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Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone? Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

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  #1  
Unread 02-12-2009, 05:57 PM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I had a vaginal hysterectomy 10 years ago and have suffered the agony of chronic pelvic pain ever since. I had been diagnosed with IC and followed the diet to the letter for years and still no relief.

I have recently researched the possability that I may have PNE - Prudendal Nerve Entrapment. I finally found a Gyno Doc who agreed to refer me to a Pelvic Pain Therapist and am hopeful that she can help me.

Is there anybody out there that has ANY information to share with me.

Thank You

Sibella
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  #2  
Unread 02-15-2009, 06:01 PM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I had a hysterectomy 3 months ago and have had bladder problems since day 3. Have the feeling of needing to pee all the time. After all the bladder testing and being on Detrol LA for 2 and 1/2 months, I found out about a pelvic floor physical therapist. I asked for a referral from my GYN, as the urolgist I went to didn't want to see me back for 6 months, and just told me I would have good days and bad days, and would have to learn to live with them. Not acceptable to me. I have been working with the physical therapist since January. Seems to be helping some. I was a little scared about going, but I have to say nothing she has done has been painful. I just recently had my pelvlis aligned, as it was out of alignment, and have started electronic stimulization of the pelvic floor to help with the urgency issues. She has also does some stretching of the muscles. They can also get some readings with a sensor they insert, to see how the pelvic floor muscles react. I would say give it a try. Not sure if the pelvlic pain therapist is the same as what I am seeing, but she is really great, and wants to help me find the answers. She said she will try everything she can to help me. I have to say it is not cured, but better than it was. So I am seeing some progress. The urologist was male and made me feel like it was bothering him. NOT!! I have a real problem. Was never a complainer about pain or problems I had, so this is real. Good luck. I hope the therapist can help you.
  #3  
Unread 02-15-2009, 09:42 PM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I was diagnosed with IC in May. I followed the IC diet for about 5 or 6 months. I also started taking Elmiron and Vistaril from the time of my diagnosis. I seem to be ab;e to eat quite a bit more than I did, so I guess the medication helped, but I’m scared to stop it to find out. I also do at home bladder instillations of “rescue cocktails”. These can provide fast relief for flare-ups.

I’ve had a quite a few pelvic floor issues ever since my surgery in December. I can’t sit due to perineum pain, it feels like glass is cutting me when I urinate with retention that requires catheterizing, and I am unable to have a BM unless it is extremely soft and even then only with excessive straining.

My Urogynecologist referred me to a Physical Therapist that specializes in pelvic floor dysfunction/rehabilitation. Basically the physical therapist told me since the doctor refused to stitch me back together after my son’s delivery 21 yrs ago (9lbs. 13oz forceps), I no longer had a complete pelvic floor, most of the natural pressure on these structures was eliminated. So not only did my pelvic organs prolapse, my perineum, muscles and fashia lost almost all muscle tone.

Fast forward to today. My newly assembled pelvic floor still isn’t capable of supporting my pelvic organs. In fact my muscles, fashia and perineum are locked in a constant state of contraction try to compensate for the lack of muscle coordination and strength normally required for the job. This is why it’s so painful to sit. My muscles aren’t relaxing to allow me to urinate without retention or have a BM without excessive strain.

I just started have physical therapy last week. I go twice a week and have quite a few exercises to do at home in-between times. I’m working on relaxing the pelvic floor to eliminate the pain with sitting and to allow me urinate and have BMs. Strengthening will come later.

Between the pressure point massage, stretching exercises all the rules on urination/defecation I’m in more pain and having more dysfunction than ever. Massaging and stretching locked muscles plain and simple HURTS. I have to put my feet on blocks while on the toilet with my feet spread out and my legs opened wide. It feels like my perineum is going to split in two. Not being allowed to strain has left me unable to pass a BM. I’m using even more laxative; sitting on the toilet a lot, and the bowel/rectal/perineum pressure is agonizing.

Good Luck and keep us posted.
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  #4  
Unread 02-16-2009, 03:46 PM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I have been to pelvic floor physical therapy and I have to say it has been wonderful. I went for the first time nearly two weeks ago. Had my consult and spent a lot of time with the pt doing different exercises. These exercises include pants off and on. She taught me how to propely do a kegal. You would be amazed at how many dr's actually teach you the incorrect way to do this - she also showed me how the stability ball can help with therapy. I am doing several strengthening exercises through the day and have been released to do exercise. I had extreme right sided pain that has slowly started to go away now due to this therapy. It was not unpleasant at all. I go back again on Friday and hope that I can continue my pt at home and gain some additional strength. I have also started loosing weight again which has me very excited.
  #5  
Unread 02-18-2009, 08:08 AM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I too have IC and pelvic floor disfunction. Prior to my hysterectomy I had been seeing a pelvic floor PT and she was wonderful! I always looked forward to my appointments as they helped tremendously. I have issues with my muscles always being tight so urination and BM's are very difficult. I also have a lot of pain on my right side and hurts to sit.

The PT would do internal and external work. She would also massage my whole abdominal area and intestines which helped moved my bowels.

I'm hoping to speak with my Gyne to get reffered back to her now that I'm done with the hyst. My pelvic floor muscles and bladder/bowels are spasiming terribly from healing and causing me quite a bit of pain.

Anyway, I hope you go and I hope it helps It's worth a shot!!
  #6  
Unread 02-18-2009, 09:16 AM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I'm still in a world of pain. I have had 1 session with The PT last week and have been trying to master the art of doing a Kegal but I now find that doing them brings on more pelvic pain.

The only time I get relief is when I get up in the morning, just as soon as I sit down the pain is back. Burning in the bladder and strong, throbbing and pain in vag. Pretty much pain in the whole pelvic area which has gotten much worse since the surgery 3 weeks ago for a rotator cuff injury and little did I know that they would sit me up in a chair (standard procedure) for over an hour while doing the surgery. The muscles in my pelvic area must have been compromised, stretched/relocated or ?

I contacted Jill at the IC Network – she is also an IC sufferer and developed the website.

She was WONDERFUL and provided me with a wealth of information – It was Jill that told me that I may have Prudendal Nerve Entrapment. I had never heard of it and neither had the 3 Urologists and 4 GP’s that I have seen over the last 10 years. So I hit the internet and download anything I could find on PNE.

Treatment for this painful affliction is relatively new area of therapy and finding a therapist that is a specialist can be frustrating. I was lucky to find one close to where I live and have had 1 treatment so far. After a 1 one hour evaluation I was told that I had massive scarring between my pubic bone and belly button and more beneath my tail bone as well as a misaligned pelvic bone. So 3 C-sections, 1 tummy tuck and a hysterectomy have left me in this fine mess.

I am desperately hoping that I will find relief from therapy, I can’t stay on Vicodan forever and I would hate to have to resort to surgery.

I hope my experience can help you and I appreciate all the information I have been getting

Thanks So Very Much

Sibella
  #7  
Unread 02-18-2009, 03:03 PM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

Sibella,
The IC Network is wonderful!! I never heard of Nerve Entrapment either. They have talked to me about doing something with my sacral nerves... I wish in a way that I would have had that done with the hysto. I am in soooo much pain now and the pressure is much worse after having everything removed! I'm just hoping over time it will calm down or I will have to find other alternatives.

Sorry to hear that PT hurt so much! My PF muscles are so tense that My PT doesn't want me to kegel so much as to learn to relax them.... it takes me forever to relax all the way down after a kegel. Crazy!
  #8  
Unread 02-18-2009, 03:45 PM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I too have tense pelvic floor muscles. They never go to the totally relaxed state. My PT is working on stretching those muscles. It was amazing, after she did a stretch, she inserted the probe that monitors on her computer screen and they were completely relaxed. Then I did a kegal and relaxed and they were still tightened a little not totally relaxed. I have had the bladder urge since surgery. She is doing the stretches and electronic stimulization and seems to be helping some. Keeping my bowels moving every day has been hard too, but I find if they move daily the bladder also feels better. Never was so aware of bodily functions and how we take them for granted.
  #9  
Unread 03-05-2009, 08:34 AM
Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

I had a TAH/BSO in 3/5/2007. The day of surgery I had violent vomiting the hospital didn't stop four hours The pressure of vomiting ruptured my insicion, caused echymosis, and severe swelling, large hematoma. Now two years later, I am still in severe pain that has only worsened. I've gone back to doctors repeatedly and they tell me it's all in my head, that I'm just too sensitive, that the pain is normal and will go away, or that it's caused by depression, even though I am NOT depressed. The doctors dismiss me as someone who can't get over the fact that I don't have a uterus anymore. Which is not true. I was so glad to get rid of my painful uterus that had severe adenomyosis and heavy bleeding, etc. Anyway, it's been hard to find help for my severe pelvic pain. I had to go to 5 gynecologists, a pain management doctor, and three physical therapy places. Finally, one great gynocologist told me that there was only one Physical therapy place in my area that truly knew how to treat women with pelvic pain. I went to this new PT place and they diagnosed my problem on the first visit. They did an hour long internal and external exam and felt the entire area. Some of the many issues include my bladder is stuck to the back wall of vagina, lymph nodes are trapped in internal incisions, muscle spasms, cut abdominal muscles have stopped working. My abdominal inicision is being pulled toward my back becasue it's stuck to my vagina front wall. There are knots of scar tissue. Bascially, my pelvic organs are glued together. It has been so painful and disbabling for two years and the doctors just blew me off as though I was nuts! I want to avoid more surgery. The physical therapist is a woman and very nice and she will work to stretch and try to release the pulling, etc. My surgeon who did the TAH/BSO really let me down. Hang in there. It was so much work to swim up stream, getting beat up by the healthcare system that doesn't listen to women, but finally I learned of the type of PT that specializes in our pelvic issues. The two PTs I went to in the past were completely unhelpful and thought all I needed was better posture (I'm bent over due to pain) and to do leg lifts! Not. Please don't listen to doctors who tell you there's nothing you can do and that you have to live the rest of your life in pain. Your pain is real and needs treatment. Your doctors are wrong. Doctors make mistakes all the time. I was consented for a LAVH but my gyno/surgeon breached my consent and did an old-fashione injurious TAH for no medical reason or patient safety reason. My life has been a nightmare ever since. So much physical pain. But don't give up hope. Press on and try to find a good gyno and pelvic pain PT.
  #10  
Unread 03-05-2009, 10:04 AM
Thumbs up - Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone? Ouch!! Pelvic Pain--Pelvic Physical Therapy Help Anyone?

Thank you Beller5 - I will take a copy of your letter with me to show my PT. She is really working hard to break down the scar tissue between my public bone and belly button. My Gyno Doc is FINALLY listening to me and is sending me to a Neurologist and I will be having an ultra sound. If asfter 6 weeks the therapy doesn't work I will be having a CAT scan and an MRI. She is also going to do Laposcope on the area on my incision. I would not at all be surprised if I have some of the same issues that you do!

I have suffered with this for almost 10 years and the pain is really getting unbearable, so I am taking 2 months off work to try to investigate, solve and hopefully recover!

Thanks you once again, I really appreciate you telling me about your experiences and wish you all the very best in solving your road to a pain free life.

Sibella
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