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Questions for other endo patients about post-op colostomy bag Questions for other endo patients about post-op colostomy bag

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  #1  
Unread 02-01-2009, 01:33 AM
Questions for other endo patients about post-op colostomy bag

Greetings! I am new, and I am having a difficult time surfing through here... I am 43 and have had trouble since I started my first period! I have had a total of 7 surgeries across the bikini line. Granny undies since I was 19! (2 C-Sections) I lost my left Tube and Ovary to a Tumor that was larger than a Grapefruit when I was only 19 and have had years and years of pain and bleeding!. Doctor said this is very risky for me because of so much Endometrioses and scar tissue. 80% chance of having a Colostomy bag afterwards. Have any of you heard of this? Thank you all!
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  #2  
Unread 02-01-2009, 02:05 AM
Questions for other endo patients about post-op colostomy bag

Can you tell us more about why there is the possibility of you needing a colostomy bag after a hysterectomy?
  #3  
Unread 02-01-2009, 02:57 AM
Questions for other endo patients about post-op colostomy bag

HI, my Dr. said because the endo is growing in my abdomen and I have had so many surgeries in the past that I have a lot of scar tissue and endo tissue that it is very likely attatched to my colon. I had an ultrasound internal and external and an MRI. I have had numerous treatments over the years and many scars. I bleed all the time...and terrible clotting. I have to wear two of the overnight longs with wings and also another pad across the back because the flow is so bad. He is concerned also because I am only 5 weeks out of a neck surgery where they took out 3 disks and fused them with plates and screws. DH and I was in a 55 MPH head on crash. During the Pre-Op exam, the dr. was pushing on my tummy and I came off the table in pain... ordered a pelvic, she said my uterus was enlarged and ordered tests... In 2005 my cervix was blocked my endometriosis but the PA that did my test was not concerned. I had just opened a business with my DH plus still working full time day job that I drive 90 miles each way to... basically I didn't take the time to take care of myself...
Have you heard of other women having this problem?
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  #4  
Unread 02-01-2009, 07:49 AM
Questions for other endo patients about post-op colostomy bag

Hi Mysticwhispers and

this is a wonderful, informative and blessed site, glad you found us.
I would really consider getting a second and even a third opinion. there is another forum here on endometriosis, I have read many posts with women with severe endo (I was one of them) and never read one that even came close to needing a colostomy bag, pls, do lots of research and get as many doctors opinion you can get.
pls, let us know what your doctors say....I will keep you in my prayers
  #5  
Unread 02-01-2009, 09:04 AM
Questions for other endo patients about post-op colostomy bag

Mystic,

I had stage 4 endo, cysts and swollen fallopian tubes. My bowel, bladder and ovaries were cemented to my uterus. I lost my left ovary because while they were trying to separate it from the mess, I started to bleed. But they were able to disengage my bladder and bowel without further complications. And I did not have a bowel prep before surgery. The operation took 5 hours instead of the scheduled 1.5, but the only problem I have now is the fatigue from the iron loss and I cannot feel the urge to pee. Small price to pay to be painfree for the first time in more than 20 years.

It can be done without a colostomy in most cases. Maybe finding a doctor who has experience with Endo might be found to give you a second opinion?

Good luck.
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