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I need to whine...to people who understand I need to whine...to people who understand

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Unread 08-15-2001, 08:32 PM
I need to whine...to people who understand

I posted last week about possible bowel adhesions.......I need to review my hx to lead up to my whining part of the story.

I lived in Europe for the last four years and last year returned back to the states. While overseas, I had four surgeries for Endo and all the junk that comes with that until finally had a TAH/RSO since the year before I had a LSO. I loved my doctor and keep in touch with him even today but he is in Germany.

Soooooo when last year I started having that old feeling again I made an appt with a new gyn who blew me off said I could not have endo no way because no equipment. I have been living on motrin since then. A few months ago I Knew things were getting worse and finally got a referral to see the same guy again. He said I think you have a loop of bowel twisted around something your options are 1) surgery or 2) referral to GI guy. Since I don't know this guy I told him I need to think about it and could you give me something for pain....sure he says and writes a script for vioxx. It is a NSAID. So for a week I've been taking this stuff and do not feel better. I called on Monday to ask to try something else. Today his nurse calls back and says he said no all he will do for you is surgery or referral. I told her if this is the way you treat patients than there would be no way I would allow someone like that do surgery on me. Even if I picked plan 1 or 2 it would still be several weeks before I could get help. He did not ask me anything about my hx order any type of test other than a manual exam. Which hurt pretty darn bad I might add.

So my whine is this....why do I feel like I have to prove to people I have a problem. I know I was so spoiled with my previous doctor. I sat in my car and just cried. Why is this so hard. How many types of pain meds are there that he could not have let me try something else. Just because the source of my pain is not easily visable it is like I'm making it up. I don't know what to do. I did call my insurance for a second opinion which they approved but geez I'm pretty depressed.

You all are the first group of people I can talk about this to. I feel like the response from everyone will be NOT AGAIN. Which makes me angry. I hate this.
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Unread 08-16-2001, 06:10 AM
I need to whine...to people who understand

Yeah, I know. I'm at nine months and I am tired of feeling liek things are not right. I still feel like a darn hypochondriac, so I've been changing doctors quite a bit too lately when I get the feeling they are just passing my insurance card and giving me prescriptions for...ADVIL. It is getting to the point where I have appts. now for neurological work because of my other symptoms and my chronic headaches. I think am I a borderline manic depressive now and then I wonder if I had been always like this before the operation...

As for the endometriosis, I vaguely remember reading about being able to get endometriomas on other tissues. Now I don't know if that is true. Maybe I misinterpreted (I'm sure I did), but maybe you could read up on that.

Or, as I always say, have you tried acupuncture? It sometimes helps. They put needles in for crazy hormones, pains, panic, stress, ans generalized weepiness...

Bug hugs for you,
Unread 08-16-2001, 07:03 AM
I need to whine...to people who understand

You are certainly welcome to whine here! We understand, probably more than anyone.

Yes, the endo might be back. I'm sure that Adrite and Judy will be along to tell you that. It can certainly grow on other organs and tissues. It might also be an adheasion, you never know.

Do you have a good GP? It sounds like you might be in an HMO and need to see the gatekeeper for everything. Can your GP refer you to another GYN for another opinion? You certainly need an ultrasound, that might show something. You might also consider the referal to the GI who can further test to see about your bowel.

Can you ask your Dr from Germany if there is someone near you that he knows? Or if you are pretty sure it is the endo returning, can you be referred to one of the endo specialists? I've heard good things about a couple of endo specialists in Atlanta.

Are you on HRT? That can also be a factor. Also, if you are in pain, there is no reason to withhold pain meds. Studies have shown that if the pain is real all the meds do is treat the pain - addiction is not an issue. If this is your choice, talk to your GP. Maybe he will be willing to RX pain meds until you get to a point where you are ready to make a decision. If your GP won't do that, maybe you need a different GP.

One thing that I have learned, when I need pain meds, I call my GP who really specializes in geriactrics (old people). They all have a bunch of aches and pains and he is more used to writing out Rx's for the pain meds. His partner has a different attitude. The partner specializes in sports medicine - he tells the athletes "no pain, no gain" and suggests a lot of advil, ice, heat and fewer meds. Mind you, they are both good Drs, but good at different things. Just something to consider.

I hope you get some answers. I'll be thinking of you.
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Unread 08-16-2001, 11:28 AM
I need to whine...to people who understand

Hi Robbie, sorry you are going through all this......it seems so common here on the road. I agree with the other sisters, I would go see your primary care dr (and if you don't have one, get one) for two reasons.......1) to get a prescription to relieve your pain, you are entitled, no one should have to live with pain. and 2) to get a referral to another gyn.....you are entitled to a 2nd opinion and I would tell the primary care doctor what this dr said as well.

and yes the endo certainly could've returned, I would do a search within this site, there is a ton of links on it, Adrite is our "in house specialist" on returning endo and she could tell you lots

you are not crazy, you are in pain, and deserve to get treatment...I can't believe no on ordered even an ultrasound?

That's all I can seem to get is tests, no one wants to go back in and look around for me!!!

please see your family dr ok? sending big 's your way!!
Unread 08-16-2001, 12:06 PM
I need to whine...to people who understand

I can certainly sympathize and do understand your frustration. While I didn't have endo, I have had ongoing pain and other problems for the last 18 months. I've lost count of the number of different doctor's I've been to and the number of tests I've endured. It does seem like we have to prove that we are in pain. Just how do you do that? I've tried calmly explaining and I've also tried the routine. And I'm still running in circles

Whine here all you want Robbie! We do understand.

I hope you find some relief soon.

Unread 08-16-2001, 12:15 PM
Unfortunately this is pretty common...

So many doctors are not schooled in the proper treatment of pain. One doctor I saw put it pretty plainly, "Well, if you go to a surgeon with a problem, how do you think they're going to fix it?". He spelled it out pretty clearly that there is literally NO pain management cirriculum in most med school specialties. He also said, "If cancer patients have trouble getting relief, how do you think you're going to get relief?".

He did help me by referring me to a pain clinic. They allowed me to alleviate my pain until I could make some logical decisions. Looking back...had I been referred to a pain clinic, I probably never would have had the first of ten surgeries.

I wish I could tell you that you just had a "mean 'ole doctor" and that your case is an isolated one, but it most certainly is not....and that's a sad state of affairs.

PS -- A relative of mine broke her upper arm just a few days ago and they gave her NOTHING for pain. They told her that advil should work fine. I WISH I were kidding.
Unread 08-16-2001, 04:51 PM
I need to whine...to people who understand

Hi Robbie:

God knows why we have to suffer needlessly. Why do they even have physicians if they can't help us. I have severe pain right now and can't even get a prescription for anything. They say we can understand how you feel but we can't treat you. Whats up with this. I had a total hyst. 12 years ago. I had an ultrasound in May. They found a mass in abdomen. They said it was an ovary. I have none. They said be thankful you still have one and sent me on my way. I know I have something in there. So just keep looking till you find the right dr. that will treat you with care and compassion and don't give up. Good luck and take care.

[email protected] Belinda
Unread 08-16-2001, 05:17 PM
I need to whine...to people who understand

Thanks so much everyone. I've calmed down a little I wanted to go over to the doctor and punch him in the nose. How dare he treat me or anyone else that way. My GP is a Nurse and I really don't know her very well but I have an appt for an ultrasound and to see her next week. Hopefully good things will happen from there.

I e-mailed my doctor in Europe and he gave me a phone number for a doctor about 3 hours away and he said he would call him to let him know I'll be calling. I'm willing to travel and hopefully will get it worked out.

Adrite good point about surgeons. I had an experience during my endo nightmare when my ANA came back high and I was made to see a rhumatologist. He told me I had Fibromyalgia. He did some sort of pain point thing....I told him I don't want that one too. All I need is some other chronic pain with no real cure disease. He didn't even pay attention to the fact I had grapefruit size cysts inside me which might have been the reason I was in pain? So...I guess specialists can be like the three blind men and the elephant.

I wish we all didn't have to suffer through this. I am taking 4-5 advil plus flexiril to ease my symptoms hopefully someone will help me.
Unread 08-16-2001, 05:37 PM
I need to whine...to people who understand

My heart goes out to you! I am one of many here also that suffer with pain daily, often severe. I have had to jump through hoops to find someone to provide relief I also see Pain Management Drs and they have no problem helping those who truley need it It is sad that there are so many Drs who refuse to treat documented pain! I hope the name of the Doc that was emailed to you will help Please vent or whine here anytime, it helps. Without my Sisters here I dont think I could have made it through some of the worst times of my life. My prayers will be with you....

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