking care of me for all my post op visits now. (Fortunately - no cancer!).

You have to feel that you can trust your Doctor - and DON'T SETTLE FOR ANYTHING LESS! Good luck - and your pain needs investigation ASAP.
  #8  
Unread 11-08-2008, 08:05 PM
Seeking advice - 4-1/2 weeks post-TVH

  Quote:
Originally Posted by tamiland
Tammy - you need a new Doctor ASAP. You need complete confidence in your post op care. Unless you are educated to do so - the post ops reports might just as well be in another language.

As example - for me - I had two doctors for my surgery, one was my regular GYN and one was a specialist-oncologist GYN. The specialist had terrible bedside manners, it was difficult to get answers from him and I am a person who asks a lot of questions. So I took everything back to my GYN, who was patient and explained EVERYTHING to me. I would have been lost if it wasn't for her kind and gentle way - and she is taking care of me for all my post op visits now. (Fortunately - no cancer!).

You have to feel that you can trust your Doctor - and DON'T SETTLE FOR ANYTHING LESS! Good luck - and your pain needs investigation ASAP.
Thanks! I think I may have my family Doc try to interpret the reports for me, she is wonderful and explains things in a language I can understand. I know I need to see a Doc ASAP but I am sooooooooooooo scared to even go to the ER cause I am having nightmares about them taking me into surgery again and after my last experience........I just can't do it.

CONGRATS on No Cancer, that is WONDERFUL!!!!!! I see we had our surgeries the same day!!!!!
  #9  
Unread 11-30-2008, 02:40 PM
Seeking advice - 4-1/2 weeks post-TVH

This sounds scary! If I were you, if possible, go to a different doc because I had a TVH and Right ovary and my doc did say the same thing about looking at the left while "in there" and would remove it if it looked "bad". I've had a lot of trust issues with my doc, too, and if I don't get some answers that make sense at my appt. this Tuesday I'm switching docs myself. I've had a very rough road and he won't give me any clear answers. Is this normal for docs to act this way? He's very cocky to me and my family and I feel trapped so I bet you do too. I'm a nurse and he makes it seem I'm being too paranoid because I know too much of what could happen. Let me know how things go! I'll say a prayer for you and Good Luck!!
Karen
  #10  
Unread 11-30-2008, 06:36 PM
Seeking advice - 4-1/2 weeks post-TVH

I understand your fear and anger 100% (see my past recent posts). You need to talk to your family doctor or find another reputable ob/gyn covered by your insurance. I have gotten no answers to my strange MRI results or pain and live in a small area where there aren't too many docs to choose from or that are accepting new patients. I wish you the best and listen to your body!! Keep us all informed. I have decided for myself that if my pain worsens, I will just visit my local ER.
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