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Granulosa cell tumor Granulosa cell tumor

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  #1  
Unread 08-26-2001, 02:11 PM
Granulosa cell tumor

Hi
I was wondering if any of the sisters have been diagnosed, or have any info on granulosa cell tumors. On June 20th I was diagnosed with it. Recently I have found some info., but would like to ask some questions. I would appreciate any help, as I am scheduled for a CA-125 and check up in the middle of September and have fears of it recurring. Thanks...
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  #2  
Unread 08-26-2001, 03:08 PM
Granulosa cell tumor

Hi Jean!!

I've not heard of this type of tumor, but I did do a search on the site here and found 3 threads where its been talked about in the past. I have attached the link below.

As well, the other link is a search I did on google, and came up with alot of links to info on this as well.

I hope this information may be of some help to you.

https://www.hystersisters.com/vb2/sea...der=descending

http://www.google.com/search?q=granulosa+cell+tumor

Some of the sites in the google search have pics. Thought I would let you know as I personally don't like the picture sites, but you can tell by the wording in the link if it has pictures usually.

Please let us know how you make out with your tests and checkup!! Keeping good thoughts for you!
Hugs,
Maria
  #3  
Unread 08-27-2001, 05:29 AM
Granulosa cell tumor

I came up with these definitions for you...

*an ovarian tumor originating in the cells of the cumulus oophorus.
*gran´´u-lo´sah) an ovarian tumor originating in the solid mass of cells (granulosa cells) that surrounds the ovum in a developing graafian follicle. It may be associated with excessive production of estrogen, inducing endometrial hyperplasia with menorrhagia.
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  #4  
Unread 08-27-2001, 05:57 AM
Granulosa cell tumor

Hi Jean , just sending a big your way. Hope the checkup goes well in September. In the meantime , remember we are here for you always x x
  #5  
Unread 08-27-2001, 07:09 AM
Granulosa cell tumor

Hi Jean,

I wanted to add my {{hugs}} and prayers for you. I know its so hard to stay calm leading up to those visits and tests. Please know you are in all of our prayers and hope everything turns out wonderfully.

I also wanted to mention, there is a post at the top of this forum with quite a few cancer related links. Some are easier to understand that others but you might want to check into those also.

My best to you on your upcoming visit.

{{hugs}}

Vicki
  #6  
Unread 08-27-2001, 02:54 PM
Granulosa cell tumor

Hi Jean,

I too was diagnosed June 13th with a granulosa cell tumor-20cm-I thought I was just gaining weight! My tests came back in the normal range, but based on prior history, my dr and I went with surgery. On June 21st I had a tah/bso and am working though the post-op hormone jungle. My dr consulted a gyn-oncologist in Cleveland and determined that, in my situation, ct scans every 6 months would be the course of treatment.

Thoughts are with you!!!

Take care,
Annette
  #7  
Unread 08-28-2001, 02:46 PM
Granulosa cell tumor

Dear Jean,
I don't know if you got my email or not. I sent one to you yesterday. Granulosa cell tumors are also referred to as stromal cell tumors. My oncologist told me that CA125 tests are not a good diagnostic tool for this type of tumor, because it does not show up. (of course you have to follow what your doctor says.) For example, I had a CA125 test done that came back in the normal range, and I had a cantaloupe size tumor that consumed my right ovary. I was afraid to return for my first check up too. My oncologist checked that my incision looked ok, asked me if I was having any pains, and did a vaginal exam. That was all there was to it. Of course he asked me if I had any questions for him. He told me after the surgery that he would be very surprised if it ever came back. Mine was stage 1 too. All the biopsies came back normal. He will continue to see me on a regular schedule to keep an eye on me. He told me some words of wisdom too. He said that my anxiety will lessen as time goes on and I keep having good check ups. I bet I share a lot of the same concerns that you have or have had. Please email me at [email protected].

Peace,
Donna
  #8  
Unread 08-29-2001, 07:48 AM
Granulosa cell tumor

Dear Annette,

In reading your reply, I could relate! I was working at an elementary cafeteria when I found out about my granulosa cell tumor. I thought that I was just gaining weight too. I am 14 months post op, and feeling great. I hope your recovery is going well.

Have a great day!
Donna
  #9  
Unread 08-29-2001, 04:34 PM
Thank you Sisters

It was wonderful coming back from out of town to find several posts for info on granulosa, kind words of encouragement, and several other ladies who understand my concerns about granulosa. I have been extremely depressed this week, and went to my daughters house. I think the reality of the cancer had finally hit me. Suddenly I didnt have the positive attitude I was preaching to others, and was writing myself off. I dont know if people really understand the importance of this site, a place to go to when you feel alone with the diagnosis, and really need support and info. from others who are living with the fears and concerns that you have. My check up is in a couple of weeks, and I will let you know how it comes out.

I wish all the ladies good health, and I know we can beat this awful intrusion in our lives. Thank you wonderful sisters.....
  #10  
Unread 08-30-2001, 05:07 AM
Granulosa cell tumor

I just wanted to add a for you and let you know that we are all here for you!
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