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Questions for other endo patients about post-op colostomy bag Questions for other endo patients about post-op colostomy bag

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Unread 02-01-2009, 01:33 AM
Questions for other endo patients about post-op colostomy bag

Greetings! I am new, and I am having a difficult time surfing through here... I am 43 and have had trouble since I started my first period! I have had a total of 7 surgeries across the bikini line. Granny undies since I was 19! (2 C-Sections) I lost my left Tube and Ovary to a Tumor that was larger than a Grapefruit when I was only 19 and have had years and years of pain and bleeding!. Doctor said this is very risky for me because of so much Endometrioses and scar tissue. 80% chance of having a Colostomy bag afterwards. Have any of you heard of this? Thank you all!
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Unread 02-01-2009, 02:05 AM
Questions for other endo patients about post-op colostomy bag

Can you tell us more about why there is the possibility of you needing a colostomy bag after a hysterectomy?
Unread 02-01-2009, 02:57 AM
Questions for other endo patients about post-op colostomy bag

HI, my Dr. said because the endo is growing in my abdomen and I have had so many surgeries in the past that I have a lot of scar tissue and endo tissue that it is very likely attatched to my colon. I had an ultrasound internal and external and an MRI. I have had numerous treatments over the years and many scars. I bleed all the time...and terrible clotting. I have to wear two of the overnight longs with wings and also another pad across the back because the flow is so bad. He is concerned also because I am only 5 weeks out of a neck surgery where they took out 3 disks and fused them with plates and screws. DH and I was in a 55 MPH head on crash. During the Pre-Op exam, the dr. was pushing on my tummy and I came off the table in pain... ordered a pelvic, she said my uterus was enlarged and ordered tests... In 2005 my cervix was blocked my endometriosis but the PA that did my test was not concerned. I had just opened a business with my DH plus still working full time day job that I drive 90 miles each way to... basically I didn't take the time to take care of myself...
Have you heard of other women having this problem?
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Unread 02-01-2009, 07:49 AM
Questions for other endo patients about post-op colostomy bag

Hi Mysticwhispers and

this is a wonderful, informative and blessed site, glad you found us.
I would really consider getting a second and even a third opinion. there is another forum here on endometriosis, I have read many posts with women with severe endo (I was one of them) and never read one that even came close to needing a colostomy bag, pls, do lots of research and get as many doctors opinion you can get.
pls, let us know what your doctors say....I will keep you in my prayers
Unread 02-01-2009, 09:04 AM
Questions for other endo patients about post-op colostomy bag


I had stage 4 endo, cysts and swollen fallopian tubes. My bowel, bladder and ovaries were cemented to my uterus. I lost my left ovary because while they were trying to separate it from the mess, I started to bleed. But they were able to disengage my bladder and bowel without further complications. And I did not have a bowel prep before surgery. The operation took 5 hours instead of the scheduled 1.5, but the only problem I have now is the fatigue from the iron loss and I cannot feel the urge to pee. Small price to pay to be painfree for the first time in more than 20 years.

It can be done without a colostomy in most cases. Maybe finding a doctor who has experience with Endo might be found to give you a second opinion?

Good luck.

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