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Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!! Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

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  #1  
Unread 03-05-2009, 02:48 PM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

Hello ladies,

I am so glad that I have found this site! I recently posted on the pre-op forum and was referred here...I am new to forums etc. and didn't notice the cancer section at first.

My surgery date is fast approaching and I am so scared! Here is my story:

I first noticed light post-coital bleeding in September 2008. I didn't really think much of it at first and as I was going away on holidays for most of October, I decided to wait and see. I got back at the end of October and was still having the same problem. I booked a pap test right away. (I am diligent about my yearly tests and my last one had been only 11 months prior....and always had been clear). The results came back as adenocarcinoma in situ. I had a colposcopy done on December 22 which confirmed this and then a cone biopsy done on January 9. I got the results from the cone that it is cervical cancer and it has invaded 3mm. I am now scheduled for a total abdominal hysterectomy including the lymph nodes for March 18.

I am very concerned as I still don't understand how it got that far so fast. The Dr. could not give me an answer and I keep thinking it is spreading every minute!

I have my pre-op tomorrow morning and am wondering if you ladies had any advice or questions I should be asking.

Thank you for taking the time to read my post....it is more like a book now!
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  #2  
Unread 03-05-2009, 03:24 PM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

to the place nobody wants to be, but we're all greatfull is here!!

Good news is that you caught it at a very early stage. Chances are that you will be cancer free post-op. First thing to make sure of is that you have a gynecological oncologist doing the surgery. They are the professionals with "female" cancers. We all trust our regular ob/gyne's, but they simply aren't trained in this field.

From what I've read adeno can be quite aggressive. But, it's not going to progress fast enough that it can't be contained. (take a breath now) The good news is that surgery is in a couple weeks, the bad news is that it will feel like the LONGEST 2 weeks of your life!

I kept busy by preparing for surgery (and moving lol). I made lists of what I had to do before surgery. Things like setting up a recovery area at home, cleaning, getting food for myself, and my animals, getting things at work in order. That is a good distraction if nothing else. Some ladies keep busy by pre-making meals to freeze for others living in the home.

Hope this helps a bit. I know others will be along with tips for relaxing and preparing, I'm a bit scattered brained at the moment.
  #3  
Unread 03-05-2009, 05:09 PM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

Hi Blu:

I'm sorry to hear you have CC, but it sounds like it was caught early and that's always good.

I have to second what Vega said, make sure that a gyn/oncologist does the surgery or is at least participating in the surgery. They are the specialists in this area and know what to look for and what to do.

The waiting is indeed the hardest (and scariest) part. Just take it one step at a time, remember to breath, and try to keep yourself busy with other things. Before my surgery, I focused on working as much as possible, cleaning the house top to bottom, shopping for things I would need post-op (there's a lot of posts about this in the pre-op forum) and keeping busy any way I could. Before you know, you'll be done surgery and on the road to recovery.

Questions I had before my surgery were mainly how long the surgery would be, how long I would stay in hospital, type of incision/surgery, what I could bring to the hospital with me, what the post-op recovery would be and what check-ups I would have afterwards.

Hugs and prayers that all goes well.
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  #4  
Unread 03-05-2009, 10:32 PM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

Hi BluDeb, I'm sorry to hear about your diagnosis.

I'm 45 and was diagnosed with adenocarcinoma Ia1 last year. I had my paps every year since I was 19 and I'd never had a bad one. In December of 2007 my doctor did the HPV/dna test. It came back high risk HPV. I went for a colpo (without biopsy - there was nothing wrong with my outer cervix), but she did an ECC. The ECC came back adenocarcinoma in situ. My cold knife cone came back adenocarcinoma Ia1. I went to a gyn/onc who told me my only needed treatment was a hyst (uterus and cervix).

I was talking to my doctor about "how quickly" a woman goes from clear paps to AdCA (or AIS) and she said AIS/AdCA is usually more difficult to detect because of the location of the glandular cells (they aren't usually sampled by a pap or seen during a colpo). The more I learned, the more that made sense. I realize it feels like things developed that quickly, but in reality, it just wasn't detected.

AdCA develops more rapidly than squamous cell cancer, but I don't believe it goes from nothing to full blown cancer in a year. I don't know that for a fact, it is just what I suspect based on what I've read.

have you seen a gyn/oncologist yet? If not, I suggest you get a second opinion from one.

Anyway, welcome to Hystersisters. You have found the right place! I know this diagnosis is difficult to understand and the emotions are all over the place. Post away and let us know how we can help you! (((((hugs))))) and prayers!
  #5  
Unread 03-06-2009, 10:39 AM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

everyone preety much gave you all the advice you needed I just wanted to say that I read your post and am also glad you found this site it can be a really big comfort during this scary time!
  #6  
Unread 03-06-2009, 02:00 PM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

Thank you so much for your kind words and advice. It sure helps alot!

I am getting the hyst done by a gyn/oncologist. I was referred after the results of the cone came back. She did not give me a stage and could not tell me how fast it had developed.

Peaceful Storm - what you said about the location of the cells makes sense. I think I will call the Dr. who did the cone to ask him some questions. He is a fantastic Dr.! He even called me at home after the cone to see how I was doing, and he is also the Chief of Gynecology in my city! I wish he was doing the hyst, but as it is cancer, I had to be referred.

Thanks also for all the pre hospital ideas. I will definitely be preparing and freezing meals ahead of time...great suggestion. I will also be cleaning and getting things ready for when I get home too. The less for my hubby to do the better.

Again to you all, a big hug of thanks! It is so comforting not to feel so alone through all of this!
  #7  
Unread 03-07-2009, 08:12 AM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

Hi - I had a pap in September 04 (no cancer), vaginal polyps removed in December 04 (no cancer or abnormalities were noted), bleeding after sex by May 05 and 1B2 cc by August 05. Mine was an aggressive cancer, but I'm 4.5 years out from surgery and fully expect to reach the coveted five-year mark cancer free. Gyn/oncs know what they're doing and most of us go on to live long lives; I bet you will too!!! Best to you! s!!!
  #8  
Unread 03-07-2009, 11:26 AM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

BluDeb, when you call your doctor ask for them to give you copies of your pathology reports. It will give you the actual results from those tests. They are a little difficult to understand at first, but there are plenty of ways to determine what it means. The ladies here will help as best we can!

(((hugs))))
  #9  
Unread 03-07-2009, 10:58 PM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

(((BluDebi)))

Hello from another adeno-sister! Yep, our stories are all eerily similar: normal paps, then "out of the blue," cancer.

The other gals have given great advice (as usual!), so I'll just send some more hugs and prayers your way. CC is very treatable when caught early as is your case. Thank God you were on top of things! (Don't forget to check over on the surgery boards for tips re: hospital/recup/tips/etc.)

Keep us posted on things. We're here 24/7!


monami
  #10  
Unread 03-08-2009, 12:37 AM
Cervical Cancer with hysterectomy/lymphectomy sched. Mar 18 - totally scared!!!

Cervical cancer is staged by the gyn/oncologist based on what she sees and feels and the biopsy results. I am surprised that she didn't tell you your stage. I agree with the others, ask for copies of your tests and I would ask the gyn/oncologist for your stage because it will make you feel better. She wouldn't be doing surgery unless it was a stage 1b1 or even lower.

Waiting is THE WORST PART of this beastly decease. Keep busy, and know that in just a few weeks you will be cancer free and ready to get on with your life.

BTW, pap smears didn't work for me either. Mine were always fine and my cancer developed within months of my last pap. <shrugs> It happens. Unfortunately.

Best,
Janie
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